Bridge-building between communities: Imagining the future of biomedical autism research.

Humans Autistic Disorder Biomedical Research / ethics Behavior Community-Based Participatory Research

Journal

Cell
ISSN: 1097-4172
Titre abrégé: Cell
Pays: United States
ID NLM: 0413066

Informations de publication

Date de publication:
31 08 2023
Historique:
received: 26 01 2023
revised: 03 08 2023
accepted: 04 08 2023
medline: 4 9 2023
pubmed: 2 9 2023
entrez: 1 9 2023
Statut: ppublish

Résumé

A paradigm shift in research culture is required to ease perceived tensions between autistic people and the biomedical research community. As a group of autistic and non-autistic scientists and stakeholders, we contend that through participatory research, we can reject a deficit-based conceptualization of autism while building a shared vision for a neurodiversity-affirmative biomedical research paradigm.

Identifiants

DOI: 10.1016/j.cell.2023.08.004 PMID: 37657415
pubmed: 37657415
pii: S0092-8674(23)00858-9
doi: 10.1016/j.cell.2023.08.004
pii:
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

3747-3752

Subventions

Organisme : Medical Research Council
ID : MR/K021389/1
Pays : United Kingdom
Organisme : Medical Research Council
ID : MR/T003057/1
Pays : United Kingdom
Organisme : Department of Health
Pays : United Kingdom

Informations de copyright

Copyright © 2023 Elsevier Inc. All rights reserved.

Déclaration de conflit d'intérêts

Declaration of interests In the past three years, T.C. has served as a paid consultant to F. Hoffmann-La Roche Ltd. and Servier and has received royalties from Sage Publications and Guilford Publications. C.C. is a full-time employee of Genentech and owns stocks or RSUs in Roche Holdings, Ltd.

Auteurs

Síofra Heraty (S)

Department of Psychological Sciences, Birkbeck, University of London, London WC1E 7HX, UK. Electronic address: s.heraty@bbk.ac.uk.

Alexandra Lautarescu (A)

Department of Psychology, Institute of Psychiatry, Psychology, and Neuroscience, King's College London, London WC2R 2LS, UK.

David Belton (D)

AIMS-2-Trials A-Reps, University of Cambridge, Cambridge CB2 1TN, UK.

Alison Boyle (A)

AIMS-2-Trials A-Reps, University of Cambridge, Cambridge CB2 1TN, UK.

Pietro Cirrincione (P)

AIMS-2-Trials A-Reps, University of Cambridge, Cambridge CB2 1TN, UK.

Mary Doherty (M)

AIMS-2-Trials A-Reps, University of Cambridge, Cambridge CB2 1TN, UK; Department of Neuroscience, Brighton & Sussex Medical School, Brighton, East Sussex BN1 9PX, UK.

Sarah Douglas (S)

AIMS-2-Trials A-Reps, University of Cambridge, Cambridge CB2 1TN, UK.

Jan Roderik Derk Plas (JRD)

AIMS-2-Trials A-Reps, University of Cambridge, Cambridge CB2 1TN, UK.

Katrien Van Den Bosch (K)

AIMS-2-Trials A-Reps, University of Cambridge, Cambridge CB2 1TN, UK.

Pierre Violland (P)

AIMS-2-Trials A-Reps, University of Cambridge, Cambridge CB2 1TN, UK.

Jerneja Tercon (J)

AIMS-2-Trials A-Reps, University of Cambridge, Cambridge CB2 1TN, UK; Department of Developmental Pediatrics and Early Intervention, Community Health Centre Domzale, Domzale, Slovenia.

Amber Ruigrok (A)

Division of Psychology and Mental Health, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester M13 9PL, UK; Autism Research Centre, Department of Psychiatry, University of Cambridge, Cambridge CB2 8AH, UK.

Declan G M Murphy (DGM)

Department of Forensic and Neurodevelopmental Sciences, Institute of Psychiatry, Psychology, and Neuroscience, King's College London, London SE5 8AF, UK; South London and Maudsley NHS Foundation Trust (SLaM), London SE5 8AZ, UK; Sackler Institute for Translational Neurodevelopment, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London WC2R 2LS, UK.

Thomas Bourgeron (T)

Human Genetics and Cognitive Functions, Institut Pasteur, UMR3571 CNRS, Université Paris Cité, Paris, France.

Christopher Chatham (C)

F. Hoffmann-La Roche Ltd., Grenzacherstrasse 124, 4070 Basel, Switzerland.

Eva Loth (E)

Department of Forensic and Neurodevelopmental Sciences, Institute of Psychiatry, Psychology, and Neuroscience, King's College London, London SE5 8AF, UK.

Bethany Oakley (B)

Department of Forensic and Neurodevelopmental Sciences, Institute of Psychiatry, Psychology, and Neuroscience, King's College London, London SE5 8AF, UK.

Grainne M McAlonan (GM)

Department of Forensic and Neurodevelopmental Sciences, Institute of Psychiatry, Psychology, and Neuroscience, King's College London, London SE5 8AF, UK; South London and Maudsley NHS Foundation Trust (SLaM), London SE5 8AZ, UK; Sackler Institute for Translational Neurodevelopment, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London WC2R 2LS, UK.

Tony Charman (T)

Department of Psychology, Institute of Psychiatry, Psychology, and Neuroscience, King's College London, London WC2R 2LS, UK.

Nicolaas Puts (N)

Department of Forensic and Neurodevelopmental Sciences, Institute of Psychiatry, Psychology, and Neuroscience, King's College London, London SE5 8AF, UK; Sackler Institute for Translational Neurodevelopment, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London WC2R 2LS, UK.

Louise Gallagher (L)

Department of Psychiatry, School of Medicine, Trinity College Dublin, Dublin, Ireland; Child and Youth Mental Health Collaborative, Hospital for Sick Children, Centre for Addiction and Mental Health, Department of Psychiatry, University of Toronto, Toronto M5T 1R8, Canada.

Emily J H Jones (EJH)

Centre for Brain and Cognitive Development, Birkbeck, University of London, London WC1E 7HX, UK.

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Classifications MeSH

questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › Bridge-building between communities: Imagining...
questionsmedicales.fr › Troubles mentaux › Troubles du développement neurologique › Troubles généralisés du développement de l'enfant › Trouble du spectre autistique › Trouble autistique › Bridge-building between communities: Imagining...
questionsmedicales.fr › Disciplines des sciences naturelles › Science › Recherche › Recherche biomédicale › Bridge-building between communities: Imagining...
questionsmedicales.fr › Comportement et mécanismes comportementaux › Comportement › Bridge-building between communities: Imagining...
questionsmedicales.fr › Qualité, accès, évaluation des soins de santé › Recherche sur les services de santé › Recherche participative basée sur la communauté › Bridge-building between communities: Imagining...