Participant-Generated Timelines: A Participatory Tool to Explore Young People With Chronic Pain and Parents' Narratives of Their Healthcare Experiences.
participatory approaches
timelines
visual methods
young people with chronic pain
Journal
Qualitative health research
ISSN: 1049-7323
Titre abrégé: Qual Health Res
Pays: United States
ID NLM: 9202144
Informations de publication
Date de publication:
09 2023
09 2023
Historique:
medline:
12
9
2023
pubmed:
4
8
2023
entrez:
4
8
2023
Statut:
ppublish
Résumé
Visual methods are becoming more evident in health research. Timeline drawings have been used as a participatory tool alongside interviews in life course research. In this article, we describe how a method involving timeline generation can explore patient experiences along a treatment continuum. Grounded in previously published evidence and using specific examples from two studies exploring the experiences of young people treated for chronic pain, we outline the key components of this method. Moreover, we highlight the flexibility of its application and the importance of using a person-centered approach in tailoring the application pragmatically to study population-specific needs and characteristics, while answering the research question. We also reflect on how the dynamic visual display of the timeline and participants' explanations add perspective and understanding to complex and multidimensional human experiences associated with healthcare treatment. Furthermore, we outline how this method can help capture changes in the meaning and sense-making of these experiences over time, all the while fostering empowerment in study participants. Finally, the key considerations of using the method are outlined. It is our aim that this article provides the details required to inspire others to consider this novel method as a means of capturing the healthcare experiences of young people with other chronic conditions, an important first step in fostering the changes required to improve the quality of healthcare services and research.
Identifiants
pubmed: 37539703
doi: 10.1177/10497323231189388
pmc: PMC10494482
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Pagination
931-944Subventions
Organisme : CIHR
Pays : Canada
Références
Pediatr Res. 2016 May;79(5):676-83
pubmed: 26720607
Annu Rev Psychol. 2001;52:305-35
pubmed: 11148308
Br J Hosp Med (Lond). 2012 Aug;73(8):424-5
pubmed: 22875516
Cogn Neuropsychiatry. 2022 Mar-May;27(2-3):199-218
pubmed: 34708671
Cogn Process. 2013 Aug;14(3):255-72
pubmed: 23413002
Pain Res Manag. 2010 Jan-Feb;15(1):27-41
pubmed: 20195556
BMJ. 2021 Sep 30;374:n2061
pubmed: 34593508
J Pediatr Nurs. 2022 Nov-Dec;67:64-74
pubmed: 35964482
Pain. 2004 Apr;108(3):221-229
pubmed: 15030941
Qual Health Res. 2004 Feb;14(2):272-89
pubmed: 14768462
Integr Psychol Behav Sci. 2018 Mar;52(1):116-128
pubmed: 29063443
Children (Basel). 2021 Dec 10;8(12):
pubmed: 34943368
Pain. 2012 Aug;153(8):1563-1572
pubmed: 22560288
Headache. 2001 Jan;41(1):11-20
pubmed: 11168599
Paediatr Neonatal Pain. 2023 Mar 17;5(2):38-48
pubmed: 37283953
Pain. 2016 Oct;157(10):2277-2284
pubmed: 27276275
Nurs Res. 2004 May-Jun;53(3):207-10
pubmed: 15167509
Can J Pain. 2021 Feb 3;5(1):1-21
pubmed: 33987520
Pain. 2011 Dec;152(12):2729-2738
pubmed: 22078064