Ethical preparedness and developments in genomic healthcare.

Ethics Genomics Innovation Preparedness

Journal

Journal of medical ethics
ISSN: 1473-4257
Titre abrégé: J Med Ethics
Pays: England
ID NLM: 7513619

Informations de publication

Date de publication:
02 Jun 2023
Historique:
received: 11 07 2022
accepted: 17 05 2023
medline: 3 6 2023
pubmed: 3 6 2023
entrez: 2 6 2023
Statut: aheadofprint

Résumé

Considerations of the notion of preparedness have come to the fore in the recent pandemic, highlighting a need to be better prepared to deal with sudden, unexpected and unwanted events. However, the concept of preparedness is also important in relation to planned for and desired interventions resulting from healthcare innovations. We describe ethical preparedness as a necessary component for the successful delivery of novel healthcare innovations, and use recent advances in genomic healthcare as an example. We suggest that practitioners and organisations charged with delivering innovative and ambitious healthcare programmes can only succeed if they are able to exhibit the attribute of ethical preparedness.

Identifiants

pubmed: 37268409
pii: jme-2022-108528
doi: 10.1136/jme-2022-108528
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Informations de copyright

© Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: Both BF and AML have served as members of the Genomics England Ethics Advisory Committee. BF is a current member of Our Future Health’s Ethics Advisory Board and a former HFEA Board member. AML is a co-founder of Genethics Forum. AML is Chair of UK Biobank Ethics Advisory Committee. AML is Chair of the Joint Committee of Genomics in Medicine.

Auteurs

Bobbie Farsides (B)

Clinical and Experimental Medicine, Brighton and Sussex Medical School, Brighton, UK b.farsides@bsms.ac.uk.

Anneke M Lucassen (AM)

Clinical Ethics, Law and Society (CELS), Centre for Personalised Medicine, Wellcome Centre for Human Genetics, University of Oxford, Oxford, UK.

Classifications MeSH