The impact of clean intermittent catheterization on students and families in the school environment.
education
pediatric
qualitative
school
self-catheterization
urology
Journal
Neurourology and urodynamics
ISSN: 1520-6777
Titre abrégé: Neurourol Urodyn
Pays: United States
ID NLM: 8303326
Informations de publication
Date de publication:
Nov 2023
Nov 2023
Historique:
received:
23
06
2023
accepted:
16
08
2023
medline:
31
10
2023
pubmed:
28
8
2023
entrez:
28
8
2023
Statut:
ppublish
Résumé
Clean intermittent catheterization (CIC) is often used for bladder emptying in children with lower urinary tract dysfunction. Until recently, the emphasis in assessing the effects of CIC has been on preserving kidney function, reducing urinary tract infection, and achieving urinary continence. Few studies have investigated the impact of CIC on students and families in a school setting. This study sought to examine what students and caregivers experienced when CIC was required during the school day and how schools adjusted to a student needing to perform it. A phenomenological approach utilizing semistructured interviews was performed to understand the impact of CIC on students. Purposeful sampling identified eligible families. A guide was developed from expert opinion validated by a pilot sample with feedback collated into a family/provider codesigned questionnaire. Interviews emphasized the impact and challenges students faced at school. Transcripts were coded using Dedoose software with emerging themes identified and a code book was created for closed coding that led to thematic analysis. A total of 40 families (52 caregivers and children > 12 years) were interviewed. Emergent themes included: Caregivers and students felt (1) school personnel were not always aware of nor prepared regarding the implications of CIC; (2) school bathrooms were often less than ideal (e.g., location, size, cleanliness, privacy, and availability); and (3) student participation in extracurricular activities was challenging. This study identifies potential areas of intervention in meeting the needs of students who require CIC and the importance of having collaborative efforts of caregivers, health care providers, and school personnel in addressing and meeting CIC needs. Care coordination that involves consistent communication and careful planning between health care teams, school personnel, students, and caregivers can optimize a student's educational experience.
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
1702-1711Subventions
Organisme : PPSQ Grant 220014
Organisme : PPSQ
ID : 220014
Informations de copyright
© 2023 Wiley Periodicals LLC.
Références
Lapides J, Diokno AC, Silber SJ, Lowe BS. Clean, intermittent self-catheterization in the treatment of urinary tract disease. J Urol. 1972;107(3):458-461. doi:10.1016/s0022-5347(17)61055-3
Mitrofanoff P. [Trans-appendicular continent cystostomy in the management of the neurogenic bladder]. Chir Pediatr. 1980;21(4):297-305.
Farrugia MK, Malone PS. Educational article: the mitrofanoff procedure. J Pediatr Urol. 2010;6(4):330-337. doi:10.1016/j.jpurol.2010.01.015
Filce GH, Lavergne L. Educational needs and accommodations for children with bowel and/or bladder dysfunction. Phy Disabi Edu Rel Ser. 2011;30(1):30-52.
Filce HG, Bishop JB. School experiences of an adolescent with medical complexities involving incontinence. Phy Disabi Edu Rel Ser. 2014;33(2):16-35. doi:10.14434/pders.v33i2.12965
Edwards M, Borzyskowski M, Cox A, Badcock J. Neuropathic bladder and intermittent catheterization: social and psychological impact on children and adolescents. Develop Med Child Neurol. 2004;46(3):168-177. doi:10.1017/s0012162204000301
Wojnar DM, Swanson KM. Phenomenology: an exploration. J Holist Nurs. 2007;25(3):172-180. doi:10.1177/0898010106295172
Palinkas LA, Horwitz SM, Green CA, Wisdom JP, Duan N, Hoagwood K. Purposeful sampling for qualitative data collection and analysis in mixed method implementation research. Adm Policy Ment Health. 2015;42(5):533-544.
Bauer SB, Saunders RA, Masoom SN, et al. The art of introducing clean intermittent catheterization: how families respond and adapt: a qualitative study. Neurourol Urodyn. 2023;42(1):309-321. doi:10.1002/nau.25085
Hayes LC, Saunders RA, Choung K, Masoom SN, Price DE, Bauer SB. Facilitators and challenges to transitioning to self-catheterization: patient and caregiver perspectives. Neurourol. Urodyn. Published online June 2023. doi:10.1002/nau.25223
Turner III DW. Qualitative interview design: A practical guide for novice investigators. Qual. 2010;15(3):754. doi:10.1111/j.13652929.2006.02418
Hughes J, Wood E, Smith G. Exploring kidney patients' experiences of receiving individual peer support: exploring kidney patients' experiences. Health Expect. 2009;12(4):396-406. doi:10.1111/j.1369-7625.2009.00568
Price D, Grant R, Anderson L. “I can't believe everyone here has bladder exstrophy:” one hospital's experience with support group services. Dial Ped Urol. 2016;37(4):5-6.
Lewis P, Klineberg E, Towns S, Moore K, Steinbeck K. The effects of introducing peer support to young people with a chronic illness. J Child Fam Stud. 2016;25(8):2541-2553.