Roadmap to engagement: Bringing patient partners into cancer research and beyond.
Cancer
education
engagement model
patient
team science
Journal
Journal of clinical and translational science
ISSN: 2059-8661
Titre abrégé: J Clin Transl Sci
Pays: England
ID NLM: 101689953
Informations de publication
Date de publication:
2023
2023
Historique:
received:
08
03
2023
revised:
16
07
2023
accepted:
20
07
2023
medline:
1
9
2023
pubmed:
1
9
2023
entrez:
1
9
2023
Statut:
epublish
Résumé
The University of Kansas Cancer Center (KU Cancer Center) initiated an engagement program to leverage the lived experience of individuals and families with cancer. KU Cancer Center faculty, staff, and patient partners built an infrastructure to achieve a patient-designed, patient-led, and research-informed engagement program called Patient and Investigator Voices Organizing Together (PIVOT). This special communication offers an engagement roadmap that can be replicated, scaled, and adopted at other cancer centers and academic health systems. PIVOT demonstrates that collaboration among academic leaders, investigators, and people with a lived experience yields a patient-centered, vibrant environment that enriches the research enterprise.
Identifiants
pubmed: 37654779
doi: 10.1017/cts.2023.602
pii: S2059866123006027
pmc: PMC10465315
doi:
Types de publication
Journal Article
Langues
eng
Pagination
e178Informations de copyright
© The Author(s) 2023.
Déclaration de conflit d'intérêts
The authors have no conflicts of interest to declare.
Références
Cancer Epidemiol Biomarkers Prev. 2018 May;27(5):517-519
pubmed: 29716925
Acad Med. 2015 Dec;90(12):1646-50
pubmed: 26107879
Health Aff (Millwood). 2019 Mar;38(3):359-367
pubmed: 30830822
Value Health. 2017 Mar;20(3):481-486
pubmed: 28292494
Health Res Policy Syst. 2018 Feb 7;16(1):5
pubmed: 29415734
Head Neck. 2019 Apr;41(4):1087-1093
pubmed: 30620439
J Genet Couns. 2020 Aug;29(4):518-529
pubmed: 32291871
J Patient Cent Res Rev. 2017 Jan 31;4(1):39-41
pubmed: 31413969
Qual Life Res. 2015 May;24(5):1069-76
pubmed: 25194573
Nurs Res. 2020 Jul/Aug;69(4):289-298
pubmed: 31977839
Sci Transl Med. 2016 Apr 27;8(336):336ps11
pubmed: 27122611
J Ambul Care Manage. 2012 Apr-Jun;35(2):80-9
pubmed: 22415281
Health Aff (Millwood). 2018 Nov;37(11):1813-1820
pubmed: 30395509
Urol Oncol. 2021 Mar;39(3):193.e13-193.e19
pubmed: 32863122
J Am Board Fam Med. 2013 May-Jun;26(3):254-63
pubmed: 23657693
Cultur Divers Ethnic Minor Psychol. 2019 Jan;25(1):113-122
pubmed: 30714773
Asia Pac J Oncol Nurs. 2019 Jan-Mar;6(1):17-23
pubmed: 30599011
Fam Pract. 2017 Jun 1;34(3):290-295
pubmed: 27660557
JAMA Neurol. 2021 Jan 1;78(1):68-76
pubmed: 32809014
Front Med (Lausanne). 2020 Apr 30;7:134
pubmed: 32426356
Oncol Nurs Forum. 2015 Jan;42(1):15-22
pubmed: 25542317
Patient. 2018 Apr;11(2):193-206
pubmed: 28795338
Health Expect. 2021 Apr;24(2):601-616
pubmed: 33599067
Acad Emerg Med. 2016 Dec;23(12):1368-1379
pubmed: 27561951
BMC Health Serv Res. 2017 Oct 23;17(1):693
pubmed: 29058625
Res Involv Engagem. 2018 May 22;4:17
pubmed: 29796308
BMJ Open. 2018 Jan 30;8(1):e018263
pubmed: 29382676
Qual Life Res. 2015 May;24(5):1057-67
pubmed: 25377348
Med Care. 2018 Oct;56 Suppl 10 Suppl 1:S53-S57
pubmed: 30074952
Implement Sci. 2008 Oct 13;3:44
pubmed: 18851743