Expert opinions on informational and supportive needs and sources of obtaining information in patients with inflammatory bowel disease: a Delphi consensus study.
Delphi technique
consumer health information
inflammatory bowel diseases
information seeking behavior
informational need
needs assessment
psychosocial need
supportive needs
Journal
Frontiers in psychology
ISSN: 1664-1078
Titre abrégé: Front Psychol
Pays: Switzerland
ID NLM: 101550902
Informations de publication
Date de publication:
2023
2023
Historique:
received:
17
05
2023
accepted:
23
08
2023
medline:
9
10
2023
pubmed:
9
10
2023
entrez:
9
10
2023
Statut:
epublish
Résumé
The present study introduces informational and supportive needs and sources of obtaining information in patients with inflammatory bowel disease (IBD) through a three-round Expert Delphi Consensus Opinions method. According to our previous scoping review, important items in the area of informational and supportive needs and sources of obtaining information were elucidated. After omitting duplicates, 56 items in informational needs, 36 items in supportive needs, and 36 items in sources of obtaining information were retrieved. Both open- and close-ended questions were designed for each category in the form of three questionnaires. The questionnaires were sent to selected experts from different specialties. Experts responded to the questions in the first round. Based on the feedback, questions were modified and sent back to the experts in the second round. This procedure was repeated up to the third round. In the first round, five items from informational needs, one item from supportive needs, and seven items from sources of obtaining information were identified as unimportant and omitted. Moreover, two extra items were proposed by the experts, which were added to the informational needs category. In the second round, seven, three, and seven items from informational needs, supportive needs, and sources of obtaining information were omitted due to the items being unimportant. In the third round, all the included items gained scores equal to or greater than the average and were identified as important. Kendall coordination coefficient W was calculated to be 0.344 for information needs, 0.330 for supportive needs, and 0.325 for sources of obtaining information, indicating a fair level of agreement between experts. Out of 128 items in the first round, the omission of 30 items and the addition of two items generated a 100-item questionnaire for three sections of informational needs, supportive needs, and sources of obtaining information with a high level of convergence between experts' viewpoints.
Sections du résumé
Background
UNASSIGNED
The present study introduces informational and supportive needs and sources of obtaining information in patients with inflammatory bowel disease (IBD) through a three-round Expert Delphi Consensus Opinions method.
Methods
UNASSIGNED
According to our previous scoping review, important items in the area of informational and supportive needs and sources of obtaining information were elucidated. After omitting duplicates, 56 items in informational needs, 36 items in supportive needs, and 36 items in sources of obtaining information were retrieved. Both open- and close-ended questions were designed for each category in the form of three questionnaires. The questionnaires were sent to selected experts from different specialties. Experts responded to the questions in the first round. Based on the feedback, questions were modified and sent back to the experts in the second round. This procedure was repeated up to the third round.
Results
UNASSIGNED
In the first round, five items from informational needs, one item from supportive needs, and seven items from sources of obtaining information were identified as unimportant and omitted. Moreover, two extra items were proposed by the experts, which were added to the informational needs category. In the second round, seven, three, and seven items from informational needs, supportive needs, and sources of obtaining information were omitted due to the items being unimportant. In the third round, all the included items gained scores equal to or greater than the average and were identified as important. Kendall coordination coefficient W was calculated to be 0.344 for information needs, 0.330 for supportive needs, and 0.325 for sources of obtaining information, indicating a fair level of agreement between experts.
Conclusions
UNASSIGNED
Out of 128 items in the first round, the omission of 30 items and the addition of two items generated a 100-item questionnaire for three sections of informational needs, supportive needs, and sources of obtaining information with a high level of convergence between experts' viewpoints.
Identifiants
pubmed: 37809295
doi: 10.3389/fpsyg.2023.1224279
pmc: PMC10557489
doi:
Types de publication
Journal Article
Langues
eng
Pagination
1224279Informations de copyright
Copyright © 2023 Norouzkhani, Bahari, Shirvani, Faramarzi, Eslami and Tabesh.
Déclaration de conflit d'intérêts
The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.
Références
Clin Gastroenterol Hepatol. 2014 Aug;12(8):1246-56.e6
pubmed: 24534550
J Adv Nurs. 2003 Feb;41(4):376-82
pubmed: 12581103
Patient Educ Couns. 2002 Jul;47(3):257-63
pubmed: 12088604
Lancet. 2007 May 12;369(9573):1627-40
pubmed: 17499605
J Crohns Colitis. 2008 Jun;2(2):181-8
pubmed: 21172209
Inflamm Bowel Dis. 2013 Aug;19(9):1880-8
pubmed: 23765177
Inflamm Bowel Dis. 2012 Aug;18(8):1573-81
pubmed: 22179943
J Clin Nurs. 2017 Mar;26(5-6):648-657
pubmed: 27626615
Patient Educ Couns. 2007 Apr;66(1):13-20
pubmed: 17084059
PLoS One. 2016 Mar 03;11(3):e0150620
pubmed: 26939069
Eur J Gastroenterol Hepatol. 2017 Mar;29(3):331-337
pubmed: 27926663
Gut. 2004 Nov;53(11):1639-45
pubmed: 15479685
Inflamm Bowel Dis. 2011 Feb;17(2):590-8
pubmed: 20848545
Inflamm Bowel Dis. 2012 Jun;18(6):1156-63
pubmed: 22147497
J Clin Nurs. 2014 Jun;23(11-12):1718-25
pubmed: 24004406
Eur J Gastroenterol Hepatol. 2020 Dec;32(12):1514-1522
pubmed: 32804838
N Engl J Med. 1991 Jan 10;324(2):84-8
pubmed: 1984188
Gastroenterol Nurs. 2010 Jan-Feb;33(1):11-8
pubmed: 20145446
Pflege. 2013 Apr;26(2):109-18
pubmed: 23535475
Gut. 2001 Apr;48(4):526-35
pubmed: 11247898
BMC Gastroenterol. 2021 Jul 14;21(1):293
pubmed: 34261434
J Crohns Colitis. 2016 Sep;10(9):1103-21
pubmed: 26928960
Int J Colorectal Dis. 2006 Jul;21(5):433-40
pubmed: 16132999
Int J Evid Based Healthc. 2015 Sep;13(3):141-6
pubmed: 26134548
J Crohns Colitis. 2013 Apr;7(3):e120-1
pubmed: 22959397
Eur J Gastroenterol Hepatol. 2009 Sep;21(9):1036-41
pubmed: 19543105
Health Educ Res. 2020 Dec 23;35(6):637-647
pubmed: 32995862
J Perianesth Nurs. 2004 Feb;19(1):46-7
pubmed: 14770385
Inflamm Bowel Dis. 2007 Oct;13(10):1266-70
pubmed: 17567877
Gut. 2004 Sep;53 Suppl 5:V1-16
pubmed: 15306569
Gastroenterol Nurs. 2018 Jan/Feb;41(1):19-28
pubmed: 29373352
J Crohns Colitis. 2014 Mar;8(3):240-51
pubmed: 24295646
Autoimmun Rev. 2004 Jul;3(5):394-400
pubmed: 15288007
J Adv Nurs. 2006 Jan;53(2):205-12
pubmed: 16422719
Aliment Pharmacol Ther. 2005 Mar 1;21(5):499-508
pubmed: 15740531
Digestion. 2010;81(2):113-9
pubmed: 20093836
BMC Health Serv Res. 2013 Jul 08;13:263
pubmed: 23835131
Gut Liver. 2020 Jul 15;14(4):459-467
pubmed: 31533398
Front Psychol. 2023 May 11;14:1055449
pubmed: 37251032
J Crohns Colitis. 2013 Jul;7(6):467-73
pubmed: 22884758
Arthroscopy. 2018 Dec;34(12):3278-3282
pubmed: 30509437
Ann Gastroenterol. 2013;26(1):52-58
pubmed: 24714294
World J Gastroenterol. 2019 Aug 14;25(30):4246-4260
pubmed: 31435177
Gastroenterology. 2012 Jan;142(1):46-54.e42; quiz e30
pubmed: 22001864
Inflamm Bowel Dis. 2019 Feb 21;25(3):479-489
pubmed: 30169698
Gastroenterology. 1994 Jul;107(1):3-11
pubmed: 8020674
Gastroenterol Res Pract. 2012;2012:106502
pubmed: 22778720
J Med Internet Res. 2011 Dec 31;13(4):e126
pubmed: 22209829
Gastroenterol Hepatol. 2015 Jun-Jul;38(6):355-63
pubmed: 25813702
J Crohns Colitis. 2014 Oct;8(10):1300-7
pubmed: 24717289
Scand J Gastroenterol. 1995 Jul;30(7):699-706
pubmed: 7481535
J Crohns Colitis. 2015 May;9(5):421-7
pubmed: 25687204
J Crohns Colitis. 2013 Oct;7(9):744-64
pubmed: 23831217
J Paediatr Child Health. 2010 Oct;46(10):557-9
pubmed: 20979347