To Operate or Not to Operate? Reconstructive Surgical Burden and Quality of Life of Pediatric Patients with Facial Differences.
cleft lip
cleft lip and palate
cleft palate
craniofacial surgery
craniosynostosis
hemifacial microsomia
nonsyndromic clefting
quality of life
Journal
The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association
ISSN: 1545-1569
Titre abrégé: Cleft Palate Craniofac J
Pays: United States
ID NLM: 9102566
Informations de publication
Date de publication:
29 May 2023
29 May 2023
Historique:
medline:
30
5
2023
pubmed:
30
5
2023
entrez:
29
5
2023
Statut:
aheadofprint
Résumé
The Craniofacial Condition Quality of Life Scale (CFC-QoL) was used to evaluate the relationship between surgical burden and quality of life (QoL). Patient-parent dyads completed the CFC-QoL which queries the following QoL domains: Bullying, Peer Problems, Psychological Impact, Family Support, Appearance Satisfaction, and Desire for Appearance Change. Stepwise multivariate linear regressions were performed for each QoL domain. Urban tertiary care center. Pediatric patients with facial differences, and their parents. Survey study. Demographic, diagnostic, and surgical characteristics were collected. Surgical burden was calculated as the standard deviation from the mean number of surgeries per diagnostic cohort. Patients ( Higher surgical burden was associated with worse QoL outcomes in multiple domains.
Identifiants
pubmed: 37248562
doi: 10.1177/10556656231176879
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM