Transition of care in inborn errors of immunity.
Journal
Current opinion in allergy and clinical immunology
ISSN: 1473-6322
Titre abrégé: Curr Opin Allergy Clin Immunol
Pays: United States
ID NLM: 100936359
Informations de publication
Date de publication:
01 12 2023
01 12 2023
Historique:
medline:
2
11
2023
pubmed:
5
10
2023
entrez:
5
10
2023
Statut:
ppublish
Résumé
This review outlines the principles of transition, summarizes current information about transition practices in inborn errors of immunity (IEI) and highlights general and specific considerations for transition of patients with these conditions. Recent surveys demonstrate the variability in access to and transition practices in IEI. Key challenges of transition in IEI from the perspective of healthcare professionals include lack of adult subspecialists, lack of access to holistic care and fragmentation of adult services. Limited research focused on IEI patient and carer perspectives highlight information gaps, poor coordination and difficulty adapting to adult healthcare structures as important challenges for smooth transition. Local policies and practices for transition in IEI are highly variable with limited assessment of outcomes or patient experience. There is a need for IEI-focused transition research and for development of national and international consensus statements to guide improved transition in IEI.
Identifiants
pubmed: 37797181
doi: 10.1097/ACI.0000000000000948
pii: 00130832-990000000-00088
pmc: PMC10621636
doi:
Types de publication
Review
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
455-460Informations de copyright
Copyright © 2023 The Author(s). Published by Wolters Kluwer Health, Inc.
Références
Acad Pediatr. 2014 Jul-Aug;14(4):415-22
pubmed: 24976354
J Clin Immunol. 2023 Jan;43(1):206-216
pubmed: 36222999
Lupus. 2016 Nov;25(13):1431-1439
pubmed: 27013665
J Pediatr Gastroenterol Nutr. 2022 Feb 1;74(2):208-214
pubmed: 34694262
BMC Pediatr. 2016 Jul 26;16:109
pubmed: 27457719
J Adolesc Health. 1993 Nov;14(7):570-6
pubmed: 8312295
Gastroenterol Clin North Am. 2023 Sep;52(3):629-644
pubmed: 37543405
Arch Dis Child. 2011 Jun;96(6):548-53
pubmed: 21388969
J Pediatr Nurs. 2021 Jul-Aug;59:188-195
pubmed: 34020387
Ann Rheum Dis. 2016 Apr;76(4):639-646
pubmed: 27802961
J Pediatr. 2013 Dec;163(6):1628-33
pubmed: 23993138
Front Immunol. 2023 Jul 31;14:1211524
pubmed: 37600793
J Clin Immunol. 2022 Oct;42(7):1508-1520
pubmed: 36198931
J Adolesc Health. 2017 Dec;61(6):716-721
pubmed: 28947348
JAMA Psychiatry. 2015 Apr;72(4):377-85
pubmed: 25715178
J Clin Immunol. 2023 Apr;43(3):595-603
pubmed: 36454452
J Am Acad Child Adolesc Psychiatry. 2009 Nov;48(11):1060-1068
pubmed: 19797984
Allergy. 2020 Nov;75(11):2734-2752
pubmed: 32558994
Arch Dis Child Educ Pract Ed. 2015 Dec;100(6):313-20
pubmed: 26063244
Pediatrics. 2005 Jan;115(1):112-20
pubmed: 15629990
J Allergy Clin Immunol. 2020 Nov;146(5):967-983
pubmed: 32827505
J Pediatr Psychol. 2018 Jun 1;43(5):488-502
pubmed: 29190360
J Adolesc Health. 2015 Aug;57(2):212-7
pubmed: 26206442
Front Immunol. 2023 Jul 13;14:1209315
pubmed: 37529038
J Clin Immunol. 2017 Jul;37(5):452-460
pubmed: 28523402
Front Immunol. 2021 Nov 18;12:780140
pubmed: 34868053
J Clin Immunol. 2022 Oct;42(7):1473-1507
pubmed: 35748970
Front Pediatr. 2020 Oct 23;8:570084
pubmed: 33194896
Pediatr Nephrol. 2015 Apr;30(4):567-76
pubmed: 24890339