Implementing well-being in the management of psoriasis: An expert recommendation.


Journal

Journal of the European Academy of Dermatology and Venereology : JEADV
ISSN: 1468-3083
Titre abrégé: J Eur Acad Dermatol Venereol
Pays: England
ID NLM: 9216037

Informations de publication

Date de publication:
11 Oct 2023
Historique:
received: 08 02 2023
accepted: 30 08 2023
pubmed: 12 10 2023
medline: 12 10 2023
entrez: 11 10 2023
Statut: aheadofprint

Résumé

Psoriasis causes detriment in a person's physical, mental and social health which impairs their quality of life (QoL). However, the current psoriasis management may not adequately address all relevant health domains. Since the goal of healthcare is to restore or maintain health, health outcomes should include all areas of the patient's overall health. Life satisfaction, QoL and patient well-being are essential to a comprehensive approach to the disease. With the inclusion of more people-centred policies, care of patients with psoriasis should evolve towards a holistic and integrated assessment of the disease impact, including subjective measures of well-being in order to encompass all aspects of health. The main objective of this expert review is to give the concept of well-being a place as an entity within the holistic therapeutic approach for patients with psoriasis. Identifying and defining common goals beyond the skin with the patient and testing them throughout the course of treatment will benefit and enhance treatment success. We propose a series of recommendations for application in clinical practice, providing tangible clinical guidance for implementing well-being in the management of psoriasis. Among the recommendations are the need to initially listen to the patient, to know their level of empowerment or what they want to achieve, their preferences in decision making, the evaluation of not only the physical but also the emotional impact of the disease (well-being), the definition of the aspects that can generate a cumulative deterioration of the disease throughout life, and a continuous assessment of the patient's preferences with the opinion of the expert clinician and the integration of the knowledge of external clinical evidence.

Identifiants

pubmed: 37822008
doi: 10.1111/jdv.19567
doi:

Types de publication

Journal Article Review

Langues

eng

Sous-ensembles de citation

IM

Subventions

Organisme : Almirall R&D, Barcelona, Spain

Informations de copyright

© 2023 The Authors. Journal of the European Academy of Dermatology and Venereology published by John Wiley & Sons Ltd on behalf of European Academy of Dermatology and Venereology.

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Auteurs

Rachel Sommer (R)

Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.

Ulrich Mrowietz (U)

Psoriasis-Center, Department of Dermatology, University Medical Center Schleswig-Holstein, Campus Kiel, Kiel, Germany.

Kristian Gaarn Du Jardin (K)

Almirall R&D, Barcelona, Spain.

Ismail Kasujee (I)

Almirall R&D, Barcelona, Spain.

Elisa Martini (E)

IFPA, Stockholm, Sweden.

Esteban Daudén (E)

La Princesa University Hospital, Instituto de Investigación Sanitaria La Princesa (IIS-IP), Madrid, Spain.

Gabriella Fabbrocini (G)

Section of Dermatology, Department of Clinical, Medicine and Surgery, University of Naples Federico II, Naples, Italy.

Alexander Zink (A)

Department of Dermatology and Allergy, School of Medicine, Technical University of Munich, Munich, Germany.
Division of Dermatology and Venereology, Department of Medicine Solna, Karolinska Institutet, Stockholm, Germany.

Christopher E M Griffiths (CEM)

The Dermatology Centre, NIHR Manchester Biomedical Research Centre, Salford Royal Hospital, The University of Manchester, Manchester, UK.
Department of Dermatology, King's College Hospital, King's College London, London, UK.

Matthias Augustin (M)

Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.

Classifications MeSH