The hidden emotional labour behind ensuring the social value of research: Experiences of frontline health policy and systems researchers based in Kenya during COVID-19.


Journal

PLOS global public health
ISSN: 2767-3375
Titre abrégé: PLOS Glob Public Health
Pays: United States
ID NLM: 9918283779606676

Informations de publication

Date de publication:
2023
Historique:
received: 10 02 2023
accepted: 23 06 2023
medline: 29 8 2023
pubmed: 29 8 2023
entrez: 29 8 2023
Statut: epublish

Résumé

Health policy and systems research (HPSR) is a multi-disciplinary, largely applied field of research aimed at understanding and strengthening the performance of health systems, often with an emphasis on power, policy and equity. The value of embedded and participatory HPSR specifically in facilitating the collection of rich data that is relevant to addressing real-world challenges is increasingly recognised. However, the potential contributions and challenges of HPSR in the context of shocks and crises are not well documented, with a particular gap in the literature being the experiences and coping strategies of the HPSR researchers who are embedded in health systems in resource constrained settings. In this paper, we draw on two sets of group discussions held among a group of approximately 15 HPSR researchers based in Nairobi, Kenya, who were conducting a range of embedded HPSR studies throughout the COVID-19 pandemic. The researchers, including many of the authors, were employed by the KEMRI-Wellcome Trust Research Programme (KWTRP), which is a long-standing multi-disciplinary partnership between the Kenya Medical Research Institute and the Wellcome Trust with a central goal of contributing to national and international health policy and practice. We share our findings in relation to three inter-related themes: 1) Ensuring the continued social value of our HPSR work in the face of changing priorities; 2) Responding to shifting ethical procedures and processes at institutional and national levels; and 3) Protecting our own and front-line colleagues' well-being, including clinical colleagues. Our experiences highlight that in navigating research work and responsibilities to colleagues, patients and participants through the pandemic, many embedded HPSR staff faced difficult emotional and ethical challenges, including heightened forms of moral distress, which may have been better prevented and supported. We draw on our findings and the wider literature to discuss considerations for funders and research leads with an eye to strengthening support for embedded HPSR staff, not only in crises such as the on-going COVID-19 pandemic, but also more generally.

Identifiants

pubmed: 37643165
doi: 10.1371/journal.pgph.0002116
pii: PGPH-D-23-00211
pmc: PMC10464993
doi:

Types de publication

Journal Article

Langues

eng

Pagination

e0002116

Informations de copyright

Copyright: © 2023 Nzinga et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

Déclaration de conflit d'intérêts

The authors have read the journal’s policy and have the following competing interests: JN is a member of the PLOS Editorial Board outside of the submitted work. This does not alter our adherence to PLOS policies on sharing data and materials.

Références

J Gerontol Soc Work. 2020 Aug-Oct;63(6-7):580-584
pubmed: 32501141
Nurs Ethics. 2021 Feb;28(1):23-32
pubmed: 33124492
Arch Dis Child. 2018 Nov;103(11):1013-1019
pubmed: 29514814
Am J Health Syst Pharm. 2018 Feb 1;75(3):147-152
pubmed: 29183877
Health Res Policy Syst. 2018 May 23;16(1):43
pubmed: 29792204
BMJ Open. 2021 Jun 30;11(6):e045123
pubmed: 34193487
BMJ Glob Health. 2021 Jul;6(7):
pubmed: 34285041
Res Theory Nurs Pract. 2004 Spring;18(1):73-93
pubmed: 15083663
Gates Open Res. 2018 Jun 11;2:4
pubmed: 29984356
BMJ Glob Health. 2016 Jun 3;1(1):
pubmed: 28588903
BMJ. 2021 Feb 15;372:m4650
pubmed: 33593963
Soc Sci Med. 2013 Dec;98:361-70
pubmed: 24210881
Disaster Prev Manag. 2020;29(4):445-455
pubmed: 33679011
Health Policy Plan. 2017 Jul 1;32(6):890-910
pubmed: 28335031
Intensive Care Med. 2020 Aug;46(8):1653-1654
pubmed: 32468083
Occup Med (Lond). 2020 Jul 17;70(5):312-314
pubmed: 32428213
BMJ Open. 2022 Jun 1;12(6):e059501
pubmed: 35649617
Wellcome Open Res. 2022 Mar 3;7:75
pubmed: 35855072
BMJ Glob Health. 2021 Apr;6(4):
pubmed: 33858832
Soc Sci Med. 2016 Oct;166:150-159
pubmed: 27566044
Health Res Policy Syst. 2013 Aug 08;11:30
pubmed: 23924162
BMJ Glob Health. 2017 Jun 10;2(2):e000314
pubmed: 29225934
BMJ Glob Health. 2021 Jul;6(7):
pubmed: 34244204
Global Health. 2016 Nov 4;12(1):67
pubmed: 27809862
Am J Nurs. 2016 Jul;116(7):40-9
pubmed: 27294668
Health Res Policy Syst. 2017 Feb 7;15(1):8
pubmed: 28173859
Health Res Policy Syst. 2018 Aug 22;16(1):84
pubmed: 30134979
Wellcome Open Res. 2023 Jan 27;7:48
pubmed: 37636839
BMJ Glob Health. 2021 Aug;6(8):
pubmed: 34353820
Qual Health Res. 2020 Dec;30(14):2192-2204
pubmed: 32865149
Health Policy Plan. 2020 Nov 20;35(9):1231-1236
pubmed: 33020815
Int Health. 2020 Nov 9;12(6):543-550
pubmed: 33165553
J Empir Res Hum Res Ethics. 2019 Dec;14(5):509-512
pubmed: 31092099
Am J Bioeth. 2014;14(2):28-37
pubmed: 24521334
Dev World Bioeth. 2013 Apr;13(1):ii-iv
pubmed: 23521824
Health Policy Plan. 2023 Apr 11;38(4):528-551
pubmed: 36472343
Health Res Policy Syst. 2020 May 11;18(1):44
pubmed: 32393340
Dev World Bioeth. 2016 Dec;16(3):168-177
pubmed: 27699954
Bull World Health Organ. 2017 Feb 1;95(2):87
pubmed: 28250505

Auteurs

Jacinta Nzinga (J)

Health Systems and Research Ethics Department, Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Nairobi, Kenya.

Jacquie Oliwa (J)

Health Systems and Research Ethics Department, Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Nairobi, Kenya.

Dorothy Oluoch (D)

Health Systems and Research Ethics Department, Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Nairobi, Kenya.

Joyline Jepkosgei (J)

Health Systems and Research Ethics Department, Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Nairobi, Kenya.

Daniel Mbuthia (D)

Health Systems and Research Ethics Department, Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Nairobi, Kenya.

Mwanamvua Boga (M)

Health Systems and Research Ethics Department, Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Nairobi, Kenya.

Peris Musitia (P)

Health Systems and Research Ethics Department, Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Nairobi, Kenya.

Muthoni Ogola (M)

Health Systems and Research Ethics Department, Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Nairobi, Kenya.

Naomi Muinga (N)

Health Systems and Research Ethics Department, Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Nairobi, Kenya.

Kui Muraya (K)

Population Council, Nairobi, Kenya.

Alex Hinga (A)

Health Systems and Research Ethics Department, Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Nairobi, Kenya.

Dorcas Kamuya (D)

Health Systems and Research Ethics Department, Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Nairobi, Kenya.
Nuffield Department of Clinical Medicine, Centre for Tropical Medicine and Global Health, University of Oxford, Oxford, United Kingdom.

Maureen Kelley (M)

Nuffield Department of Population Health, Wellcome Centre for Ethics & Humanities, University of Oxford, Oxford, United Kingdom.

Sassy Molyneux (S)

Health Systems and Research Ethics Department, Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Nairobi, Kenya.
Nuffield Department of Clinical Medicine, Centre for Tropical Medicine and Global Health, University of Oxford, Oxford, United Kingdom.

Classifications MeSH