Trends in dedicated care for females with bleeding disorders within U.S. hemophilia treatment centers.


Journal

American journal of hematology
ISSN: 1096-8652
Titre abrégé: Am J Hematol
Pays: United States
ID NLM: 7610369

Informations de publication

Date de publication:
Dec 2023
Historique:
revised: 08 09 2023
received: 05 07 2023
accepted: 19 09 2023
pubmed: 6 10 2023
medline: 6 10 2023
entrez: 6 10 2023
Statut: ppublish

Résumé

Graphical representation of increasing percentage of female patients seen at HTCs, percentage of females by diagnosis, number of clinics in existence, and absolute number of female patients seen over a 10-year period (top left then clockwise).

Identifiants

pubmed: 37800397
doi: 10.1002/ajh.27115
doi:

Types de publication

Letter

Langues

eng

Sous-ensembles de citation

IM

Pagination

E399-E402

Informations de copyright

© 2023 Wiley Periodicals LLC.

Références

Merskey C. The occurrence of haemophilia in the human female. Q J Med. 1951;20(79):299-312.
Weyand AC, James PD. Sexism in the management of bleeding disorders. Res Pract Thromb Haemost. 2020;5(1):51-54.
Connell NT, Flood VH, Brignardello-Petersen R, et al. ASH ISTH NHF WFH 2021 guidelines on the management of von Willebrand disease. Blood Adv. 2021;5(1):301-325.
Miller CH, Soucie JM, Byams VR, et al. Women and girls with haemophilia receiving care at specialized haemophilia treatment centres in the United States. Haemophilia. 2021;27(6):1037-1044.
Baldwin MK, Ahmadzia HK, Bartlett DL, et al. Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research to advance the health of people with inherited bleeding disorders with the potential to menstruate. Expert Rev Hematol. 2023;16(sup1):71-86.
Committee on Practice B-G. Practice bulletin no. 128: diagnosis of abnormal uterine bleeding in reproductive-aged women. Obstet Gynecol. 2012;120(1):197-206.

Auteurs

Allison P Wheeler (AP)

Department of Pathology, Microbiology and Immunology, Vanderbilt University Medical Center, Nashville, Tennessee, USA.

Ming Y Lim (MY)

Division of Hematology and Hematologic Malignancies, Department of Internal Medicine, University of Utah, Salt Lake City, Utah, USA.

Patricia S Huguelet (PS)

Department of Obstetrics and Gynecology, Section of Pediatric and Adolescent Gynecology, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.

Julie Jaffray (J)

Division of Hematology/Oncology, Rady Children's Hospital, San Diego, California, USA.

Janice M Staber (JM)

Department of Pediatrics, The University of Iowa Stead Family Children's Hospital, Iowa City, Iowa, USA.

Kerry Funkhouser (K)

Foundation for Women & Girls with Blood Disorders, Montclair, New Jersey, USA.

Shannon L Carpenter (SL)

Division of Pediatric Hematology/Oncology/BMT, Children's Mercy Hospital, Kansas City, Missouri, USA.

Angela C Weyand (AC)

Department of Pediatrics, University of Michigan Medical School, Ann Arbor, Michigan, USA.

Classifications MeSH