Burden of care and coping strategies among informal caregivers of people with behavioral and psychological symptoms of dementia in rural south-western Uganda.
Behavioral and psychological symptoms of Dementia
Burden
Caregiver
Coping strategies
Journal
BMC geriatrics
ISSN: 1471-2318
Titre abrégé: BMC Geriatr
Pays: England
ID NLM: 100968548
Informations de publication
Date de publication:
08 08 2023
08 08 2023
Historique:
received:
15
09
2022
accepted:
23
06
2023
medline:
10
8
2023
pubmed:
9
8
2023
entrez:
8
8
2023
Statut:
epublish
Résumé
Caregiving is a draining role that inflicts a significant level of burden upon caregivers for older people with Behavioral and Psychological Symptoms of Dementia (BPSD). Caregiver burden is associated with poor health outcomes for both the people with BPSD and their caregivers. This study explored the burden of care and coping strategies used by informal caregivers of older people with BPSD in rural Southwestern Uganda. This was a qualitative study among informal caregivers of older people with BPSD in Rubanda and Rukiga districts. We conducted in-depth interviews with a purposive sample of 27 caregivers using an interview guide. The interviews were conducted in the local language, audio recorded, transcribed, translated into English, and thematically analyzed. There were two major themes: caregiver burden and coping strategies. Caregiver burden was described as financial, physical, psychological and social. Caregivers mainly used emotion-focused coping strategies (religious coping, acceptance and emotional support seeking). Problem-focused coping strategies (planning) and dysfunctional coping strategies (self-distraction) were used to a lesser extent. Informal caregivers of people with BPSD adopted both emotional and problem-focused coping strategies to cope with the burden of care for people with BPSD. Such coping strategies seemed to lighten the burden of caring, in the long motivating the caregivers to continue with the caring role.
Sections du résumé
BACKGROUND
Caregiving is a draining role that inflicts a significant level of burden upon caregivers for older people with Behavioral and Psychological Symptoms of Dementia (BPSD). Caregiver burden is associated with poor health outcomes for both the people with BPSD and their caregivers. This study explored the burden of care and coping strategies used by informal caregivers of older people with BPSD in rural Southwestern Uganda.
METHODS
This was a qualitative study among informal caregivers of older people with BPSD in Rubanda and Rukiga districts. We conducted in-depth interviews with a purposive sample of 27 caregivers using an interview guide. The interviews were conducted in the local language, audio recorded, transcribed, translated into English, and thematically analyzed.
RESULTS
There were two major themes: caregiver burden and coping strategies. Caregiver burden was described as financial, physical, psychological and social. Caregivers mainly used emotion-focused coping strategies (religious coping, acceptance and emotional support seeking). Problem-focused coping strategies (planning) and dysfunctional coping strategies (self-distraction) were used to a lesser extent.
CONCLUSION
Informal caregivers of people with BPSD adopted both emotional and problem-focused coping strategies to cope with the burden of care for people with BPSD. Such coping strategies seemed to lighten the burden of caring, in the long motivating the caregivers to continue with the caring role.
Identifiants
pubmed: 37553634
doi: 10.1186/s12877-023-04129-0
pii: 10.1186/s12877-023-04129-0
pmc: PMC10408158
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
475Informations de copyright
© 2023. BioMed Central Ltd., part of Springer Nature.
Références
Neuropsychiatr Dis Treat. 2014 Jul 29;10:1407-13
pubmed: 25114532
Dement Geriatr Cogn Disord. 1999 Mar-Apr;10(2):130-8
pubmed: 10026387
Trends Psychiatry Psychother. 2018 Jul-Sep;40(3):258-268
pubmed: 30304119
Indian J Psychol Med. 2016 Mar-Apr;38(2):133-6
pubmed: 27114625
Lancet Healthy Longev. 2021 Apr;2(4):e222-e231
pubmed: 34790905
Alzheimers Dement (N Y). 2021 Jan 23;6(1):e12063
pubmed: 33532542
Front Neurol. 2012 May 07;3:73
pubmed: 22586419
J Gerontol Soc Work. 2019 Aug-Sep;62(6):630-648
pubmed: 31250733
Am J Alzheimers Dis Other Demen. 2015 Nov;30(7):694-8
pubmed: 23813690
Clin Gerontol. 2019 Jan-Feb;42(1):47-59
pubmed: 29723129
BMC Geriatr. 2020 Feb 10;20(1):48
pubmed: 32041525
Soc Psychiatry Psychiatr Epidemiol. 2003 Nov;38(11):637-43
pubmed: 14614552
Int J Nurs Sci. 2019 Mar 08;6(2):148-153
pubmed: 31406884
Int J Environ Res Public Health. 2020 Jan 10;17(2):
pubmed: 31936738
BMC Geriatr. 2023 Jan 31;23(1):60
pubmed: 36721085
Dementia (London). 2021 Nov;20(8):2916-2932
pubmed: 34053227
Age Ageing. 2019 Dec 1;49(1):52-56
pubmed: 31755532
Cold Spring Harb Perspect Med. 2012 Aug 01;2(8):
pubmed: 22908189
BMC Public Health. 2019 Jun 13;19(Suppl 4):447
pubmed: 31196141
Int J Geriatr Psychiatry. 2020 Feb;35(2):250-258
pubmed: 31821606
Glob Ment Health (Camb). 2020 May 26;7:e13
pubmed: 32742671