"I Just Want You to Hear That Term": Characterizing Language Used in Fetal Cardiology Consultations.
communication
congenital heart disease
prenatal diagnosis
Journal
Journal of cardiovascular development and disease
ISSN: 2308-3425
Titre abrégé: J Cardiovasc Dev Dis
Pays: Switzerland
ID NLM: 101651414
Informations de publication
Date de publication:
13 Sep 2023
13 Sep 2023
Historique:
received:
10
08
2023
revised:
05
09
2023
accepted:
07
09
2023
medline:
27
9
2023
pubmed:
27
9
2023
entrez:
27
9
2023
Statut:
epublish
Résumé
The way clinicians communicate with parents during pregnancy about congenital heart disease (CHD) can significantly influence parental understanding of and psychological response to the diagnosis. A necessary first step to improving communication used in fetal cardiology consultations is to understand and describe the language currently used, which this paper aims to do. Nineteen initial fetal cardiology consultations with parents were audio-recorded, transcribed verbatim, and coded by two independent coders. A codebook was inductively developed and applied to all transcripts. The finalized coding was used to characterize fetal cardiologists' language. We identified four discourse styles employed in fetal cardiology consultations: small talk, medical, plain, and person-centered. Plain language was used to define and emphasize the meaning of medical language. Person-centered language was used to emphasize the baby as a whole person. Each consultation included all four discourse styles, with plain and medical used most frequently. Person-centered was used less frequently and mostly occurred near the end of the encounters; whether this is the ideal balance of discourse styles is unknown. Clinicians also used person-centered language (as opposed to disease-centered language), which is recommended by medical societies. Future studies should investigate the ideal balance of discourse styles and the effects of clinician discourse styles on family outcomes, including parents' decision-making, psychological adjustment, and quality of life.
Identifiants
pubmed: 37754823
pii: jcdd10090394
doi: 10.3390/jcdd10090394
pmc: PMC10531623
pii:
doi:
Types de publication
Journal Article
Langues
eng
Subventions
Organisme : NHLBI NIH HHS
ID : R38 HL143619
Pays : United States
Organisme : HRSA HHS
ID : T32 HP22240
Pays : United States
Références
Pediatr Cardiol. 2014 Feb;35(2):239-52
pubmed: 23925415
Circulation. 2014 May 27;129(21):2183-242
pubmed: 24763516
Pediatrics. 2008 Aug;122(2):243-9
pubmed: 18676539
J Clin Med. 2022 Jan 05;11(1):
pubmed: 35012018
Int J Obes (Lond). 2013 Apr;37(4):612-9
pubmed: 22777543
Perm J. 2007 Winter;11(1):19-29
pubmed: 21472050
Ann R Coll Surg Engl. 2011 Jul;93(5):401-4
pubmed: 21943466
Prenat Diagn. 2004 Dec 30;24(13):1136-42
pubmed: 15614846
Congenit Heart Dis. 2013 Jan-Feb;8(1):78-85
pubmed: 22891764
Patient Educ Couns. 2009 Mar;74(3):295-301
pubmed: 19150199
Pediatr Crit Care Med. 2018 Jul;19(7):626-634
pubmed: 29533356
Pediatr Cardiol. 2022 Oct;43(7):1548-1558
pubmed: 35380215
J Adv Nurs. 2008 Oct;64(2):185-94
pubmed: 18990100
Health Expect. 2020 Oct;23(5):1224-1230
pubmed: 32671929
Fam Pract. 2003 Jun;20(3):248-53
pubmed: 12738692
Semin Perinatol. 2022 Jun;46(4):151587
pubmed: 35461701
BMJ. 1991 Nov 30;303(6814):1385-7
pubmed: 1760608
Health Commun. 2020 Sep;35(10):1248-1255
pubmed: 31155962
J Public Health Policy. 2007;28(1):71-93
pubmed: 17363939
Ultrasound Obstet Gynecol. 2004 Jan;23(1):56-62
pubmed: 14971001
Clin Perinatol. 2003 Mar;30(1):17-25
pubmed: 12696783
Cardiol Young. 2008 Dec;18 Suppl 2:70-80
pubmed: 19063777
J Am Psychoanal Assoc. 2022 Oct;70(5):829-844
pubmed: 36314514
Autism Adulthood. 2021 Mar 1;3(1):18-29
pubmed: 36601265
Am J Med Genet A. 2014 Jun;164A(6):1496-502
pubmed: 24706543
JAMA Netw Open. 2022 Nov 1;5(11):e2242972
pubmed: 36449293
Chest. 2013 Mar;143(3):672-677
pubmed: 22814873
JAMA Netw Open. 2020 May 1;3(5):e204082
pubmed: 32369178
J Autism Dev Disord. 2023 Feb;53(2):677-687
pubmed: 32112234
Nurs Child Young People. 2018 Nov 8;30(6):19-25
pubmed: 30358337
Am Fam Physician. 2017 Jan 1;95(1):29-34
pubmed: 28075109
PLoS One. 2019 Jul 24;14(7):e0220136
pubmed: 31339956