We need to talk about values: a proposed framework for the articulation of normative reasoning in health technology assessment.

ethics healthcare priority-setting moral values practical public reasoning social values

Journal

Health economics, policy, and law
ISSN: 1744-134X
Titre abrégé: Health Econ Policy Law
Pays: England
ID NLM: 101247224

Informations de publication

Date de publication:
27 Sep 2023
Historique:
medline: 27 9 2023
pubmed: 27 9 2023
entrez: 27 9 2023
Statut: aheadofprint

Résumé

It is acknowledged that health technology assessment (HTA) is an inherently value-based activity that makes use of normative reasoning alongside empirical evidence. But the language used to conceptualise and articulate HTA's normative aspects is demonstrably unnuanced, imprecise, and inconsistently employed, undermining transparency and preventing proper scrutiny of the rationales on which decisions are based. This paper - developed through a cross-disciplinary collaboration of 24 researchers with expertise in healthcare priority-setting - seeks to address this problem by offering a clear definition of key terms and distinguishing between the types of normative commitment invoked during HTA, thus providing a novel conceptual framework for the articulation of reasoning. Through application to a hypothetical case, it is illustrated how this framework can operate as a practical tool through which HTA practitioners and policymakers can enhance the transparency and coherence of their decision-making, while enabling others to hold them more easily to account. The framework is offered as a starting point for further discussion amongst those with a desire to enhance the legitimacy and fairness of HTA by facilitating practical public reasoning, in which decisions are made on behalf of the public, in public view, through a chain of reasoning that withstands ethical scrutiny.

Identifiants

pubmed: 37752732
doi: 10.1017/S1744133123000038
pii: S1744133123000038
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

1-21

Subventions

Organisme : Wellcome Trust
ID : 203351/Z/16/Z
Pays : United Kingdom

Auteurs

Victoria Charlton (V)

Department of Global Health and Social Medicine, King's College London, London, UK.

Michael DiStefano (M)

Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, USA.

Polly Mitchell (P)

School of Education, Communication and Society, King's College London, London, UK.

Liz Morrell (L)

Health Economics Research Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK.

Leah Rand (L)

Program on Regulation, Therapeutics and Law, Division of Pharmacoepidemiology and Pharmacoeconomics, Brigham and Women's Hospital and Center for Bioethics, Harvard Medical School, Boston, MA, USA.

Gabriele Badano (G)

Department of Politics, University of York, York, UK.

Rachel Baker (R)

Yunus Centre for Social Business and Health, Glasgow Caledonian University, Glasgow, Scotland, UK.

Michael Calnan (M)

School of Social Policy, Sociology and Social Research, University of Kent, Canterbury, UK.

Kalipso Chalkidou (K)

Centre for Global Development, London, UK.

Anthony Culyer (A)

Centre for Health Economics, University of York, York, UK.

Daniel Howdon (D)

Academic Unit of Health Economics, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK.

Dyfrig Hughes (D)

Centre for Health Economics and Medicines Evaluation, School of Medical and Health Sciences, Bangor University, Bangor, UK.

James Lomas (J)

Centre for Health Economics, University of York, York, UK.

Catherine Max (C)

Catherine Max Consulting, London, UK.

Christopher McCabe (C)

Centre for Public Health and Queens Management School, Queens University Belfast, Belfast, UK.

James F O'Mahony (JF)

Centre for Health Policy and Management, Trinity College Dublin, Dublin, Ireland.

Mike Paulden (M)

School of Public Health, University of Alberta, Edmonton, Canada.

Zack Pemberton-Whiteley (Z)

Leukaemia Care, Worcester, UK.

Annette Rid (A)

Department of Bioethics, The Clinical Center, National Institutes of Health, Bethesda, MD, USA.

Paul Scuffham (P)

Centre for Applied Health Economics, Menzies Health Institute Queensland, Griffith University, Gold Coast, Australia.

Mark Sculpher (M)

Centre for Health Economics, University of York, York, UK.

Koonal Shah (K)

Science Policy and Research Programme, National Institute for Health and Care Excellence, London, UK.

Albert Weale (A)

School of Public Policy, University College London, London, UK.

Gry Wester (G)

VMLY&R Health, London, UK.

Classifications MeSH