Advocacy for patients with headache disorders.

Advocacy Headache Low and middle income countries Migraine

Journal

eNeurologicalSci
ISSN: 2405-6502
Titre abrégé: eNeurologicalSci
Pays: Netherlands
ID NLM: 101667077

Informations de publication

Date de publication:
Jun 2023
Historique:
received: 28 10 2022
revised: 07 04 2023
accepted: 09 05 2023
medline: 30 5 2023
pubmed: 30 5 2023
entrez: 30 5 2023
Statut: epublish

Résumé

Primary headache disorders are worldwide highly prevalent and burdensome and should be therefore considered as a global public health priority. However, too many patients with primary headache disorders still do not receive satisfying care. The most likely identified reasons for such a scenario - lack of public awareness, stigma, lack of trained professionals with inadequate healthcare systems and policies - are remediable. Despite the progresses that were made in headache advocacy, these efforts have not yielded substantial improvements in research funding or access to specialty care and even standards of care. The situation is more complex in Low and Middle Income Countries (LMICs) where headache advocacy is urgently needed given the magnitude of the difficulties that patients with primary headache disorders face in accessing care. The growing emergence of coordinated, collaborative, patient-centered advocacy efforts with improved patient-clinician partnership is an opportunity to enhance progress in advocacy for a satisfying life and optimal and equitable care for people with primary headache disorders. LMICs can benefit greatly from coordinating these efforts on a global scale. The recent organization of a training program on headache diagnosis and management for healthcare professionals in Africa is a concrete example.

Identifiants

pubmed: 37250108
doi: 10.1016/j.ensci.2023.100466
pii: S2405-6502(23)00024-2
pmc: PMC10209324
doi:

Types de publication

Journal Article Review

Langues

eng

Pagination

100466

Informations de copyright

© 2023 Published by Elsevier B.V.

Déclaration de conflit d'intérêts

None.

Références

BMJ Glob Health. 2021 Apr;6(4):
pubmed: 33903176
Headache. 2020 Jul;60(7):1465-1471
pubmed: 32459017
Neurology. 2014 Sep 23;83(13):1207-9
pubmed: 25253876
Nat Rev Neurol. 2022 Dec;18(12):723-734
pubmed: 36369488
AIDS. 2018 Mar 27;32(6):783-793
pubmed: 29369164
Cephalalgia. 2009 Apr;29(4):472-7
pubmed: 19170698
Health Promot Int. 2020 Oct 1;35(5):907-915
pubmed: 31504512
Int J Behav Nutr Phys Act. 2022 Jan 6;19(1):1
pubmed: 34991593
Eur J Gen Pract. 2021 Dec;27(1):198-210
pubmed: 34334095
Headache. 2020 Feb;60(2):337-347
pubmed: 31755111
J Headache Pain. 2010 Dec;11(6):451-5
pubmed: 21080023
J Headache Pain. 2018 Dec 4;19(1):118
pubmed: 30514208
Cochrane Database Syst Rev. 2020 Mar 26;3:CD011942
pubmed: 32216074
Disabil Rehabil. 2012;34(4):329-36
pubmed: 21981545
Glob Health Action. 2018;11(1):1496887
pubmed: 30040605
J Headache Pain. 2020 Dec 2;21(1):137
pubmed: 33267788
Acta Neurol Belg. 2022 Feb;122(1):75-81
pubmed: 33566334
J Neurovirol. 2019 Apr;25(2):248-253
pubmed: 30607892
J Headache Pain. 2015 Feb 18;16:15
pubmed: 25869942
J Headache Pain. 2015;16:95
pubmed: 26554602
PLoS One. 2015 Jun 03;10(6):e0127392
pubmed: 26039666
Glob Health Action. 2021 Jan 1;14(1):1955476
pubmed: 34420494
J Headache Pain. 2015;16:515
pubmed: 25916334
Cephalalgia. 2018 Nov;38(13):1899-1909
pubmed: 29882695
Lancet Neurol. 2004 Sep;3(9):564-7
pubmed: 15324725
J Headache Pain. 2017 Dec;18(1):58
pubmed: 28547735
Curr Pain Headache Rep. 2021 Dec 6;25(11):75
pubmed: 34873646
Cephalalgia. 2020 Sep;40(10):1017-1025
pubmed: 32345038
AIDS Care. 2022 Jan;34(1):1-6
pubmed: 34330183
Headache. 2020 Sep;60(8):1846-1852
pubmed: 32476128
Headache. 2020 Oct;60(9):2059-2077
pubmed: 32813900
J Neurol Sci. 2017 Jan 15;372:307-315
pubmed: 28017235
J Headache Pain. 2016 Dec;17(1):110
pubmed: 27924616
J Headache Pain. 2018 Feb 1;19(1):10
pubmed: 29392600
Headache. 2020 Feb;60(2):478-481
pubmed: 31985046
PLoS One. 2013 Jun 12;8(6):e65772
pubmed: 23776544
Hum Resour Health. 2021 Jul 16;19(1):88
pubmed: 34271924
Headache. 2016 May;56(5):821-834
pubmed: 27143127
J Headache Pain. 2012 Jan;13(1):67-74
pubmed: 22045235
Headache. 2012 Mar;52(3):455-66
pubmed: 22077887
Headache. 2021 Jul;61(7):1004-1020
pubmed: 34081779
Headache. 2021 Apr;61(4):628-641
pubmed: 33797078
Headache. 2013 Jan;53(1):81-92
pubmed: 23078241
Mult Scler. 2020 Dec;26(14):1816-1821
pubmed: 33174475
Lancet. 2021 Apr 17;397(10283):1485-1495
pubmed: 33773613
Neurology. 2005 Feb 8;64(3):412-5
pubmed: 15699367
J Headache Pain. 2021 Jul 21;22(1):78
pubmed: 34289806
J Headache Pain. 2020 Feb 7;21(1):11
pubmed: 32033539
Pain. 2000 Mar;85(1-2):191-200
pubmed: 10692618
J Headache Pain. 2007 Oct;8(5):263-72
pubmed: 17955166
Neurology. 2007 Oct 23;69(17):1715-8
pubmed: 17954787
Neurol Clin Pract. 2022 Feb;12(1):e1-e2
pubmed: 36157631
PLoS One. 2013;8(1):e54074
pubmed: 23342079
Trop Med Int Health. 2020 Oct;25(10):1246-1260
pubmed: 32745296
Isr Med Assoc J. 2001 Dec;3(12):937-9
pubmed: 11794919
Plants (Basel). 2021 Sep 28;10(10):
pubmed: 34685845
Curr Neurol Neurosci Rep. 2020 Sep 17;20(11):52
pubmed: 32940800
PLoS One. 2020 Apr 2;15(4):e0230703
pubmed: 32240186

Auteurs

Riadh Gouider (R)

Neurology Department, LR18SP03, Razi Universitary Hospital, 1 rue des orangers Manouba, 2010 Tunis, Tunisia.
Faculty of Medicine of Tunis, University of Tunis El Manar, 15, Rue Djebel Akhdhar, La Rabta, 1007, Tunis, Tunisia.
Clinical Investigation Center (CIC) "Neurosciences and Mental Health", Razi Universitary Hospital, 1 rue des orangers Manouba, 2010 Tunis, Tunisia.

Deborah Henscheid Lorenz (DH)

Patient Advocate, AZ, USA.

Audrey Craven (A)

European Federation of Neurological Associations & European Headache & Migraine Alliance, Dublin, Ireland.

Wolfgang Grisold (W)

Ludwig Boltzmann Institute for Experimental und Clinical Traumatology, Donaueschingenstraße 13, A-1200, Vienna, Austria.

David W Dodick (DW)

Mayo Clinic Arizona, Chief Science Officer, Atria Academy of Science and Medicine, USA.

Classifications MeSH