Co-creation of self-management support during inpatient stroke rehabilitation.
Cerebrovascular accident
Co-design
Co-production
Consumer engagement
Hospital
Neurological rehabilitation
Participatory
Journal
PEC innovation
ISSN: 2772-6282
Titre abrégé: PEC Innov
Pays: Netherlands
ID NLM: 9918367980406676
Informations de publication
Date de publication:
15 Dec 2023
15 Dec 2023
Historique:
received:
22
06
2022
revised:
04
02
2023
accepted:
08
07
2023
medline:
31
7
2023
pubmed:
31
7
2023
entrez:
31
7
2023
Statut:
epublish
Résumé
This study aimed to identify priority self-management skills and behaviours in partnership with stroke survivors, and to co-create approaches to support self-management during inpatient stroke rehabilitation. Three stroke survivors and two communication partners participated in the three-stage Participatory Action Research project with embedded co-design processes after undertaking inpatient rehabilitation at a metropolitan tertiary hospital. Participants identified key factors influencing self-management during inpatient rehabilitation including motivation, emotional well-being, and fatigue. Three approaches to support people to self-manage post-stroke were co-created. (1) A health professional concierge and early family meeting. (2) A peer support person. (3) Adapting the hospital environment. Findings suggest post-stroke self-management support should commence during inpatient rehabilitation to optimise its research-informed benefits. This support should focus on empowering stroke survivors and their key support people through active involvement in decision-making, and provision of multi-modal individualised education. The impact of hospital environments on emotional-wellbeing and self-management post-stroke also requires further investigation. The identification of a health professional concierge as a co-designed solution to the current challenges with self-management support is an innovative recommendation for practice. The findings support changes to the traditional processes of rehabilitation towards a consumer and family-led practices.
Identifiants
pubmed: 37521957
doi: 10.1016/j.pecinn.2023.100191
pii: S2772-6282(23)00071-7
pmc: PMC10371841
doi:
Types de publication
Journal Article
Langues
eng
Pagination
100191Informations de copyright
© 2023 The Authors.
Déclaration de conflit d'intérêts
None.
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