Recruitment strategies to increase racial and ethnic diversity in anorexia nervosa clinical research.

Anorexia nervosa Bone health Community health Diversity Equity Inclusion Social media

Journal

Journal of eating disorders
ISSN: 2050-2974
Titre abrégé: J Eat Disord
Pays: England
ID NLM: 101610672

Informations de publication

Date de publication:
15 Jul 2023
Historique:
received: 28 03 2023
accepted: 07 07 2023
medline: 16 7 2023
pubmed: 16 7 2023
entrez: 15 7 2023
Statut: epublish

Résumé

Inclusion of underrepresented racial and ethnic groups in eating disorder (ED) research is a critical unmet need, but evidence-based recruitment strategies are lacking. We sought to determine whether methods we had implemented to increase recruitment of underrepresented racial and ethnic groups were successful in improving racial and ethnic diversity in a clinical trial in women with anorexia nervosa. We implemented new strategies for recruitment of underrepresented racial and ethnic groups in a clinical trial on bone health in women with anorexia nervosa, including leveraging social media, liberalizing language on advertisements to be more inclusive of women who are as yet undiagnosed with the disorder or feel stigmatized by its name, translating advertisements to Spanish, and engaging community health centers. We compared participants' race and ethnicity in this clinical trial versus two similar prior clinical trials. The percent of non-White and Hispanic participants who have signed a consent form in our ongoing clinical trial (2021-2023) is higher versus two previous clinical trials on bone health in women with anorexia nervosa (2011-2019) with similar inclusion/exclusion criteria and endpoints [non-White: 11/38 (28.9%) vs. 11/188 (5.9%), Hispanic: 6/38 (15.8%) vs. 5/188 (2.7%), p ≤ 0.006]. There was no change in the percent of Black participants [0/38 (0%) vs. 1/188 (0.5%), p = 1.0]. Viewing clinical research recruitment through a diversity, equity, and inclusion lens can improve racial and ethnic diversity in ED research. Further research recruitment strategies are needed to be more inclusive of Black populations.

Identifiants

pubmed: 37454157
doi: 10.1186/s40337-023-00844-6
pii: 10.1186/s40337-023-00844-6
pmc: PMC10349455
doi:

Types de publication

Letter

Langues

eng

Pagination

118

Subventions

Organisme : NIH HHS
ID : K24 HL092902
Pays : United States
Organisme : NIH HHS
ID : K23 DK115903
Pays : United States

Informations de copyright

© 2023. The Author(s).

Références

Eur J Endocrinol. 2022 Oct 13;187(5):697-708
pubmed: 36134902
Mayo Clin Proc. 1999 Oct;74(10):972-7
pubmed: 10918862
Int J Eat Disord. 2022 Apr;55(4):423-454
pubmed: 35288967
Int J Eat Disord. 2022 Apr;55(4):463-469
pubmed: 35092322
Front Psychiatry. 2022 Feb 18;13:820043
pubmed: 35250670
Int J Eat Disord. 2018 Jun;51(6):518-526
pubmed: 29500865
Int J Eat Disord. 2003 Mar;33(2):205-12
pubmed: 12616587
J Bone Miner Res. 2021 Nov;36(11):2116-2126
pubmed: 34355814
Int J Eat Disord. 2011 Jul;44(5):412-20
pubmed: 20665700
Annu Rev Public Health. 2006;27:1-28
pubmed: 16533107
Eat Behav. 2019 Jan;32:23-30
pubmed: 30529736
Int J Eat Disord. 2022 Apr;55(4):455-462
pubmed: 34997609
J Womens Health (Larchmt). 2007 Apr;16(3):423-8
pubmed: 17439387

Auteurs

Julianne Strauch (J)

Neuroendocrine Unit, Massachusetts General Hospital, 50 Staniford Street, Suite 750B, Boston, MA, 02114, USA.

Alexandra Agnew (A)

Neuroendocrine Unit, Massachusetts General Hospital, 50 Staniford Street, Suite 750B, Boston, MA, 02114, USA.

Erinne Meenaghan (E)

Neuroendocrine Unit, Massachusetts General Hospital, 50 Staniford Street, Suite 750B, Boston, MA, 02114, USA.

Karen K Miller (KK)

Neuroendocrine Unit, Massachusetts General Hospital, 50 Staniford Street, Suite 750B, Boston, MA, 02114, USA.
Harvard Medical School, Boston, MA, USA.

Melanie S Haines (MS)

Neuroendocrine Unit, Massachusetts General Hospital, 50 Staniford Street, Suite 750B, Boston, MA, 02114, USA. mshaines@mgh.harvard.edu.
Harvard Medical School, Boston, MA, USA. mshaines@mgh.harvard.edu.

Classifications MeSH