Gaps in the System: Supporting People Living with Dementia.

Alzheimer’s disease dementia health systems integrated care/care coordination person-centered approach/care

Journal

Journal of aging & social policy
ISSN: 1545-0821
Titre abrégé: J Aging Soc Policy
Pays: England
ID NLM: 8914669

Informations de publication

Date de publication:
02 Jul 2023
Historique:
pubmed: 3 7 2023
medline: 3 7 2023
entrez: 3 7 2023
Statut: aheadofprint

Résumé

Persons living with dementia and their caregivers often face challenges in accessing support for their complex needs. This study aims to understand how program administrators, people living with dementia, unpaid caregivers, and decision-makers perceive specific dementia care programs and whether they are adequately meeting the needs of individuals living with dementia. Forty semi-structured interviews were conducted between 2018 and 2020 in five North American jurisdictions. Three main gaps were identified (1) disconnected system infrastructure, (2) lack of comprehensive services to meet diverse needs, and (3) inconsistent understandings of dementia. Despite having programs in place, there remain significant limitations in systems that could be addressed to adequately meet the needs of individuals living with dementia and their caregivers.

Identifiants

DOI: 10.1080/08959420.2023.2226341 PMID: 37394827
pubmed: 37394827
doi: 10.1080/08959420.2023.2226341
doi:

Types de publication

Journal Article

Langues

eng

Pagination

1-21

Auteurs

Madeline King (M)

North American Observatory on Health Systems and Policies, Toronto, Ontario, Canada.

Allie Peckham (A)

North American Observatory on Health Systems and Policies, Toronto, Ontario, Canada.
Edson College of Nursing and Health Innovation, Arizona State University, Phoenix, AZ, USA.
Center for Innovation in Healthy and Resilient Aging, Arizona State University, Arizona, USA.
ORCID: 0000-0001-6199-6903

Husayn Marani (H)

North American Observatory on Health Systems and Policies, Toronto, Ontario, Canada.
Institute of Health Policy, Management and Evaluation, University of Toronto Toronto, Ontario, Canada.

Monika Roerig (M)

North American Observatory on Health Systems and Policies, Toronto, Ontario, Canada.
Institute of Health Policy, Management and Evaluation, University of Toronto Toronto, Ontario, Canada.
ORCID: 0000-0002-9117-0368

Seles Yung (S)

Centre for Health Services and Policy Research, University of British Columbia, Vancouver, British Columbia, Canada.

Kimberlyn McGrail (K)

Centre for Health Services and Policy Research, University of British Columbia, Vancouver, British Columbia, Canada.

Yuchi Young (Y)

School of Public Health, State University of New York at Albany, New York, USA.

James Shaw (J)

Institute of Health Policy, Management and Evaluation, University of Toronto Toronto, Ontario, Canada.
Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada.
ORCID: 0000-0002-9522-0756

Greg Marchildon (G)

North American Observatory on Health Systems and Policies, Toronto, Ontario, Canada.
Institute of Health Policy, Management and Evaluation, University of Toronto Toronto, Ontario, Canada.
ORCID: 0000-0003-4898-2392

Classifications MeSH