The Duality of "Goals of Care" Language: A Qualitative Focus Group Study With Frontline Clinicians.


Journal

Journal of pain and symptom management
ISSN: 1873-6513
Titre abrégé: J Pain Symptom Manage
Pays: United States
ID NLM: 8605836

Informations de publication

Date de publication:
12 2023
Historique:
received: 26 05 2023
revised: 07 08 2023
accepted: 07 08 2023
pmc-release: 01 12 2024
medline: 17 11 2023
pubmed: 20 8 2023
entrez: 19 8 2023
Statut: ppublish

Résumé

The phrase "goals of care" (GOC) is common in serious illness care, yet it lacks clarity and consistency. Understanding how GOC is used across healthcare contexts is an opportunity to identify and mitigate root causes of serious illness miscommunication. We sought to characterize frontline palliative and critical care clinicians' understanding and use of the phrase GOC in clinical practice. We conducted a secondary qualitative thematic analysis of focus group transcripts (n = 10), gathered as part of a parent study of care delivery for patients with respiratory failure. Participants (n = 59) were members of the palliative and critical care interprofessional teams at two academic medical centers. Clinicians primarily use GOC as a shorthand signal among team members to indicate a patient is nearing the end of life. This signal can also indicate conflict with patients and families when clinicians' expectations-typically an expected "transition" toward a different type of care-are not met. Clinicians distinguish their clinical use of GOC from an "ideal" meaning of the phrase, which is broader than end of life and focused on patients' values. Palliative care specialists encourage other clinicians to shift toward the "ideal" GOC concept in clinical practice. Frontline palliative and critical care clinicians understand a duality in GOC, as an idealized concept and as an expeditious signal for clinical care. Our findings suggest ambiguous phrases like GOC persist because of unmet needs for better ways to discuss and address diverse and complex priorities for patients with serious illness.

Identifiants

pubmed: 37597589
pii: S0885-3924(23)00635-8
doi: 10.1016/j.jpainsymman.2023.08.014
pmc: PMC10845157
mid: NIHMS1925758
pii:
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural

Langues

eng

Sous-ensembles de citation

IM

Pagination

e658-e665

Subventions

Organisme : NHLBI NIH HHS
ID : K23 HL146890
Pays : United States
Organisme : NHLBI NIH HHS
ID : K23 HL157364
Pays : United States

Informations de copyright

Copyright © 2023 The Authors. Published by Elsevier Inc. All rights reserved.

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Auteurs

Michaella M Reif (MM)

Department of Medicine (M.M.R., M.P.), University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin, USA.

Katharine E Secunda (KE)

Department of Medicine (K.E.S.), Division of Pulmonary, Allergy and Critical Care, University of Pennsylvania, Philadelphia, Pennsylvania, USA.

Justin T Clapp (JT)

Department of Anesthesiology & Critical Care (J.T.C.), University of Pennsylvania, Philadelphia, Pennsylvania, USA.

Elizabeth M Viglianti (EM)

Division of Pulmonary and Critical Care (E.M.V.), University of Michigan, Ann Arbor, Michigan, USA; Veterans Affairs Center for Clinical Management Research (E.M.V.), HSR&D Center for Innovation, Ann Arbor, Michigan, USA.

Ruben Mylvaganam (R)

Division of Pulmonary and Critical Care (R.M.), Northwestern Memorial Hospital, Chicago, Illinois, USA.

Michael Peliska (M)

Department of Medicine (M.M.R., M.P.), University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin, USA.

Jane L Holl (JL)

Department of Neurology, Biological Sciences Division (J.L.H.), University of Chicago, Chicago, Illinois, USA.

Jacqueline M Kruser (JM)

Department of Medicine (J.M.K.), Division of Allergy, Pulmonary and Critical Care, University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin, USA. Electronic address: jkruser@wisc.edu.

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