National UK guidelines for the management of paediatric craniopharyngioma.


Journal

The lancet. Diabetes & endocrinology
ISSN: 2213-8595
Titre abrégé: Lancet Diabetes Endocrinol
Pays: England
ID NLM: 101618821

Informations de publication

Date de publication:
09 2023
Historique:
received: 20 03 2023
revised: 25 05 2023
accepted: 01 06 2023
medline: 28 8 2023
pubmed: 8 8 2023
entrez: 7 8 2023
Statut: ppublish

Résumé

Although rare, craniopharyngiomas constitute up to 80% of tumours in the hypothalamic-pituitary region in childhood. Despite being benign, the close proximity of these tumours to the visual pathways, hypothalamus, and pituitary gland means that both treatment of the tumour and the tumour itself can cause pronounced long-term neuroendocrine morbidity against a background of high overall survival. To date, the optimal management strategy for these tumours remains undefined, with practice varying between centres. In light of these discrepancies, as part of a national endeavour to create evidence-based and consensus-based guidance for the management of rare paediatric endocrine tumours in the UK, we aimed to develop guidelines, which are presented in this Review. These guidelines were developed under the auspices of the UK Children's Cancer and Leukaemia Group and the British Society for Paediatric Endocrinology and Diabetes, with the oversight and endorsement of the Royal College of Paediatrics and Child Health using Appraisal of Guidelines for Research & Evaluation II methodology to standardise care for children and young people with craniopharyngiomas.

Identifiants

pubmed: 37549682
pii: S2213-8587(23)00162-6
doi: 10.1016/S2213-8587(23)00162-6
pii:
doi:

Types de publication

Journal Article Review Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

694-706

Commentaires et corrections

Type : CommentIn

Informations de copyright

Copyright © 2023 Elsevier Ltd. All rights reserved.

Déclaration de conflit d'intérêts

Declaration of interests H-WG received a one-off consulting fee from Rhythm Pharmaceuticals for development of a drug for hypothalamic obesity (not listed in manuscript, and not licensed for this indication currently). BZ has received honoraria from Medtronic for delivering lectures on electromagnetic neuronavigation and equipment and financial support to run the annual International Endoscopy in Neurosurgery course. HAS is the voluntary chair and founder of the SUCCESS Charity. All other authors declare no competing interests.

Auteurs

Hoong-Wei Gan (HW)

Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK; University College London Great Ormond Street Institute of Child Health, London, UK. Electronic address: hoong.gan.11@ucl.ac.uk.

Paul Morillon (P)

King's College Hospital NHS Foundation Trust, London, UK.

Assunta Albanese (A)

St George's University Hospitals NHS Foundation Trust, London, UK.

Kristian Aquilina (K)

Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.

Chris Chandler (C)

King's College Hospital NHS Foundation Trust, London, UK.

Yen-Ching Chang (YC)

University College London Hospitals NHS Foundation Trust, London, UK.

Evangelos Drimtzias (E)

St James' University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds, UK.

Sarah Farndon (S)

Bristol Royal Hospital for Children, University Hospitals Bristol NHS Foundation Trust, Bristol, UK.

Thomas S Jacques (TS)

Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK; University College London Great Ormond Street Institute of Child Health, London, UK.

Márta Korbonits (M)

William Harvey Research Institute, Barts and the London School of Medicine and Dentistry, Queen Mary University of London, London, UK.

Adam Kuczynski (A)

Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.

Jennifer Limond (J)

Department of Psychology, College of Life and Environmental Sciences, University of Exeter, Exeter, UK.

Louise Robinson (L)

Royal Manchester Children's Hospital, Manchester University NHS Foundation Trust, Manchester, UK.

Ian Simmons (I)

St James' University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds, UK.

Nick Thomas (N)

King's College Hospital NHS Foundation Trust, London, UK.

Sophie Thomas (S)

Nottingham Children's Hospital, Queens Medical Centre, Nottingham University Hospitals NHS Trust, Nottingham, UK.

Nicola Thorp (N)

The Clatterbridge Cancer Centre NHS Foundation Trust, Clatterbridge Road, Bebington, UK.

Faraneh Vargha-Khadem (F)

Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK; University College London Great Ormond Street Institute of Child Health, London, UK.

Daniel Warren (D)

St James' University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds, UK.

Bassel Zebian (B)

King's College Hospital NHS Foundation Trust, London, UK.

Conor Mallucci (C)

Alder Hey Children's NHS Foundation Trust, Liverpool, UK.

Helen Alexandra Spoudeas (HA)

Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.

Articles similaires

[Redispensing of expensive oral anticancer medicines: a practical application].

Lisanne N van Merendonk, Kübra Akgöl, Bastiaan Nuijen
1.00
Humans Antineoplastic Agents Administration, Oral Drug Costs Counterfeit Drugs

Smoking Cessation and Incident Cardiovascular Disease.

Jun Hwan Cho, Seung Yong Shin, Hoseob Kim et al.
1.00
Humans Male Smoking Cessation Cardiovascular Diseases Female
Humans United States Aged Cross-Sectional Studies Medicare Part C
1.00
Humans Yoga Low Back Pain Female Male

Classifications MeSH