A qualitative investigation into the role of illness perceptions in endometriosis-related quality of life.
endometriosis
illness perceptions
qualitative
quality-of-life
wellbeing
Journal
Journal of health psychology
ISSN: 1461-7277
Titre abrégé: J Health Psychol
Pays: England
ID NLM: 9703616
Informations de publication
Date de publication:
Oct 2023
Oct 2023
Historique:
pubmed:
26
6
2023
medline:
26
6
2023
entrez:
26
6
2023
Statut:
ppublish
Résumé
Endometriosis is related to adverse quality of life (QoL) and wellbeing outcomes. The way in which endometriosis is perceived by individuals experiencing the condition has not been directly considered, yet illness perceptions (IPs) are predictors of QoL in several chronic conditions. This research aims to gain an understanding of the IPs held by individuals experiencing endometriosis and their impact on QoL. Semi-structured, one-to-one interviews with 30 UK-based participants sought to gain an understanding of participant experiences and perceptions linked to endometriosis. Three themes were constructed through reflexive thematic analysis: a life disrupted; lost sense of self; and complex emotional responses. Largely negative IPs were held by individuals experiencing endometriosis which, along with endometriosis-specific symptoms, fuelled fears for the future and reduced QoL. IP-based interventions may support the QoL of those experiencing endometriosis whilst effective treatment is sought.
Identifiants
pubmed: 37358039
doi: 10.1177/13591053231183230
pmc: PMC10571435
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
1157-1171Déclaration de conflit d'intérêts
Declaration of conflicting interestsThe authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
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