Views of children with diabetes from underserved communities, and their families on diabetes, glycaemic control and healthcare provision: A qualitative evidence synthesis.
adolescents
children
qualitative evidence synthesis
self-management
systematic review
type 1 diabetes mellitus
underserved communities
Journal
Diabetic medicine : a journal of the British Diabetic Association
ISSN: 1464-5491
Titre abrégé: Diabet Med
Pays: England
ID NLM: 8500858
Informations de publication
Date de publication:
11 2023
11 2023
Historique:
received:
26
01
2023
accepted:
08
08
2023
medline:
23
10
2023
pubmed:
13
8
2023
entrez:
13
8
2023
Statut:
ppublish
Résumé
Children and young people with diabetes (CYPD) from socio-economically deprived and/or ethnic minority groups tend to have poorer glucose control and greater risk of diabetes-related complications. In this systematic review of qualitative evidence (qualitative evidence synthesis, QES), we aimed to explore the experiences and views of clinical encounters in diabetes care from the perspectives of CYPD and their family/carers from underserved communities and healthcare professionals in diabetes care. We searched 6 databases to March 2022 with extensive search terms, and used a thematic synthesis following methods of Thomas and Harden. We identified 7 studies and described 11 descriptive themes based on primary and secondary constructs. From these, three "analytical themes" were developed. (1) "Alienation of CYPD" relates to their social identity and interaction with peers, family and health service practitioners in the context of diabetes self- and family/carer management and is impacted by communication in the clinical encounter. (2) "Empowerment of CYPD and family/carers" explores families' understanding of risks and consequences of diabetes and taking responsibility for self- and family/carer management in the context of their socio-cultural background. (3) "Integration of diabetes (into self and family)" focuses on the ability to integrate diabetes self-management into the daily lives of CYPD and family/carers beyond the clinical consultation. The analytical themes are interdependent and provide a conceptual framework from which to explore and strengthen the therapeutic alliance in clinical encounters and to foster greater concordance with treatment plans. Communicating the biomedical aspects of managing diabetes in the clinical encounter is important, but should be balanced with addressing socio-emotional factors important to CYPD and family/carers.
Types de publication
Systematic Review
Journal Article
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
e15197Subventions
Organisme : Department of Health
ID : NIHR202358
Pays : United Kingdom
Investigateurs
C Austin
(C)
T Barrett
(T)
F Campbell
(F)
M Ford-Adams
(M)
S Greenfield
(S)
N Rowland
(N)
R Kandiyali
(R)
K Khunti
(K)
K Leeson-Beevers
(K)
T Moore
(T)
P Narendran
(P)
V Puthi
(V)
S Redwood
(S)
P Sachdev
(P)
A Searle
(A)
P Sundaram
(P)
S Tearne
(S)
S Uday
(S)
J Wheeler
(J)
R Willemsen
(R)
Informations de copyright
© 2023 The Authors. Diabetic Medicine published by John Wiley & Sons Ltd on behalf of Diabetes UK.
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