Healthy Parent Carers: Acceptability and practicability of online delivery and learning through implementation by delivery partner organisations.
delivery partner organisations
disabled children
health promotion
implementation
parent carers
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
10 2023
10 2023
Historique:
revised:
15
06
2023
received:
16
11
2022
accepted:
20
06
2023
medline:
11
9
2023
pubmed:
4
7
2023
entrez:
4
7
2023
Statut:
ppublish
Résumé
Parent carers of disabled children are at increased risk of physical and mental health problems. The Healthy Parent Carers (HPC) programme is a manualised peer-led group-based programme that aims to promote parent carer health and wellbeing. Previously, the programme had been delivered in person, with recruitment and delivery managed in a research context. This study explored implementation by two delivery partner organisations in the United Kingdom. Facilitator Training and Delivery Manuals were modified for online delivery using Zoom due to COVID-19. The study methodology utilised the Replicating Effective Programs framework. A series of stakeholder workshops informed the development of the Implementation Logic Model and an Implementation Package. After delivering the programme, delivery partner organisations and facilitators participated in a workshop to discuss experiences of implementing the programme. A wider group of stakeholders, including commissioners, Parent Carer Forums and charity organisations representatives and researchers subsequently met to consider the sustainability and potential barriers to delivering the programme outside the research context. This study explored implementation by two delivery partner organisations in the United Kingdom that were able to recruit facilitators, who we trained, and they recruited participants and delivered the programme to parent carers in different localities using Zoom. The co-created Implementation Logic Model and Implementation Package were subsequently refined to enable the further roll-out of the programme with other delivery partner organisations. This study provides insight and understanding of how the HPC programme can be implemented sustainably outside of the research context. Further research will evaluate the effectiveness of the programme and refine the implementation processes. Parent carers, delivery partner organisation staff and service commissioners were consulted on the design, delivery and reporting of the research.
Sections du résumé
BACKGROUND
Parent carers of disabled children are at increased risk of physical and mental health problems. The Healthy Parent Carers (HPC) programme is a manualised peer-led group-based programme that aims to promote parent carer health and wellbeing. Previously, the programme had been delivered in person, with recruitment and delivery managed in a research context. This study explored implementation by two delivery partner organisations in the United Kingdom. Facilitator Training and Delivery Manuals were modified for online delivery using Zoom due to COVID-19.
METHODS
The study methodology utilised the Replicating Effective Programs framework. A series of stakeholder workshops informed the development of the Implementation Logic Model and an Implementation Package. After delivering the programme, delivery partner organisations and facilitators participated in a workshop to discuss experiences of implementing the programme. A wider group of stakeholders, including commissioners, Parent Carer Forums and charity organisations representatives and researchers subsequently met to consider the sustainability and potential barriers to delivering the programme outside the research context.
RESULTS
This study explored implementation by two delivery partner organisations in the United Kingdom that were able to recruit facilitators, who we trained, and they recruited participants and delivered the programme to parent carers in different localities using Zoom. The co-created Implementation Logic Model and Implementation Package were subsequently refined to enable the further roll-out of the programme with other delivery partner organisations.
CONCLUSIONS
This study provides insight and understanding of how the HPC programme can be implemented sustainably outside of the research context. Further research will evaluate the effectiveness of the programme and refine the implementation processes.
PATIENT AND PUBLIC CONTRIBUTION
Parent carers, delivery partner organisation staff and service commissioners were consulted on the design, delivery and reporting of the research.
Identifiants
pubmed: 37401625
doi: 10.1111/hex.13812
pmc: PMC10485339
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
2050-2063Subventions
Organisme : Department of Health
Pays : United Kingdom
Informations de copyright
© 2023 The Authors. Health Expectations published by John Wiley & Sons Ltd.
Références
Child Care Health Dev. 2007 Mar;33(2):180-7
pubmed: 17291322
Dev Med Child Neurol. 2023 Jul;65(7):885-899
pubmed: 36649197
J Consult Clin Psychol. 2023 Apr;91(4):189-191
pubmed: 36780266
Disabil Rehabil. 2009;31(9):741-52
pubmed: 19736648
Am J Public Health. 2009 Jul;99(7):1254-62
pubmed: 19059861
Arch Pediatr Adolesc Med. 2003 Nov;157(11):1128-33
pubmed: 14609905
Front Psychiatry. 2021 Dec 21;12:729129
pubmed: 34992552
BMJ. 2021 Sep 30;374:n2061
pubmed: 34593508
BMC Health Serv Res. 2021 May 6;21(1):430
pubmed: 33952263
Compr Psychiatry. 2021 Oct;110:152261
pubmed: 34332205
Br J Health Psychol. 2015 Feb;20(1):130-50
pubmed: 24815766
Transl Behav Med. 2022 Oct 7;12(9):885-888
pubmed: 36205475
Implement Sci. 2007 Dec 09;2:42
pubmed: 18067681
J Am Med Inform Assoc. 2018 Aug 1;25(8):1080-1088
pubmed: 29788380
J Intellect Disabil Res. 2003 May-Jun;47(Pt 4-5):385-99
pubmed: 12787168
Am J Public Health. 2003 Aug;93(8):1261-7
pubmed: 12893608
Psychiatry Res. 2020 Jan;283:112467
pubmed: 31488332
J Intellect Dev Disabil. 2006 Mar;31(1):1-12
pubmed: 16766317
Am J Ment Retard. 2006 May;111(3):155-69
pubmed: 16597183
J Intellect Disabil Res. 2001 Dec;45(Pt 6):535-43
pubmed: 11737541
Ann Behav Med. 2013 Aug;46(1):81-95
pubmed: 23512568
Pilot Feasibility Stud. 2021 Jul 23;7:144
pubmed: 34301334
BMC Pediatr. 2018 May 25;18(1):174
pubmed: 29801450
J Neuroimaging. 2003 Jan;13(1):5-16
pubmed: 12593126
Prev Med. 1986 Sep;15(5):451-74
pubmed: 3534875
Prev Chronic Dis. 2013 Nov 21;10:E193
pubmed: 24262025
BMJ Open. 2021 Aug 25;11(8):e045570
pubmed: 34433591
Health Psychol Rev. 2019 Sep;13(3):227-247
pubmed: 31190619
Behav Res Ther. 2011 Jan;49(1):32-41
pubmed: 21092935
Res Dev Disabil. 2019 Mar;86:76-86
pubmed: 30684833
Disabil Health J. 2017 Oct;10(4):565-570
pubmed: 28347641
Res Dev Disabil. 2022 Feb;121:104150
pubmed: 34942443
Med Care. 2019 Jul;57(7):503-511
pubmed: 31135692
Health Expect. 2023 Oct;26(5):2050-2063
pubmed: 37401625
BMC Public Health. 2018 Feb 20;18(1):270
pubmed: 29458355
Pediatrics. 2004 Aug;114(2):e182-91
pubmed: 15286255