To Operate or Not to Operate? Reconstructive Surgical Burden and Quality of Life of Pediatric Patients with Facial Differences.

cleft lip cleft lip and palate cleft palate craniofacial surgery craniosynostosis hemifacial microsomia nonsyndromic clefting quality of life

Journal

The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association
ISSN: 1545-1569
Titre abrégé: Cleft Palate Craniofac J
Pays: United States
ID NLM: 9102566

Informations de publication

Date de publication:
29 May 2023
Historique:
medline: 30 5 2023
pubmed: 30 5 2023
entrez: 29 5 2023
Statut: aheadofprint

Résumé

The Craniofacial Condition Quality of Life Scale (CFC-QoL) was used to evaluate the relationship between surgical burden and quality of life (QoL). Patient-parent dyads completed the CFC-QoL which queries the following QoL domains: Bullying, Peer Problems, Psychological Impact, Family Support, Appearance Satisfaction, and Desire for Appearance Change. Stepwise multivariate linear regressions were performed for each QoL domain. Urban tertiary care center. Pediatric patients with facial differences, and their parents. Survey study. Demographic, diagnostic, and surgical characteristics were collected. Surgical burden was calculated as the standard deviation from the mean number of surgeries per diagnostic cohort. Patients ( Higher surgical burden was associated with worse QoL outcomes in multiple domains.

Identifiants

pubmed: 37248562
doi: 10.1177/10556656231176879
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

10556656231176879

Auteurs

Rishi N Modi (RN)

School of Medicine, University of California San Diego, La Jolla, CA, USA.

Jessica D Blum (JD)

School of Medicine, University of California San Diego, La Jolla, CA, USA.

Burçin Ataseven (B)

Kültür University, Istanbul, Turkey.

Caitlyn C Belza (CC)

School of Medicine, University of California San Diego, La Jolla, CA, USA.

Edna Montes (E)

Division of Plastic Surgery, Rady's Children Hospital, San Diego, CA, USA.

Karen L Leung (KL)

School of Medicine, University of California San Diego, La Jolla, CA, USA.

Michelle Zaldana-Flynn (M)

School of Medicine, University of California San Diego, La Jolla, CA, USA.
Division of Plastic Surgery, Rady's Children Hospital, San Diego, CA, USA.
Division of Plastic Surgery, Department of Surgery, School of Medicine, University of California San Diego, La Jolla, CA, USA.

Chelsea S Rapoport (CS)

Joint Doctoral Program in Clinical Psychology, San Diego State University / University of California San Diego, San Diego, CA, USA.

Alyssa K Choi (AK)

Joint Doctoral Program in Clinical Psychology, San Diego State University / University of California San Diego, San Diego, CA, USA.

Emily Ewing (E)

Division of Plastic Surgery, Rady's Children Hospital, San Diego, CA, USA.

Vanessa L Malcarne (VL)

School of Medicine, University of California San Diego, La Jolla, CA, USA.
Joint Doctoral Program in Clinical Psychology, San Diego State University / University of California San Diego, San Diego, CA, USA.
Department of Psychology, San Diego State University, San Diego, CA, USA.

Amanda A Gosman (AA)

School of Medicine, University of California San Diego, La Jolla, CA, USA.
Division of Plastic Surgery, Rady's Children Hospital, San Diego, CA, USA.
Division of Plastic Surgery, Department of Surgery, School of Medicine, University of California San Diego, La Jolla, CA, USA.

Classifications MeSH