Chronic fatigue syndromes: real illnesses that people can recover from.

Chronic fatigue syndrome Chronic illness narrative Long Covid Multidimensional explanations Myalgic encephalomyelitis Patient-centered care Rehabilitation strategies

Journal

Scandinavian journal of primary health care
ISSN: 1502-7724
Titre abrégé: Scand J Prim Health Care
Pays: United States
ID NLM: 8510679

Informations de publication

Date de publication:
Dec 2023
Historique:
medline: 1 12 2023
pubmed: 23 9 2023
entrez: 23 9 2023
Statut: ppublish

Résumé

The 'Oslo Chronic Fatigue Consortium' consists of researchers and clinicians who question the current narrative that chronic fatigue syndromes, including post-covid conditions, are incurable diseases. Instead, we propose an alternative view, based on research, which offers more hope to patients. Whilst we regard the symptoms of these conditions as real, we propose that they are more likely to reflect the brain's response to a range of biological, psychological, and social factors, rather than a specific disease process. Possible causes include persistent activation of the neurobiological stress response, accompanied by associated changes in immunological, hormonal, cognitive and behavioural domains. We further propose that the symptoms are more likely to persist if they are perceived as threatening, and all activities that are perceived to worsen them are avoided. We also question the idea that the best way to cope with the illness is by prolonged rest, social isolation, and sensory deprivation.Instead, we propose that recovery is often possible if patients are helped to adopt a less threatening understanding of their symptoms and are supported in a gradual return to normal activities. Finally, we call for a much more open and constructive dialogue about these conditions. This dialogue should include a wider range of views, including those of patients who have recovered from them.

Identifiants

pubmed: 37740918
doi: 10.1080/02813432.2023.2235609
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

372-376

Auteurs

Tomas Nordheim Alme (TN)

Department of Paediatrics and Adolescent Medicine, Akershus University Hospital, Lørenskog, Norway.

Anna Andreasson (A)

Department of Clinical Epidemiology, Karolinska Institutet, Stockholm, Sweden.

Tarjei Tørre Asprusten (TT)

General Practitioner, Hjelmeland, Norway.

Anne Karen Bakken (AK)

VID Specialized University, Oslo, Norway.
St. Olavs Hospital, Trondheim, Norway.

Michael Bj Beadsworth (MB)

Tropical and infectious Disease Unit, Royal Liverpool University Hospital. Liverpool University Hospitals Foundation Trust, Liverpool, UK.

Birgitte Boye (B)

Department of Behavioral Medicine, University of Oslo, Oslo, Norway.
Unit Psychosomatic medicine and CL psychiatry, Rikshospitalet, Oslo University Hospital, Oslo, Norway.

Per Alf Brodal (PA)

Institute of Basic Medical Sciences, University of Oslo, Oslo, Norway.

Elias Myrstad Brodwall (EM)

Department of Paediatrics and Adolescent Medicine, Akershus University Hospital, Lørenskog, Norway.
Institute of Clinical Medicine, University of Oslo, Oslo, Norway.

Kjetil Gundro Brurberg (KG)

Division for Health Services, Norwegian Institute of Public Health, Oslo, Norway.

Ingrid Bugge (I)

Department of Child and Adolescent Mental Health in Hospitals, Oslo University Hospital, Oslo, Norway.

Trudie Chalder (T)

Department of Psychological Medicine, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, England.

Reidar Due (R)

Department of Paediatrics and Adolescent Medicine, Akershus University Hospital, Lørenskog, Norway.

Hege Randi Eriksen (HR)

Department of Sport, Food and Natural Sciences, Western Norway University of Applied Sciences, Bergen, Norway.

Per Klausen Fink (PK)

Research Clinic for Functional Disorders and Psychosomatics. Aarhus University Hospital, Aarhus, Denmark.

Signe Agnes Flottorp (SA)

Centre for Epidemic Interventions Research, Norwegian Institute of Public Health, Oslo, Norway.
Department of General Practice, University of Oslo, Oslo, Norway.

Egil Andreas Fors (EA)

Faculty of Medicine and Health Sciences, Department of Public Health and Nursing, General Practitioner Research Unit, Norwegian University of Science and Technology (NTNU), Trondheim, Norway.

Bård Fossli Jensen (BF)

Nydalen Helsehus, Oslo, Norway.

Hans Petter Fundingsrud (HP)

The Child & Adolescent Health Services, University Hospital of North Norway, Tromsø, Norway.

Paul Garner (P)

Department of Clinical Sciences, Liverpool School of Tropical Medicine, Liverpool, England.

Lise Beier Havdal (LB)

Department of Paediatrics and Adolescent Medicine, Akershus University Hospital, Lørenskog, Norway.

Helene Helgeland (H)

National Advisory Unit on Psychosomatic Disorders in Children and Adolescents. Department of Child and Adolescent Mental Health in Hospitals, Oslo University Hospital, Oslo, Norway.

Henrik Børsting Jacobsen (HB)

Department of Pain management and research, Oslo University Hospital, Oslo, Norway.
The Mind Body Lab, Department of Psychology, University of Oslo.

Georg Espolin Johnson (GE)

University of Oslo, Oslo, Norway.

Martin Jonsjö (M)

Department of Behavior Medicine, Karolinskal University Hospital, Stockholm, Sweden.
Department of Clinical Neuroscience, Karolinska Institutet Stockholm, Sweden.

Hans Knoop (H)

Department of Medical Psychology, Amsterdam University Medical Centres, Location University of Amsterdam, Amsterdam, The Netherlands.

Live Landmark (L)

Department of Psychology, NTNU, Trondheim, Norway.
The Mind Body Lab, Department of Psychology, University of Oslo.

Gunvor Launes (G)

University of Bergen, Bergen, Norway.

Mats Lekander (M)

Stress Research Institute, Department of psychology, Stockholm University, Division of Psychology/Osher Center for Integrative Health, Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden.

Hannah Linnros (H)

Department of Health, Medicine, and Caring Sciences Pain and Rehabilitation Center, Linköping University Hospital, Linköping, Sweden.

Elin Lindsäter (E)

Center for Psychiatry Research, Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden.

Helena Liira (H)

Helsinki University Hospital, Helsinki, Finland.

Lina Linnestad (L)

Saglia medical center, Vestby, Norway.

Jon Håvard Loge (JH)

Department of Behavioral Medicine, University of Oslo, Oslo, Norway.

Peter Solvoll Lyby (PS)

CatoSenteret Rehabilitation Center, Son, Norway.

Sadaf Malik (S)

Department of Paediatrics and Adolescent Medicine, Akershus University Hospital, Lørenskog, Norway.

Ulrik Fredrik Malt (UF)

Division of Clinical Neuroscience. Institute of Clinical Medicine, University of Oslo, Oslo, Norway.

Trygve Moe (T)

Chief Physician, Falck Norge, Oslo, Norway.

Anna-Karin Norlin (AK)

Department of Health, Medicine, and Caring Sciences Pain and Rehabilitation Center, Linköping University Hospital, Linköping, Sweden.

Maria Pedersen (M)

Department of Paediatrics and Adolescent Medicine, Akershus University Hospital, Lørenskog, Norway.
Institute of Clinical Medicine, University of Oslo, Oslo, Norway.

Siv Elin Pignatiello (SE)

Unit Psychosomatic medicine and CL psychiatry, Rikshospitalet, Oslo University Hospital, Oslo, Norway.

Charlotte Ulrikka Rask (CU)

Department of Child and Adolescent Psychiatry, Aarhus University Hospital, Aarhus, Denmark.

Silje Endresen Reme (SE)

Department of Pain management and research, Oslo University Hospital, Oslo, Norway.
The Mind Body Lab, Department of Psychology, University of Oslo.

Gisle Roksund (G)

General Practitioner, Klosterhagen Legesenter, Norway.

Markku Sainio (M)

Outpatient Clinic for Functional Disorders, Helsinki University Hospital, Helsinki, Finland.

Michael Sharpe (M)

Psychological Medicine, University of Oxford, Oxford, UK.

Ruth Foseide Thorkildsen (RF)

Department of Medicine, Diakonhjemmet Hospital, Oslo, Norway.

Betty van Roy (B)

Department of Paediatrics and Adolescent Medicine, Akershus University Hospital, Lørenskog, Norway.

Per Olav Vandvik (PO)

Department of Medicine, Lovisenberg Diaconal Hospital, Oslo, Norway.

Henrik Vogt (H)

Department of Community Medicine and Global Health, Institute for Health and Society, Faculty of Medicine, University of Oslo, Oslo, Norway.

Hedda Bratholm Wyller (HB)

Clinical Psychologist, Oslo, Norway.

Vegard Bruun Bratholm Wyller (VBB)

Department of Paediatrics and Adolescent Medicine, Akershus University Hospital, Lørenskog, Norway.
Institute of Clinical Medicine, University of Oslo, Oslo, Norway.

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