Integrating community voices in the research continuum: Perspectives on a consultation service.

Translational research community advisory board community engagement consultation service research continuum

Journal

Journal of clinical and translational science
ISSN: 2059-8661
Titre abrégé: J Clin Transl Sci
Pays: England
ID NLM: 101689953

Informations de publication

Date de publication:
2023
Historique:
received: 29 12 2022
revised: 21 06 2023
accepted: 13 07 2023
medline: 1 9 2023
pubmed: 1 9 2023
entrez: 1 9 2023
Statut: epublish

Résumé

The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016-2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009-2017) to 114 (2020-2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research.

Identifiants

DOI: 10.1017/cts.2023.600 PMID: 37654776 PMC: PMC10465313
pubmed: 37654776
doi: 10.1017/cts.2023.600
pii: S2059866123006003
pmc: PMC10465313
doi:

Types de publication

Journal Article

Langues

eng

Pagination

e177

Informations de copyright

© The Author(s) 2023.

Déclaration de conflit d'intérêts

The authors have no conflict of interest to declare.

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Auteurs

Crystal D Evans (CD)

Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
ORCID: 0000-0003-3917-166X

Joy P Nanda (JP)

Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.

Pamela Ouyang (P)

Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
The Johns Hopkins University School of Medicine, Baltimore, MD, USA.

Lee Bone (L)

Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
The Johns Hopkins University School of Medicine, Baltimore, MD, USA.
The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.
The Johns Hopkins University School of Nursing, Baltimore, MD, USA.

Samuel Byiringiro (S)

Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
The Johns Hopkins University School of Nursing, Baltimore, MD, USA.
ORCID: 0000-0001-9165-0348

Cyd Lacanienta (C)

Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
ORCID: 0000-0002-3840-0822

Roger Clark (R)

Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.

Christine Weston (C)

Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.

Hae-Ra Han (HR)

Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
The Johns Hopkins University School of Medicine, Baltimore, MD, USA.
The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.
ORCID: 0000-0002-9419-594X

Mia Terkowitz (M)

Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.

Barbara Bates-Hopkins (B)

Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.

Panagis Galiatsatos (P)

Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
The Johns Hopkins University School of Medicine, Baltimore, MD, USA.

Ashley Jingzhi Xu (AJ)

Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
The Johns Hopkins University School of Nursing, Baltimore, MD, USA.

Sarah Stevens (S)

Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.

Cheryl R Himmelfarb (CR)

Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
The Johns Hopkins University School of Medicine, Baltimore, MD, USA.
The Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.
The Johns Hopkins University School of Nursing, Baltimore, MD, USA.

Classifications MeSH