We Have to Really Decide: The Childbearing Decisions of Women With Congenital Heart Disease.

Journal

The Journal of cardiovascular nursing

ISSN: 1550-5049

Titre abrégé: J Cardiovasc Nurs

Pays: United States

ID NLM: 8703516

Informations de publication

Date de publication:
25 Sep 2023

Historique:

medline: 25 9 2023

pubmed: 25 9 2023

entrez: 25 9 2023

Statut: aheadofprint

Résumé

Medical management and surgical improvement techniques permit persons with congenital heart conditions to live longer. Adults with congenital heart disease (CHD) have more childbearing options than previously available to them. However, there is an increased childbearing risk associated with certain types of CHD. Minimal investigation has been given to the childbearing decision-making experiences and adaptation of women with CHD. The aim of this study was to gain insight into the childbearing decision-making and adaptation experiences of women with CHD. Using a narrative inquiry approach, 17 adult women with CHD of any severity, of childbearing age, who had, within the last 5 years, made a decision regarding childbearing, were interviewed. In this study, we applied the key components of the Roy Adaptation Model to understand childbearing decision-making experiences and their adaptation. Data were analyzed using thematic analysis. Data analysis revealed 5 stages of childbearing decision making: (1) prologue: stimulus to consider childbearing; (2) exploring childbearing options; (3) considering childbearing options; (4) choosing to bear or not to bear a child; and (5) epilogue: adapting to the childbearing decision. Adaptation occurred in the areas of self-concept (ie, emotional adaptation), role function (ie, relational adaptation), and interdependence (ie, interactional adaptation). Childbearing decision making is a complex personal decision that is carefully and deliberately made. Women with CHD long for children and seek childbearing information from various resources and may experience grief regarding the inability to bear children. A greater understanding of childbearing decision making can be useful in addressing women's childbearing emotions and assist with adaptation to childbearing needs.

Sections du résumé

BACKGROUND BACKGROUND

OBJECTIVE OBJECTIVE

The aim of this study was to gain insight into the childbearing decision-making and adaptation experiences of women with CHD.

METHODS METHODS

Using a narrative inquiry approach, 17 adult women with CHD of any severity, of childbearing age, who had, within the last 5 years, made a decision regarding childbearing, were interviewed. In this study, we applied the key components of the Roy Adaptation Model to understand childbearing decision-making experiences and their adaptation. Data were analyzed using thematic analysis.

RESULTS RESULTS

Data analysis revealed 5 stages of childbearing decision making: (1) prologue: stimulus to consider childbearing; (2) exploring childbearing options; (3) considering childbearing options; (4) choosing to bear or not to bear a child; and (5) epilogue: adapting to the childbearing decision. Adaptation occurred in the areas of self-concept (ie, emotional adaptation), role function (ie, relational adaptation), and interdependence (ie, interactional adaptation).

CONCLUSION CONCLUSIONS

Childbearing decision making is a complex personal decision that is carefully and deliberately made. Women with CHD long for children and seek childbearing information from various resources and may experience grief regarding the inability to bear children. A greater understanding of childbearing decision making can be useful in addressing women's childbearing emotions and assist with adaptation to childbearing needs.

Identifiants

DOI: 10.1097/JCN.0000000000001046 PMID: 37747321

pubmed: 37747321

doi: 10.1097/JCN.0000000000001046

pii: 00005082-990000000-00131

doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

Informations de copyright

Déclaration de conflit d'intérêts

The authors have no conflicts of interest to disclose.

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