Is the internet a sufficient source of information on sarcoidosis?

content information internet quality sarcoidosis

Journal

Frontiers in medicine
ISSN: 2296-858X
Titre abrégé: Front Med (Lausanne)
Pays: Switzerland
ID NLM: 101648047

Informations de publication

Date de publication:
2023
Historique:
received: 04 05 2023
accepted: 01 06 2023
medline: 13 7 2023
pubmed: 13 7 2023
entrez: 13 7 2023
Statut: epublish

Résumé

Many patients use the internet as a source of health information. Sarcoidosis is a complex disease, and internet resources have not yet been analyzed for reliability and content on sarcoidosis. Our study aimed to investigate the content and the quality of information on sarcoidosis provided by internet resources. Google, Yahoo, and Bing were searched for the term "sarcoidosis," and the first 200 hits were saved in each case. Those websites that met the inclusion criteria (English language, no registration fees, and relevant to sarcoidosis) were then analyzed by two independent investigators for readability, quality (HON, JAMA, and DISCERN), and content (25 predefined key facts) of the provided information. The websites were most commonly scientific or governmental ( Sarcoidosis-related content of internet resources is partially sufficient; however, several important aspects are frequently not addressed, and the quality of information is moderate. Future directions should focus on providing reliable and comprehensive information on sarcoidosis; physicians from different disciplines and patients including self-support groups should collaborate on achieving this.

Identifiants

DOI: 10.3389/fmed.2023.1217146 PMID: 37441693 PMC: PMC10333509
pubmed: 37441693
doi: 10.3389/fmed.2023.1217146
pmc: PMC10333509
doi:

Types de publication

Journal Article

Langues

eng

Pagination

1217146

Informations de copyright

Copyright © 2023 Buschulte, Höger, Ganter, Wijsenbeek, Kahn, Kriegsmann, Wilkens, Fisher, Ryerson, Herth and Kreuter.

Déclaration de conflit d'intérêts

KB received payment for lectures from Boehringer Ingelheim and a grant from Sarkoidose-Netzwerk e.V. JF has received grant funding from the University of Toronto and the Canadian Pulmonary Fibrosis Foundation and has received honoraria from Boehringer Ingelheim and AstraZeneca. CR reports grants from Boehringer Ingelheim and Hoffman la Roche; consulting fees from Boehringer Ingelheim, Hoffman la Roche, Astra Zeneca, Veracyte, Ensho, and Pliant Therapeutics; payment for lectures from Boehringer Ingelheim, Hoffman la Roche, and Cipla Ltd.; and support for attending meetings from Cipla Ltd., and Boehringer Ingelheim (unrelated to this submission). FH reports payment for lectures from Astra Zeneca, GSK, and Chiesi and is a part of the Data Safety Monitoring Board from Apogenix. MK reports grants, consulting fees, and payment for lectures from Boehringer Ingelheim and Roche. KK was employed by Limbach Gruppe SE. The remaining authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

Références

J Surg Oncol. 2015 Nov;112(6):575-80
pubmed: 26417898
Lung. 2018 Oct;196(5):569-575
pubmed: 30088094
Annu Rev Public Health. 2020 Apr 2;41:433-451
pubmed: 31874069
Digit Health. 2019 Nov 07;5:2055207619888073
pubmed: 31741741
Nat Rev Dis Primers. 2019 Jul 4;5(1):45
pubmed: 31273209
Respir Res. 2022 Apr 27;23(1):103
pubmed: 35477513
J Appl Psychol. 1948 Jun;32(3):221-33
pubmed: 18867058
JAMA. 2022 Mar 1;327(9):856-867
pubmed: 35230389
Eur Respir Rev. 2020 Mar 20;29(155):
pubmed: 32198218
Curr Opin Pulm Med. 2020 Sep;26(5):574-581
pubmed: 32740378
Eur Respir J. 2021 Dec 16;58(6):
pubmed: 34140301
J Cancer Educ. 2017 Mar;32(1):135-140
pubmed: 26234650
Prim Health Care Res Dev. 2020 Dec 02;21:e55
pubmed: 33263273
Am J Med. 2016 Jun;129(6):637-9
pubmed: 26829438
Respiration. 2023;102(5):361-369
pubmed: 37054695
JAMA. 1997 Apr 16;277(15):1244-5
pubmed: 9103351
JAMA. 2002 May 22-29;287(20):2691-700
pubmed: 12020305
Clin Chest Med. 2015 Dec;36(4):727-37
pubmed: 26593145
Am J Respir Crit Care Med. 2016 Jul 15;194(2):218-25
pubmed: 26849779
J Epidemiol Community Health. 1999 Feb;53(2):105-11
pubmed: 10396471
Am J Respir Crit Care Med. 2020 Apr 15;201(8):e26-e51
pubmed: 32293205

Auteurs

Katharina Buschulte (K)

Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, Thoraxklinik, University of Heidelberg, German Center for Lung Research (DZL), Heidelberg, Germany.

Philipp Höger (P)

Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, Thoraxklinik, University of Heidelberg, German Center for Lung Research (DZL), Heidelberg, Germany.

Claudia Ganter (C)

Department of Hematology, Oncology and Rheumatology, Innere Medizin V, Heidelberg University Hospital, Heidelberg, Germany.

Marlies Wijsenbeek (M)

Center for Interstitial Lung Diseases and Sarcoidosis, Department of Respiratory Medicine, Erasmus MC-University Medical, Center Rotterdam, Rotterdam, Netherlands.

Nicolas Kahn (N)

Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, Thoraxklinik, University of Heidelberg, German Center for Lung Research (DZL), Heidelberg, Germany.

Katharina Kriegsmann (K)

Laborarztpraxis Rhein-Main MVZ GbR, Limbach Gruppe SE, Frankfurt am Main, Germany.

Finn M Wilkens (FM)

Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, Thoraxklinik, University of Heidelberg, German Center for Lung Research (DZL), Heidelberg, Germany.

Jolene H Fisher (JH)

Department of Medicine, University of Toronto, Toronto, ON, Canada.

Christopher J Ryerson (CJ)

Department of Medicine and Centre for Heart Lung Innovation, University of British Columbia, Vancouver, BC, Canada.

Felix J F Herth (FJF)

Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, Thoraxklinik, University of Heidelberg, German Center for Lung Research (DZL), Heidelberg, Germany.

Michael Kreuter (M)

Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, Thoraxklinik, University of Heidelberg, German Center for Lung Research (DZL), Heidelberg, Germany.
Center for Pulmonary Medicine, Departments of Pneumology, Mainz University Medical Center and of Pulmonary, Critical Care and Sleep Medicine, Marienhaus Clinic Mainz, Mainz, Germany.

Classifications MeSH