Participant-Generated Timelines: A Participatory Tool to Explore Young People With Chronic Pain and Parents' Narratives of Their Healthcare Experiences.


Journal

Qualitative health research
ISSN: 1049-7323
Titre abrégé: Qual Health Res
Pays: United States
ID NLM: 9202144

Informations de publication

Date de publication:
09 2023
Historique:
medline: 12 9 2023
pubmed: 4 8 2023
entrez: 4 8 2023
Statut: ppublish

Résumé

Visual methods are becoming more evident in health research. Timeline drawings have been used as a participatory tool alongside interviews in life course research. In this article, we describe how a method involving timeline generation can explore patient experiences along a treatment continuum. Grounded in previously published evidence and using specific examples from two studies exploring the experiences of young people treated for chronic pain, we outline the key components of this method. Moreover, we highlight the flexibility of its application and the importance of using a person-centered approach in tailoring the application pragmatically to study population-specific needs and characteristics, while answering the research question. We also reflect on how the dynamic visual display of the timeline and participants' explanations add perspective and understanding to complex and multidimensional human experiences associated with healthcare treatment. Furthermore, we outline how this method can help capture changes in the meaning and sense-making of these experiences over time, all the while fostering empowerment in study participants. Finally, the key considerations of using the method are outlined. It is our aim that this article provides the details required to inspire others to consider this novel method as a means of capturing the healthcare experiences of young people with other chronic conditions, an important first step in fostering the changes required to improve the quality of healthcare services and research.

Identifiants

pubmed: 37539703
doi: 10.1177/10497323231189388
pmc: PMC10494482
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Pagination

931-944

Subventions

Organisme : CIHR
Pays : Canada

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Auteurs

Karen Hurtubise (K)

CanChild Centre for Childhood Disability Research, Faculty of Health, McMaster University, Hamilton, ON, Canada.
School of Rehabilitation Sciences, Faculty of Health, McMaster University, Hamilton, ON, Canada.
Faculté de Médecine et Sciences de la Santé, Université de Sherbrooke, Sherbrooke, QC, Canada.

Rhiannon Joslin (R)

School of Health Sciences, University of Southampton, Southampton, UK.
Women's and Children's Department, University Hospitals Sussex, St. Richard's Hospital, Chichester, UK.

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Classifications MeSH