Diagnostic delay in axial spondylarthritis: A lost battle?

Axial spondyloarthritis Diagnosis Early referral Healthcare professional education Quality improvement

Journal

Best practice & research. Clinical rheumatology
ISSN: 1532-1770
Titre abrégé: Best Pract Res Clin Rheumatol
Pays: Netherlands
ID NLM: 101121149

Informations de publication

Date de publication:
30 Aug 2023
Historique:
received: 11 07 2023
revised: 08 08 2023
accepted: 18 08 2023
medline: 2 9 2023
pubmed: 2 9 2023
entrez: 1 9 2023
Statut: aheadofprint

Résumé

Diagnostic delay in axial spondylarthritis (axSpA) remains an unacceptable worldwide problem; with evidence suggesting significant detrimental impact both clinically on the individual, and economically on society. There is therefore, a need for global action across various healthcare professions that come into contact with patients living, and suffering, with undiagnosed axSpA. Recent estimates of the median diagnostic delay suggest that globally, individuals with axSpA wait between 2 and 6 years for a diagnosis - revealing a clear benchmark for improvement. This timespan presents a window of opportunity for earlier diagnosis and intervention, which will likely improve patient outcomes. This review describes the current diagnostic delay as estimated across countries and over time, before presenting evidence from published strategies that may be implemented to improve this delay across primary and secondary care, including for specialties treating extra-musculoskeletal manifestations of axSpA (ophthalmology, gastroenterology, dermatology). Ongoing campaigns tackling delayed diagnosis in axSpA are also highlighted.

Identifiants

pubmed: 37658016
pii: S1521-6942(23)00056-6
doi: 10.1016/j.berh.2023.101870
pii:
doi:

Types de publication

Journal Article Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

101870

Informations de copyright

Copyright © 2023 The Authors. Published by Elsevier Ltd.. All rights reserved.

Déclaration de conflit d'intérêts

Declaration of competing interest R.B. declares no competing interests. R.S. reports having received research and/or educational grants from Abbvie, Celgene, Novartis, Lilly, and Consulting/Speaker fees from Abbvie, Biogen, Celltrion, MSD, Novartis, UCB, and Lilly. K.G. reports having received grants and personal fees from AbbVie, Eli Lilly, Novartis, UCB, and grants from Gilead.

Auteurs

Rosemarie Barnett (R)

Department for Health, University of Bath, Claverton Down, Bath, BA2 7AY, UK; Rheumatology Department, Royal National Hospital for Rheumatic Diseases & Brownsword Therapies Centre, Royal United Hospitals Bath NHS Foundation Trust, Combe Park, Bath, BA1 3NG, UK. Electronic address: rlb60@bath.ac.uk.

Karl Gaffney (K)

Rheumatology Department, Norfolk and Norwich University Hospitals NHS Foundation Trust, Norfolk & Norwich, University Hospital, Colney Lane, Norwich NR4 7UY, UK. Electronic address: karl.gaffney@nnuh.nhs.uk.

Raj Sengupta (R)

Rheumatology Department, Royal National Hospital for Rheumatic Diseases & Brownsword Therapies Centre, Royal United Hospitals Bath NHS Foundation Trust, Combe Park, Bath, BA1 3NG, UK. Electronic address: rajsengupta@nhs.net.

Classifications MeSH