Crafting representations of rare disease: collage as qualitative inquiry.
Collage
arts-based research methods
creative methods
rare disease
Journal
Arts & health
ISSN: 1753-3023
Titre abrégé: Arts Health
Pays: England
ID NLM: 101476585
Informations de publication
Date de publication:
11 Sep 2023
11 Sep 2023
Historique:
medline:
11
9
2023
pubmed:
11
9
2023
entrez:
11
9
2023
Statut:
aheadofprint
Résumé
Collage is a modality of expression which involves repurposing and juxtaposing fragments. Our aim was to explore both how and what collage, as an arts-based research method, might contribute to enlivening understandings of the experiences of families affected by rare conditions. During 10 weeks of collaging workshops participants created artistic representations of their experiences. The methodology produced a convivial atmosphere where participants talked openly about everyday challenges. The collages and conversations produced offer a means through which to consider the complex and multiple positions which families affected by rare disease interpolate. Particularly, the collages prompt cross-cutting thematic reflections on motherhood and care, the challenges of being heard, and balancing family life alongside medicalisation. The opportunity to convey topics and feelings through a medium which was both tentatively open yet conceptually complex allowed the broaching of sensitive and elusive themes in a safe, expressive, and non-threatening manner.
Sections du résumé
BACKGROUND
UNASSIGNED
Collage is a modality of expression which involves repurposing and juxtaposing fragments. Our aim was to explore both how and what collage, as an arts-based research method, might contribute to enlivening understandings of the experiences of families affected by rare conditions.
METHODS
UNASSIGNED
During 10 weeks of collaging workshops participants created artistic representations of their experiences. The methodology produced a convivial atmosphere where participants talked openly about everyday challenges.
RESULTS
UNASSIGNED
The collages and conversations produced offer a means through which to consider the complex and multiple positions which families affected by rare disease interpolate. Particularly, the collages prompt cross-cutting thematic reflections on motherhood and care, the challenges of being heard, and balancing family life alongside medicalisation.
CONCLUSIONS
UNASSIGNED
The opportunity to convey topics and feelings through a medium which was both tentatively open yet conceptually complex allowed the broaching of sensitive and elusive themes in a safe, expressive, and non-threatening manner.
Identifiants
pubmed: 37694555
doi: 10.1080/17533015.2023.2254328
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM