Children at risk of anaphylaxis: A mixed-studies systematic review of parents' experiences and information needs.
Anaphylaxis
Child
Information need
Parent experience
Systematic review
Journal
PEC innovation
ISSN: 2772-6282
Titre abrégé: PEC Innov
Pays: Netherlands
ID NLM: 9918367980406676
Informations de publication
Date de publication:
Dec 2022
Dec 2022
Historique:
received:
09
09
2021
revised:
13
01
2022
accepted:
17
01
2022
medline:
21
1
2022
pubmed:
21
1
2022
entrez:
22
5
2023
Statut:
epublish
Résumé
To explore parents' self-reported experiences and information needs regarding recognition and management of pediatric anaphylaxis. We searched Ovid Medline, Ovid PsychInfo, CINAHL Plus, the Cochrane Library, and grey literature to identify primary studies in English or French published since 2000. We used a mixed-method appraisal tool and convergent integrated approach to assess quality and synthesize data, respectively. 43 studies were included (22 quantitative, 19 qualitative, and 2 mixed-method); 77% of studies had high methodological quality. Parents' experiences were categorized as: recognizing an anaphylactic reaction; managing and responding to a reaction; emotional impact of caring for a child at risk of anaphylaxis; and interaction with the health system and healthcare providers. Parents' information needs were categorized into themes relating to: gaps in knowledge and information; type of information desired; information sources; and information delivery format. Negative emotional experiences and a general lack of information were commonly reported by parents of included studies. Provision of relevant and comprehensible information may help parents to make informed decisions and manage reactions promptly. The findings of this review are guiding the development of an innovative knowledge translation tool (KT) as part of a larger initiative of developing a suite of parent-focused KT tools for acute childhood conditions.
Identifiants
pubmed: 37213745
doi: 10.1016/j.pecinn.2022.100018
pii: S2772-6282(22)00003-6
pmc: PMC10194313
doi:
Types de publication
Journal Article
Review
Langues
eng
Pagination
100018Informations de copyright
© 2022 The Authors.
Déclaration de conflit d'intérêts
None.
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