The ticking time-bomb. Health literacy in the context of genetic risk prediction in familial breast-ovarian cancer; A qualitative study.
Health literacy
narrative interviews
reflexive grounded theory
risk
Journal
Qualitative research in medicine & healthcare
ISSN: 2532-2044
Titre abrégé: Qual Res Med Healthc
Pays: Italy
ID NLM: 101729160
Informations de publication
Date de publication:
05 Oct 2021
05 Oct 2021
Historique:
received:
28
01
2021
accepted:
30
05
2021
medline:
5
10
2021
pubmed:
5
10
2021
entrez:
13
7
2023
Statut:
epublish
Résumé
Personalised methods of predicting breast and ovarian cancer risk through genetic testing increasingly demand a person's understanding and critical appraisal of risk-related information, as well as decision-making and acting upon disclosure of a positive test result. The current study aims at understanding health literacy (HL) among persons at risk of developing familial breast-ovarian cancer (FBOC) from a bottom-up perspective-incorporating their viewpoints into the research process. Its qualitative design integrates an ethnographic-narrative approach and findings from 10 narrative interviews with women who have undergone genetic testing, analysed by using reflexive grounded theory. The collected data reveal the entanglement of the women's perceptions concerning the risk of getting ill, their identity, and their strategies of managing health. The analysis of this interplay provides an empirical basis for approaching HL in its communicative dimension, considering individuals' understandings of health and illness, and emphasizing the role of critical HL.
Identifiants
pubmed: 37441672
doi: 10.4081/qrmh.2021.9647
pmc: PMC10336887
doi:
Types de publication
Journal Article
Langues
eng
Pagination
9647Informations de copyright
©Copyright: the Author(s).
Déclaration de conflit d'intérêts
Conflict of interest: The authors declare that there is no conflict of interest.
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