Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study.

aftercare goal setting lymphoma survivorship shared decision-making

Journal

Journal of patient experience
ISSN: 2374-3735
Titre abrégé: J Patient Exp
Pays: United States
ID NLM: 101688338

Informations de publication

Date de publication:
2023
Historique:
medline: 9 10 2023
pubmed: 9 10 2023
entrez: 9 10 2023
Statut: epublish

Résumé

This study described the challenges, personal goals, and interventions of patients with lymphoma in various domains of life that emerged from an aftercare consultation based on shared decision-making principles with a nurse practitioner. A cross-sectional exploratory design was used with a sample of 49 patients. Challenges, goals, and interventions were measured based on 4 domains of life: "my health," "my activities," "my environment" and "my own way." Most challenges were experienced in the domain of "my health," which included a loss of physical condition, reduced muscle strength, and fatigue. Patients set personal goals related to the experienced challenges, such as restoring physical condition to prediagnosis levels. Accordingly, 45 patients (84%) chose an intervention to improve physical condition and muscle strength and 33 patients (67%) chose to be referred to specialized care.

Identifiants

pubmed: 37811537
doi: 10.1177/23743735231204470
pii: 10.1177_23743735231204470
pmc: PMC10557409
doi:

Types de publication

Journal Article

Langues

eng

Pagination

23743735231204470

Informations de copyright

© The Author(s) 2023.

Déclaration de conflit d'intérêts

The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

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Auteurs

Jolanda Hhm Friesen-Storms (JH)

Research Centre for Autonomy and Participation of Persons with a Chronic Illness, Zuyd University of Applied Sciences, Heerlen, the Netherlands.
Academy of Nursing, Zuyd University of Applied Sciences, Heerlen, the Netherlands.
CAPHRI Care and Public Health Research Institute, Department of Health Services Research, Maastricht University, Maastricht, the Netherlands.

Danny Jl Quadvlieg-Delnoy (DJ)

Zuyderland Medical Centre, Sittard-Geleen, the Netherlands.

Roel Jw van Kampen (RJ)

Zuyderland Medical Centre, Sittard-Geleen, the Netherlands.

Trudy van der Weijden (T)

CAPHRI Care and Public Health Research Institute, Department of Family Medicine, Maastricht University, Maastricht, the Netherlands.

Emmylou Beekman (E)

Research Centre for Autonomy and Participation of Persons with a Chronic Illness, Zuyd University of Applied Sciences, Heerlen, the Netherlands.
CAPHRI Care and Public Health Research Institute, Department of Family Medicine, Maastricht University, Maastricht, the Netherlands.

Gerrie Jjw Bours (GJ)

Academy of Nursing, Zuyd University of Applied Sciences, Heerlen, the Netherlands.
CAPHRI Care and Public Health Research Institute, Department of Health Services Research, Maastricht University, Maastricht, the Netherlands.
Research Centre for Community Care, Academy of Nursing, Zuyd University of Applied Sciences, Heerlen, The Netherlands.

Kon-Siong G Jie (KG)

Zuyderland Medical Centre, Sittard-Geleen, the Netherlands.

Classifications MeSH