UCRAID (Ukrainian Citizen and refugee electronic support in Respiratory diseases, Allergy, Immunology and Dermatology) action plan.

Ukrainian refugees asthma mHealth rhinitis urticaria

Journal

Allergy
ISSN: 1398-9995
Titre abrégé: Allergy
Pays: Denmark
ID NLM: 7804028

Informations de publication

Date de publication:
Oct 2023
Historique:
revised: 26 07 2023
received: 26 06 2023
accepted: 08 08 2023
pubmed: 29 8 2023
medline: 29 8 2023
entrez: 29 8 2023
Statut: ppublish

Résumé

Eight million Ukrainians have taken refuge in the European Union. Many have asthma and/or allergic rhinitis and/or urticaria, and around 100,000 may have a severe disease. Cultural and language barriers are a major obstacle to appropriate management. Two widely available mHealth apps, MASK-air® (Mobile Airways Sentinel NetworK) for the management of rhinitis and asthma and CRUSE® (Chronic Urticaria Self Evaluation) for patients with chronic spontaneous urticaria, were updated to include Ukrainian versions that make the documented information available to treating physicians in their own language. The Ukrainian patients fill in the questionnaires and daily symptom-medication scores for asthma, rhinitis (MASK-air) or urticaria (CRUSE) in Ukrainian. Then, following the GDPR, patients grant their physician access to the app by scanning a QR code displayed on the physician's computer enabling the physician to read the app contents in his/her own language. This service is available freely. It takes less than a minute to show patient data to the physician in the physician's web browser. UCRAID-developed by ARIA (Allergic Rhinitis and its Impact on Asthma) and UCARE (Urticaria Centers of Reference and Excellence)-is under the auspices of the Ukraine Ministry of Health as well as European (European Academy of Allergy and Clinical immunology, EAACI, European Respiratory Society, ERS, European Society of Dermatologic Research, ESDR) and national societies.

Identifiants

pubmed: 37641384
doi: 10.1111/all.15855
doi:

Types de publication

Journal Article Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

2581-2595

Subventions

Organisme : MASK-air SAS
Organisme : MOXIE

Informations de copyright

© 2023 The Authors. Allergy published by European Academy of Allergy and Clinical Immunology and John Wiley & Sons Ltd.

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Auteurs

Jean Bousquet (J)

Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.
MASK-air, Montpellier, France.

Boleslaw Samolinski (B)

Department of Prevention of Environmental Hazards, Allergology and Immunology, Medical University of Warsaw, Warsaw, Poland.

Igor Kaidashev (I)

Poltava State Medical University, Poltava, Ukraine.

Marcus Maurer (M)

Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.

Nicolas Roche (N)

Pneumologie, AP-HP Centre Université de Paris Cité, Hôpital Cochin, Paris, France.
UMR 1016, Institut Cochin, Paris, France.

Bernardo Sousa-Pinto (B)

MEDCIDS - Department of Community Medicine, Information and Health Decision Sciences, Faculty of Medicine, University of Porto, Porto, Portugal.
CINTESIS@RISE- Health Research Network, Faculty of Medicine, University of Porto, Porto, Portugal.

Andrii Kurchenko (A)

Department of Clinical Immunology and Allergology with section of Medical Genetic, Bogomolets National Medical University, Kiev, Ukraine.

Roman Stepanenko (R)

Department of Dermatology and Venereology with Cosmetology Course, Bogomolets National Medical University, Kiev, Ukraine.

Vladyslav Tsaryk (V)

Department of Clinical Immunology and Allergology with section of Medical Genetic, Bogomolets National Medical University, Kiev, Ukraine.

Ludger Klimek (L)

Department of Otolaryngology, Head and Neck Surgery, Universitätsmedizin Mainz, Mainz, Germany.
Center for Rhinology and Allergology, Wiesbaden, Germany.

Maria Teresa Ventura (MT)

Allergy and Clinical Immunology, University of Bari Medical School, Bari, Italy.
Institute of Sciences of Food Production, National Research Council (ISPA-CNR), Bari, Italy.

Anna Bedbrook (A)

MASK-air, Montpellier, France.
ARIA, Montpellier, France.

Wienczyslawa Czarlewski (W)

MASK-air, Montpellier, France.
Medical Consulting Czarlewski, Levallois, France.

Yuliia Lysanets (Y)

Poltava State Medical University, Poltava, Ukraine.

Maciej Kupczyk (M)

Division of Internal Medicine, Asthma and Allergy, Barlicki University Hospital, Medical University of Lodz, Lodz, Poland.

Łukasz Skolimowski (Ł)

Polish Society of Allergology, Warsaw, Poland.

Marek Kulus (M)

Department of Pediatric Respiratory Diseases and Allergology, Medical University of Warsaw, Warsaw, Poland.

Stefano Del Giacco (S)

Department of Medical Sciences and Public Health and Unit of Allergy and Clinical Immunology, University Hospital 'Duilio Casula', University of Cagliari, Cagliari, Italy.

Markus Ollert (M)

Department of Infection and Immunity, Luxembourg Institute of Health, Esch-sur-Alzette, Luxembourg.
Department of Dermatology and Allergy Centre, Odense University Hospital, Odense, Denmark.
Odense Research Center for Anaphylaxis (ORCA), Odense, Denmark.

Judith Garcia-Aymerich (J)

ISGlobal, Barcelona Institute for Global Health, Barcelona, Spain.
Universitat Pompeu Fabra (UPF), Barcelona, Spain.

Carlos Robalo Cordeiro (C)

Department of Pneumology, Coimbra University Hospital, Faculty of Medicine, Coimbra, Portugal.

Arzu Yorgancioglu (A)

Department of Pulmonary Diseases, Celal Bayar University, Faculty of Medicine, Manisa, Turkey.

Christoph Schlapbach (C)

Bern University Hospital, Bern, Switzerland.

Rita Amaral (R)

MEDCIDS - Department of Community Medicine, Information and Health Decision Sciences, Faculty of Medicine, University of Porto, Porto, Portugal.
CINTESIS@RISE- Health Research Network, Faculty of Medicine, University of Porto, Porto, Portugal.

Cristina Bonaglia (C)

Institute 'Bona Sforza', University for Linguistic Mediators, Bari, Italy.

Isabelle Bossé (I)

Allergist, La Rochelle, France.

Rosalba Buquicchio (R)

Department of Dermatology, Perrino Hospital, Brindisi, Italy.

Demetrios Christou (D)

Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.

Galyna Fedoruk (G)

Department of Clinical Immunology and Allergology with section of Medical Genetic, Bogomolets National Medical University, Kiev, Ukraine.

Pietro Fontanesi (P)

Institute 'Bona Sforza', University for Linguistic Mediators, Bari, Italy.

Bilun Gemicioglu (B)

Department of Pulmonary Diseases, Istanbul University-Cerrahpaşa, Cerrahpaşa Faculty of Medicine, Istanbul, Turkey.

Antonio F M Giuliano (AFM)

Allergy and Clinical Immunology, University of Bari Medical School, Bari, Italy.
Department of Internal Medicine 'A. Murri', University of Bari Medical School, Bari, Italy.

Paolo Lepore (P)

Rotary Club Bari Mediterranean RY23/24, Bari, Italy.

Alla Nakonechna (A)

Clinical Immunology and Allergy Unit, Sheffield Teaching Hospitals, Sheffield, UK.
University of Liverpool, Liverpool, UK.

Sophia Neisinger (S)

Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.

Ana M Pereira (AM)

MEDCIDS - Department of Community Medicine, Information and Health Decision Sciences, Faculty of Medicine, University of Porto, Porto, Portugal.
CINTESIS@RISE- Health Research Network, Faculty of Medicine, University of Porto, Porto, Portugal.

Aiste Ramanauskaite (A)

Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.

Filip Raciborski (F)

Department of Prevention of Environmental Hazards, Allergology and Immunology, Medical University of Warsaw, Warsaw, Poland.

Brigita Sitkauskiene (B)

Department of Immunology and Allergology, Medical Academy, Lithuanian University of Health Sciences, Kaunas, Lithuania.

Oksana Sokhatska (O)

Basic & Clinical Immunology Unit, Department of Pathology, Faculty of Medicine of the University of Porto, Porto, Portugal.

Viktor Stepanenko (V)

Department of Dermatology and Venereology with Cosmetology Course, Bogomolets National Medical University, Kiev, Ukraine.

Katarina Stevanovic (K)

Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.

Orysya Syzon (O)

Department of Dermatology, Venereology, Danylo Halytsky Lviv National Medical University, Lviv, Ukraine.

Violeta Kvedariene (V)

Institute of Clinical Medicine, Clinic of Chest Diseases and Allergology, Faculty of Medicine, Vilnius University, Vilnius, Lithuania.
Department of Pathology, Faculty of Medicine, Institute of Biomedical Sciences, Vilnius University, Vilnius, Lithuania.

Govert de Vries (G)

Peercode BV, Geldermalsen, The Netherlands.

Michiel van Eerd (M)

Peercode BV, Geldermalsen, The Netherlands.

Arunas Valiulis (A)

Interdisciplinary Research Group of Human Ecology, Institute of Clinical Medicine and Institute of Health Sciences, Medical Faculty of Vilnius University, Vilnius, Lithuania.
European Academy of Paediatrics (EAP/UEMS-SP), Brussels, Belgium.

Joao A Fonseca (JA)

MEDCIDS - Department of Community Medicine, Information and Health Decision Sciences, Faculty of Medicine, University of Porto, Porto, Portugal.
CINTESIS@RISE- Health Research Network, Faculty of Medicine, University of Porto, Porto, Portugal.

Josep M Anto (JM)

ISGlobal, Barcelona Institute for Global Health, Barcelona, Spain.
Universitat Pompeu Fabra (UPF), Barcelona, Spain.
CIBER Epidemiología y Salud Pública (CIBERESP), Barcelona, Spain.

Tari Haahtela (T)

Skin and Allergy Hospital, Helsinki University Hospital and University of Helsinki, Helsinki, Finland.

Holger Schünemann (H)

Department of Health Research Methods, Evidence, and Impact & Department of Medicine, McMaster University, Hamilton, Ontario, Canada.

Torsten Zuberbier (T)

Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.

Classifications MeSH