The Experience of Dancing Among Individuals with Cerebral Palsy at an Inclusive Dance Group: A Qualitative Study.
Cerebral palsy
Disability
Inclusive dance
Laban method
Qualitative
Rehabilitation
Journal
Advances in experimental medicine and biology
ISSN: 0065-2598
Titre abrégé: Adv Exp Med Biol
Pays: United States
ID NLM: 0121103
Informations de publication
Date de publication:
2023
2023
Historique:
medline:
16
8
2023
pubmed:
15
8
2023
entrez:
15
8
2023
Statut:
ppublish
Résumé
Art practices such as dance have the potential to support people with disabilities. It is possible that through dancing, bodies that may be regarded as "deficient" can be strengthened while enhancing their personal and cultural identities. It is also possible that inclusive group dance classes can enable the integration of people with disabilities in their social context. However, there is limited research on how these potential benefits are experienced by participants. The purpose of this research is to describe the experience of people with cerebral palsy participating in regular dance classes. Semi-structured interviews were conducted with six participants with cerebral palsy who participated in an inclusive dance group that was informed by the creative approach of Laban. The interviews were transcribed, coded, and analyzed according to the thematic analysis of Braun and Clarke. The qualitative analysis software program ATLAS.TI version 8 was used for organizing and data analysis. The six interviews were analyzed and codified in four main categories: (1) the experience of cerebral palsy (the body does not help); (2) dance as a form of relationship with myself and the other; (3) the value of dancing and; (4) the dancer. These categories led to the creation of two subthemes: (a) the "unlocking" concerning the therapeutic effect of dance and (b) the "acquisition of a dancer's identity" by engaging with dance as an artform. An overall theme also emerged, "the passage from darkness to light." Individuals with cerebral palsy, while taking the risk of being physically "exposed" in dance classes and dance group performances, managed to unlock their bodies, develop connections with others, acquire the identity of a dancer, and move from "darkness" to "light."
Sections du résumé
BACKGROUND
BACKGROUND
Art practices such as dance have the potential to support people with disabilities. It is possible that through dancing, bodies that may be regarded as "deficient" can be strengthened while enhancing their personal and cultural identities. It is also possible that inclusive group dance classes can enable the integration of people with disabilities in their social context. However, there is limited research on how these potential benefits are experienced by participants.
AIM
OBJECTIVE
The purpose of this research is to describe the experience of people with cerebral palsy participating in regular dance classes.
METHODS
METHODS
Semi-structured interviews were conducted with six participants with cerebral palsy who participated in an inclusive dance group that was informed by the creative approach of Laban. The interviews were transcribed, coded, and analyzed according to the thematic analysis of Braun and Clarke. The qualitative analysis software program ATLAS.TI version 8 was used for organizing and data analysis.
FINDINGS
RESULTS
The six interviews were analyzed and codified in four main categories: (1) the experience of cerebral palsy (the body does not help); (2) dance as a form of relationship with myself and the other; (3) the value of dancing and; (4) the dancer. These categories led to the creation of two subthemes: (a) the "unlocking" concerning the therapeutic effect of dance and (b) the "acquisition of a dancer's identity" by engaging with dance as an artform. An overall theme also emerged, "the passage from darkness to light."
CONCLUSIONS
CONCLUSIONS
Individuals with cerebral palsy, while taking the risk of being physically "exposed" in dance classes and dance group performances, managed to unlock their bodies, develop connections with others, acquire the identity of a dancer, and move from "darkness" to "light."
Identifiants
pubmed: 37581818
doi: 10.1007/978-3-031-31986-0_43
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
443-456Informations de copyright
© 2023. The Author(s), under exclusive license to Springer Nature Switzerland AG.
Références
Aggerholm K, Moltke Martiny KM (2017) Yes we can! A phenomenological study of a sports camp for young people with cerebral palsy. Adapt Phys Act Q 34:1–20
Aisen M, Kerkovich D, Mast J, Mulroy S, Wren T, Kay R, Rethlefsen S (2011) Cerebral palsy: clinical care and neurological rehabilitation. Lancet Neurol 10(9):844–852
doi: 10.1016/S1474-4422(11)70176-4
pubmed: 21849165
Aithal S, Karkou V, Makris S, Karaminis T, Powell J (2021) A dance movement psychotherapy intervention for the wellbeing of children with an autism spectrum disorder: a pilot intervention study. Front Psychol 12:12–24
Alaee N, Shahboulaghi F, Khankeh H, Mohammad Khan Kermanshahi S (2015) Psychosocial challenges for parents of children with cerebral palsy: a qualitative study. J Child Fam Stud 24(7):2147–2154
doi: 10.1007/s10826-014-0016-3
Albright AC (2016) Choreographing difference. Wesleyan University Press, Middletown, pp 101–110–130–137
Allet L, Müller-Pinget S, Punt I, Edelsten C, Ballif A, Golay A, Pataky Z (2017) Dance therapy combined with patient education improves quality of life of persons with obesity: a pilot feasibility study for a randomised controlled trial. Obes Res Clin Pract 11(1):79–87
doi: 10.1016/j.orcp.2016.03.005
pubmed: 27053574
Alloa E, Todd JM (2017) Resistance of the sensible world: an introduction to Merleau-Ponty. Fordham University Press, Bronx. https://doi.org/10.2307/j.ctt1xhr5g7
doi: 10.2307/j.ctt1xhr5g7
Alotaibi A, Karkou V, van der Linden ML, Irvine L (2017) Movement therapy programme with children with mild learning difficulties in primary schools in Saudi Arabia: links between motion and emotion. In: Karkou V, Oliver S, Lycouris S (eds) The Oxford handbook of dance and wellbeing. Oxford University Press, New York, pp 479–492
Aristidou A, Charalambous P, Chrysanthou Y (2015) Emotion analysis and classification: understanding the performers’ emotions using the LMA entities. Comput Graph Forum 34(6):262–276
doi: 10.1111/cgf.12598
Bernardet U, Fdili Alaoui S, Studd K, Bradley K, Pasquier P, Schiphorst T (2019) Assessing the reliability of the Laban Movement Analysis system. PLoS One 14(6):e0218179
doi: 10.1371/journal.pone.0218179
pubmed: 31194794
pmcid: 6564005
Braun V, Clarke V (2006) Using thematic analysis in psychology. Qual Res Psychol 3(2):77–101
doi: 10.1191/1478088706qp063oa
Britannica T (2015) Editors of encyclopaedia. Encyclopedia Britannica. https://www.britannica.com/art/modern- dance. Accessed 26 Sept 2022
Campbell FK (2009) Contours of Ableism: the production of disability and abledness foreword Dan Goodley, 1st edn 978-0-230-57928-6. Softcover Reprint of the Hardcover. https://doi.org/10.1057/9780230245181
Cherriere C, Martel M, Sarrasin A, Ballaz L, Tallet J, Lemay M (2020) Benefits of a dance intervention on balance in adolescents with cerebral palsy. Phys Occup Ther Pediatr 40(5):518–533. https://doi.org/10.1080/01942638.2020.1720053 . Epub 2020 Feb 14. PMID: 32054380
doi: 10.1080/01942638.2020.1720053
pubmed: 32054380
Cherriere C, Robert M, Fung K, Tremblay Racine F, Tallet J, Lemay M (2019) Is there evidence of benefits associated with dancing in children and adults with cerebral palsy? A scoping review. Disabil Rehabil 42(23):3395–3402
doi: 10.1080/09638288.2019.1590866
pubmed: 30973761
Csordas TJ (ed) (2003) Embodiment and experience: the existential ground of culture and self. Cambridge University Press, Cambridge
Damiano DL (2006) Activity, activity, activity: rethinking our physical therapy approach to cerebral palsy. Phys Therapy 86(11):1534–1540. https://doi.org/10.2522/ptj.20050397
Desjarlais R, Throop CJ (2011) Phenomenological approaches in anthropology. Annu Rev Anthropol 40(1):87–102. https://doi.org/10.1146/annurev-anthro-092010-153345
doi: 10.1146/annurev-anthro-092010-153345
Di Marino E, Tremblay S, Khetani M, Anaby D (2018) The effect of child, family and environmental factors on the participation of young children with disabilities. Disabil Health J 11(1):36–42
doi: 10.1016/j.dhjo.2017.05.005
pubmed: 28624289
Dowler L (2013) Improvising on the ward: exploring somatic dance and potential in paediatric health care. J Appl Arts Health 4(2):163–178. https://doi.org/10.1386/jaah.4.2.163_1
Eriksen S, Grov E, Ibsen T, Mork Rokstad A, Telenius E (2022) The experience of lived body as expressed by people with dementia: a systematic meta-synthesis. Dementia 21(5):1771–1799
doi: 10.1177/14713012221082369
pubmed: 35437056
Fonseca C, Thurm B, Vecchi R, Gama E (2014) Ballroom dance and body size perception. Percept Mot Skills 119(2):495–503
doi: 10.2466/25.PMS.119c26z1
pubmed: 25349891
González-Soto CE, Menezes TMO, Guerrero-Castañeda RF (2021) Reflection on the phenomenology of Merleau-Ponty and its contributions to nursing research. Rev Gaucha Enferm 42:e20190439. https://doi.org/10.1590/1983-1447.2021.20190439 . English, Spanish. PMID: 33656164
doi: 10.1590/1983-1447.2021.20190439
pubmed: 33656164
Grosz E (1994) Volatile bodies: toward a corporeal feminism. Indiana University Press, Bloomington
Guest AH (2013) Labanotation: the system of analyzing and recording movement, 4th edn. Routledge. https://doi.org/10.4324/9780203626122
Gulati S, Sondhi V (2017) Cerebral palsy: an overview. Indian J Pediatr 85(11):1006–1016
doi: 10.1007/s12098-017-2475-1
pubmed: 29152685
Haak P, Lenski M, Hidecker M, Li M, Paneth N (2009) Cerebral palsy and aging. Dev Med Child Neurol 51:16–23
doi: 10.1111/j.1469-8749.2009.03428.x
pubmed: 19740206
pmcid: 4183123
Joung H, Yang H, Lee Y (2021) Effect of dance on balance, mobility, and activities of daily living in adults with cerebral palsy: a pilot study. Front Neurol 12:663060. https://doi.org/10.3389/fneur.2021.663060 . PMID: 34025566; PMCID: PMC8137835
doi: 10.3389/fneur.2021.663060
pubmed: 34025566
pmcid: 8137835
Karkou V, Sanderson P (2000) Dance movement therapy in UK education. Res Dance Educ 1(1):69–86
doi: 10.1080/14647890050006596
Karkou V, Sanderson P (2001) Dance movement therapy in the UK: a field emerging from dance education. Eur Phys Educ Rev 7(2):137–155
doi: 10.1177/1356336X010072003
King M, Shields N, Imms C, Black M, Ardern C (2013) Participation of children with intellectual disability compared with typically developing children. Res Dev Disabil 34(5):1854–1862
doi: 10.1016/j.ridd.2013.02.029
pubmed: 23528443
Koch S, Fischman D (2011) Embodied enactive dance/movement therapy. Am J Dance Ther 33(1):57–72
doi: 10.1007/s10465-011-9108-4
Kuppers P, Steichmann L, Gray J, Yergeau M, Meredith Cox A, Simonhjell N, Neil M, Currans E, DiPietra A, Heit’Touching S (2017) Disability culture: dancing tiresias. In: Karkou V, Oliver S, Lycouris S (eds) The Oxford handbook of dance and wellbeing. Oxford Academic, New York, pp 607–630
López-Ortiz C, Egan T, Gaebler-Spira D (2016) Pilot study of a targeted dance class for physical rehabilitation in children with cerebral palsy. SAGE Open Med 4:205031211667092
doi: 10.1177/2050312116670926
Lossing A, Moore M, Zuhl M (2016) Dance as a treatment for neurological disorders. Body Mov Dance Psychother 12(3):170–184
doi: 10.1080/17432979.2016.1260055
Maguire M, Delahunt B (2017) Doing a thematic analysis: a practical, step-by-step guide for learning and teaching scholars. AISHE-J 9:3351. http://ojs.aishe.org/index.php/aishe-j/article/view/3354
Merleau-Ponty M (1962) Phenomenology of perception. The Humanities Press, Atlantic Highlands
Mitra R (2018) Talking politics of contact improvisation with Steve Paxton. Dance Res J 50(3):6. https://doi.org/10.1017/S0149767718000335
doi: 10.1017/S0149767718000335
Morris M, Baldeon M, Scheuneman D (2015) Developing and sustaining an inclusive dance program: strategic tools and methods. J Dance Educ 15:122–129. https://doi.org/10.1080/15290824.2015.1056301
Mullane S, Dunphy KIM (2017) Dance movement therapy and student learning and well-being in special education. In: Karkou V, Oliver S, Lycouris S (eds) The Oxford handbook of dance and wellbeing. Oxford University Press, pp 493–516
Nettleton S (2021) The sociology of health and illness. Polity Press, Cambridge
Nowell L, Norris J, White D, Moules N (2017) Thematic analysis. Int J Qual Methods 16(1):160940691773384
doi: 10.1177/1609406917733847
Oskoui M, Coutinho F, Dykeman J, Jetté N, Pringsheim T (2013) An update on the prevalence of cerebral palsy: a systematic review and meta-analysis. Dev Med Child Neurol 55(6):509–519
doi: 10.1111/dmcn.12080
pubmed: 23346889
Papavasiliou A, Ben-Pazi H, Mastroyianni S, Ortibus E (2021) Editorial: cerebral palsy: new developments. Front Neurol 12:738921. https://doi.org/10.3389/fneur.2021.738921 . PMID: 34456856; PMCID: PMC8386682
doi: 10.3389/fneur.2021.738921
pubmed: 34456856
pmcid: 8386682
Plato., The Republic Book 6, Benjamin Jowett (Translator), Alexander Kerr (Introduction), Clarendon Press: Oxford. online Archived 18 April 2009 at the Wayback Machine
Polit DF, Beck CT (2017) Nursing research: generating and assessing evidence for nursing practice, 10th edn. Wolters Kluwer Health, Philadelphia, p 784. https://doi.org/10.1016/j.iccn.2015.01.005
Reinders N, Bryden PJ, Fletcher PC (2015) Dancing with Down syndrome: a phenomenological case study. Res Dance Educ. https://doi.org/10.1080/14647893.2015.1036018
Rosenbaum P, Rosenbloom L (2012) Cerebral palsy: from diagnosis to adult life. Neuropediatrics 43(06):358–358
doi: 10.1055/s-0032-1329610
Sandelowski M (2004) Using qualitative research. Qual Health Res 14(10):1366–1386
doi: 10.1177/1049732304269672
pubmed: 15538005
Sandström K (2007) The lived body—experiences from adults with cerebral palsy. Clin Rehabil 21(5):432–441
doi: 10.1177/0269215507073489
pubmed: 17613564
Stribling K, Christy J (2017) Creative dance practice improves postural control in a child with cerebral palsy. Pediatr Phys Ther 29(4):365–369
doi: 10.1097/PEP.0000000000000450
pubmed: 28953185
Teixeira-Machado L, Azevedo-Santos I, De Santana J (2017) Dance improves functionality and psychosocial adjustment in cerebral palsy. Am J Phys Med Rehabil 96(6):424–429
doi: 10.1097/PHM.0000000000000646
pubmed: 27820729
Thomas E, Hodgson J, Preston-Dunlop V, Preston-Dunlop V, Lahusen S (1993) Rudolf Laban; an introduction to his work and influence. Dance Res J 25(1):41
doi: 10.2307/1478194
Vadivelan K, Sekar P, Sruthi S, Gopichandran V (2020) Burden of caregivers of children with cerebral palsy: an intersectional analysis of gender, poverty, stigma, and public policy. BMC Public Health 20(1):645. https://doi.org/10.1186/s12889-020-08808-0 . PMID: 32384875; PMCID: PMC7206712
doi: 10.1186/s12889-020-08808-0
pubmed: 32384875
pmcid: 7206712
Vaismoradi M, Turunen H, Bondas T (2013) Content analysis and thematic analysis: implications for conducting a qualitative descriptive study. Nurs Health Sci 15(3):398–405
doi: 10.1111/nhs.12048
pubmed: 23480423
Van Naarden Braun K, Doernberg N, Schieve L, Christensen D, Goodman A, Yeargin-Allsopp M (2016) Birth prevalence of cerebral palsy: a population-based study. Pediatrics 137(1):1–9. https://doi.org/10.1542/peds.2015-2872 . Epub 2015 Dec 9. PMID: 26659459; PMCID: PMC4703497
doi: 10.1542/peds.2015-2872
pubmed: 26659459
Wang S, Li J, Cao T, Wang H, Tu P, Li Y (2020) Dance emotion recognition based on Laban motion analysis using convolutional neural network and long short-term memory. IEEE Access 8:124928–124938
doi: 10.1109/ACCESS.2020.3007956
Wright A, Roberts R, Bowman G, Crettenden A (2018) Barriers and facilitators to physical activity participation for children with physical disability: comparing and contrasting the views of children, young people, and their clinicians. Disabil Rehabil 41(13):1499–1507
doi: 10.1080/09638288.2018.1432702
pubmed: 29382235
Zarkou A, Lee S, Prosser L, Jeka J (2020) Foot and ankle somatosensory deficits affect balance and motor function in children with cerebral palsy. Front Hum Neurosci 14(45). https://doi.org/10.3389/fnhum.2020.00045