The ERA Registry Annual Report 2020: a summary.

ESKD dialysis epidemiology kidney transplantation patient survival

Journal

Clinical kidney journal
ISSN: 2048-8505
Titre abrégé: Clin Kidney J
Pays: England
ID NLM: 101579321

Informations de publication

Date de publication:
Aug 2023
Historique:
received: 20 12 2022
medline: 2 8 2023
pubmed: 2 8 2023
entrez: 2 8 2023
Statut: epublish

Résumé

The European Renal Association (ERA) Registry collects data on kidney replacement therapy (KRT) in patients with ESKD. This paper is a summary of the ERA Registry Annual Report 2020, also including comparisons among primary renal disease (PRD) groups. Data were collected from 52 national and regional registries from 34 European countries and countries bordering the Mediterranean Sea: 35 registries from 18 countries providing individual level data and 17 registries from 17 countries providing aggregated data. Using this data, KRT incidence and prevalence, kidney transplantation rates, expected remaining lifetimes and survival probabilities were calculated. A general population of 654.9 million people was covered by the ERA Registry in 2020. The overall incidence of KRT was 128 per million population (p.m.p.). In incident KRT patients, 54% were older than 65 years, 63% were men and the most common PRD was diabetes mellitus (21%). Regarding initial treatment modality in incident patients, 85% received haemodialysis (HD), 11% received peritoneal dialysis (PD) and 4% received a pre-emptive kidney transplant. On 31 December 2020, the prevalence of KRT was 931 p.m.p. In prevalent patients, 45% were older than 65 years, 60% were men and glomerulonephritis was the most common PRD (18%). Of these patients, 58% were on HD, 5% on PD and 37% were living with a kidney transplant. The overall kidney transplantation rate in 2020 was 28 p.m.p., with a majority of kidney grafts from deceased donors (71%). The unadjusted 5-year survival, based on incident dialysis patient from 2011-15, was 41.8%. For patients having received a deceased donor transplant, the unadjusted 5-year survival probability was 86.2% and for patients having received a living donor transplant it was 94.4%. When comparing data by PRD group, differences were found regarding the distribution of age groups, sex and treatment modality received.

Sections du résumé

Background UNASSIGNED
The European Renal Association (ERA) Registry collects data on kidney replacement therapy (KRT) in patients with ESKD. This paper is a summary of the ERA Registry Annual Report 2020, also including comparisons among primary renal disease (PRD) groups.
Methods UNASSIGNED
Data were collected from 52 national and regional registries from 34 European countries and countries bordering the Mediterranean Sea: 35 registries from 18 countries providing individual level data and 17 registries from 17 countries providing aggregated data. Using this data, KRT incidence and prevalence, kidney transplantation rates, expected remaining lifetimes and survival probabilities were calculated.
Results UNASSIGNED
A general population of 654.9 million people was covered by the ERA Registry in 2020. The overall incidence of KRT was 128 per million population (p.m.p.). In incident KRT patients, 54% were older than 65 years, 63% were men and the most common PRD was diabetes mellitus (21%). Regarding initial treatment modality in incident patients, 85% received haemodialysis (HD), 11% received peritoneal dialysis (PD) and 4% received a pre-emptive kidney transplant. On 31 December 2020, the prevalence of KRT was 931 p.m.p. In prevalent patients, 45% were older than 65 years, 60% were men and glomerulonephritis was the most common PRD (18%). Of these patients, 58% were on HD, 5% on PD and 37% were living with a kidney transplant. The overall kidney transplantation rate in 2020 was 28 p.m.p., with a majority of kidney grafts from deceased donors (71%). The unadjusted 5-year survival, based on incident dialysis patient from 2011-15, was 41.8%. For patients having received a deceased donor transplant, the unadjusted 5-year survival probability was 86.2% and for patients having received a living donor transplant it was 94.4%. When comparing data by PRD group, differences were found regarding the distribution of age groups, sex and treatment modality received.

Identifiants

pubmed: 37529647
doi: 10.1093/ckj/sfad087
pii: sfad087
pmc: PMC10387405
doi:

Types de publication

Journal Article

Langues

eng

Pagination

1330-1354

Informations de copyright

© The Author(s) 2023. Published by Oxford University Press on behalf of the ERA.

Déclaration de conflit d'intérêts

A.O. is the previous Editor-in-Chief of CKJ.

Auteurs

Megan E Astley (ME)

ERA Registry, Department of Medical Informatics, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.
Amsterdam Public Health, Health Behaviours & Chronic Diseases and Methodology, Amsterdam, The Netherlands.

Rianne Boenink (R)

ERA Registry, Department of Medical Informatics, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.
Amsterdam Public Health, Quality of Care and Ageing & Later Life, Amsterdam, The Netherlands.

Samar Abd ElHafeez (S)

ERA Registry, Department of Medical Informatics, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.
Epidemiology Department, High Institute of Public Health, Alexandria University, Alexandria, Egypt.

Sara Trujillo-Alemán (S)

Health Quality Assessment and Information System Service, Dirección General de Programas Asistenciales, Servicio Canario de la Salud, Canary Islands, Spain.

Federico Arribas (F)

Department of Aragon Health, General Direction of Health Care, Zaragoza, Spain.

Anders Åsberg (A)

The Norwegian Renal Registry, Department of Transplantation Medicine, Oslo University Hospital - Rikshospitalet, Oslo, Norway.

Pazit Beckerman (P)

Sheba Medical Center, Ramat Gan, and School of Medicine, Tel Aviv University, Tel Aviv, Israel.

Samira Bell (S)

Scottish Renal Registry, Public Health Scotland, Glasgow, UK.
Division of Population Health & Genomics, University of Dundee, Ninewells Hospital, Dundee, United Kingdom.

María Encarnación Bouzas-Caamaño (ME)

Regional Transplant Coordination of Galicia, Galician Health Service, Santiago de Compostela, Spain.

Jordi Comas Farnés (JC)

Catalan Renal Registry, Catalan Transplant Organization, Health Department, Generalitat of Catalonia, Barcelona, Spain.

Ana Amélia Galvão (AA)

Portuguese Society of Nephrology, Coimbra, Portugal.

Nikola Gjorgjievski (N)

Hospital of Nephrology, Skopje, N. Macedonia.
Faculty of Medicine, University "SS Cyril and Methodius" Skopje, Skopje, N. Macedonia.

Vjollca Godanci Kelmendi (VG)

Nephrology Clinic, University Clinical Centre of Kosova, Prishtina, Kosova.

Rebecca Guidotti (R)

Institute of Nephrology, City Hospital Zurich, Zurich, Switzerland.

Jaakko Helve (J)

Finnish Registry for Kidney Diseases and Abdominal Center Nephrology, University of Helsinki and Helsinki University Central Hospital, Helsinki, Finland.

Alma Idrizi (A)

Service of Nephrology, UHC Mother Teresa, Tirana, Albania.

Ólafur S Indriðason (ÓS)

Division of Nephrology, Landspitali-The National University Hospital of Iceland, Reykjavik, Iceland.

Kyriakos Ioannou (K)

Cyprus Renal Registry, Nicosia, Cyprus.

Julia Kerschbaum (J)

Austrian Dialysis and Transplant Registry, Department of Internal Medicine IV-Nephrology and Hypertension, Medical University Innsbruck, Innsbruck, Austria.

Kirill Komissarov (K)

Minsk Scientific and Practical Center of Surgery, Transplantation and Hematology, Minsk, Belarus.

Pablo Castro de la Nuez (P)

SICATA: Information System of the Autonomous Coordination of Transplants of Andalusia, Seville, Andalucia, Spain.

Mathilde Lassalle (M)

REIN Registry, Agence de la Biomédecine, Saint-Denis La Plaine, France.

Maurizio Nordio (M)

Division of Nephrology, AULSS 2, Treviso General Hospital, Treviso, Italy.

Olga Lucía Rodríguez Arévalo (OLR)

Registry of Renal Patients of the Valencian Community, General Directorate of Public Health and Addictions, Ministry of Universal Health and Public Health, Valencia, Spain.
Health and Well-being Technologies Program, Polytechnic University of Valencia, Valencia, Spain.

Carmen Santiuste (C)

Murcia Renal Registry, Department of Epidemiology, Murcia Regional Health Council, IMIB-Arrixaca, Murcia, Spain.
CIBER Epidemiología y Salud Pública (CIBERESP), Madrid, Spain.

Nurhan Seyahi (N)

Department of Nephrology, Cerrahpaşa Medical Faculty, Istanbul University-Cerrahpaşa, Istanbul, Turkey.

María Fernanda Slon Roblero (MFS)

Hospital Universitario de Navarra, Pamplona, Navarra, Spain.

Retha Steenkamp (R)

UK Renal Registry, Bristol, UK.

Marc A G J Ten Dam (MAGJ)

Dutch Registry RENINE, Nefrovisie, Utrecht, The Netherlands.

Elena V Zakharova (EV)

Nephrology, Botkin Hospital, Moscow, Russia.
Nephrology and Hemodialysis, Russian Medical Academy of Continuing Professional Education, Moscow, Russia.

Edita Ziginskiene (E)

Lithuanian Nephrology, Dialysis and Transplantation Association, Kaunas, Lithuania.
Nephrology Department, Medical Academy, Lithuanian University of Health Sciences, Kaunas, Lithuania.

Marjolein Bonthuis (M)

ERA Registry, Department of Medical Informatics, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.
Amsterdam Public Health, Quality of Care, Amsterdam, The Netherlands.
ESPN/ERA Registry, Amsterdam UMC location University of Amsterdam, Department of Medical Informatics, Amsterdam, The Netherlands.

Vianda S Stel (VS)

ERA Registry, Department of Medical Informatics, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.
Amsterdam Public Health, Quality of Care and Ageing & Later Life, Amsterdam, The Netherlands.

Alberto Ortiz (A)

Department of Nephrology and Hypertension, IIS-Fundacion Jimenez Diaz UAM, Madrid, Spain.
Department of Medicine, Universidad Autonoma de Madrid, Madrid, Spain.

Kitty J Jager (KJ)

ERA Registry, Department of Medical Informatics, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.
Amsterdam Public Health, Quality of Care and Ageing & Later Life, Amsterdam, The Netherlands.

Anneke Kramer (A)

ERA Registry, Department of Medical Informatics, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.

Classifications MeSH