SIGnature Libraries: A roadmap for the formation of special interest group libraries.

cerebral palsy developmental disability education library systematic review

Journal

Annals of the Child Neurology Society
ISSN: 2831-3267
Titre abrégé: Ann Child Neurol Soc
Pays: United States
ID NLM: 9918523088806676

Informations de publication

Date de publication:
Sep 2023
Historique:
medline: 5 10 2023
pubmed: 5 10 2023
entrez: 5 10 2023
Statut: ppublish

Résumé

"SIGnature Libraries" channel the dynamism of academic society-based special interest groups (SIG) to systematically identify and provide user-oriented access to essential literature for a subspecialty field in a manner that keeps pace with the field's continuing evolution. The libraries include literature beyond clinical trial data to encompass historical context, diagnostic conceptualization, and community organization materials to foster a holistic understanding of how neurologic conditions affect individuals, their community, and their lived experience. Utilizing a modified-Delphi approach, Child Neurology Society's Cerebral Palsy (CP) SIG ( Seventy-nine articles were submitted for the first Delphi round and 22 articles for the second Delphi round. Survey response rates among SIG members were 29/75 for the first round and 24/75 for the second round. The advisory board added additional articles in the final review process in view of the overall project goal. A total of 60 articles were included in the final library, and articles were divided into seven sections and stratified by rating scores. A process for ongoing revisions of the library was determined. The library will be published on the Child Neurology Society website and made publicly accessible. The CP SIGnature Library offers learners an unprecedented resource that provides equitable access to latest consensus guidelines, existing seminal datasets, up-to-date review articles, and other patient care tools. A distinctive feature of the library is its intentional large scope and depth, presented in a stratified fashion relative to the consensus-determined importance of each article. Learners can efficiently navigate the library based on individual interests and goals, and the library can be used as core curriculum for CP education.

Identifiants

pubmed: 37795255
doi: 10.1002/cns3.20021
pmc: PMC10550070
mid: NIHMS1902114
doi:

Types de publication

Journal Article

Langues

eng

Pagination

218-227

Subventions

Organisme : NICHD NIH HHS
ID : P50 HD103538
Pays : United States
Organisme : NICHD NIH HHS
ID : T32 HD069038
Pays : United States

Déclaration de conflit d'intérêts

Conflict of Interest Drs. Kim, Chin, Fahey, Gelineau-Morel, Himmelmann, O’Malley, Oskoui, Shapiro, Shevell, Wilson, and Wiznitzer have no conflicts to report. Dr. Aravamuthan serves on the editorial board of Pediatric Neurology and Neurology; receives funding from the National Institute of Neurological Disorders and Stroke, Pediatric Epilepsy Research Foundation, and St. Louis Children’s Hospital Foundation; serves as consultant for Neurocrine Biosciences; receives royalties from UpToDate; and has an immediate family member on the Speaker’s Bureau for SK Life Science.

Références

BMJ. 1996 Jan 13;312(7023):71-2
pubmed: 8555924
Neurology. 2010 Jan 26;74(4):336-43
pubmed: 20101040
Dev Med Child Neurol. 2018 Sep;60(9):861-865
pubmed: 29882358
Mov Disord. 2010 Aug 15;25(11):1538-49
pubmed: 20589866
J Child Neurol. 2022 Mar;37(3):194-201
pubmed: 35037781
Pediatrics. 2006 Nov;118(5):2159-67
pubmed: 17079590
Dev Med Child Neurol. 2017 Nov;59(11):1130-1138
pubmed: 28574172
Dev Med Child Neurol. 2020 Jan;62(1):89-96
pubmed: 31025318
Med Teach. 2015 Feb;37(2):108-24
pubmed: 25314376
Neurology. 2020 Nov 24;95(21):962-972
pubmed: 33046609
Curr Neurol Neurosci Rep. 2020 Feb 21;20(2):3
pubmed: 32086598
J Med Libr Assoc. 2005 Oct;93(4):499-501
pubmed: 16239948

Auteurs

Young-Min Kim (YM)

Department of Neurology and Pediatrics, Loma Linda University, Loma Linda, California, USA.

Eric M Chin (EM)

Department of Neurology and Pediatrics, Phelps Center for Cerebral Palsy and Neurodevelopmental Medicine, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.

Michael Fahey (M)

Department of Paediatrics, Monash University, Monash, Australia.

Rose Gelineau-Morel (R)

Division of Neurology, Children's Mercy Hospital, University of Missouri-Kansas City, Kansas City, Missouri, USA.

Kate Himmelmann (K)

Department of Pediatrics, Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.

Jennifer O'Malley (J)

Department of Neurology, Stanford University School of Medicine, Palo Alto, California, USA.

Maryam Oskoui (M)

Department of Pediatrics, Department of Neurology & Neurosurgery, Centre for Outcomes Research and Evaluation, McGill University Health Center Research Institute, Faculty of Medicine, McGill University, Montreal, Quebec, Canada.

Bruce Shapiro (B)

Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Emeritus Vice President, Training, Kennedy Krieger Institute, Baltimore, Maryland, USA.

Michael Shevell (M)

Departments of Pediatrics & Neurology/Neurosurgery, McGill University, Montreal, Canada.
Division of Pediatric Neurology, Montreal Children's Hospital, Montreal, Canada.

Jenny L Wilson (JL)

Division of Pediatric Neurology, Oregon Health & Science University, Portland, Oregon, USA.

Max Wiznitzer (M)

Department of Neurology, Case Western Reserve University School of Medicine, Rainbow Babies & Children's Hospital, Cleveland, Ohio, USA.

Bhooma Aravamuthan (B)

Department of Neurology and Pediatrics, Washington University School of Medicine, St. Louis, Missouri, USA.

Classifications MeSH