Advanced Cancer in Young Adults (YAs): Living in a Liminal Space.
adolescent and young adults
cancer
grounded theory
oncology
palliative care
psychosocial
qualitative
rehabilitation
Journal
Qualitative health research
ISSN: 1049-7323
Titre abrégé: Qual Health Res
Pays: United States
ID NLM: 9202144
Informations de publication
Date de publication:
Jan 2024
Jan 2024
Historique:
pubmed:
17
10
2023
medline:
17
10
2023
entrez:
16
10
2023
Statut:
ppublish
Résumé
Young adults (YAs), defined as individuals between the ages of 18 and 39 years, experience unique challenges when diagnosed with advanced cancer. Using the social constructivist grounded theory approach, we aimed to develop a theoretical understanding of how YAs live day to day with their diagnosis. A sample of 25 YAs (aged 22-39 years) with advanced cancer from across Canada participated in semi-structured interviews. Findings illustrate that the YAs described day-to-day life as an oscillating experience swinging between two opposing disease outcomes: (1) hoping for a cure and (2) facing the possibility of premature death. Oscillating between these potential outcomes was characterized as living in a liminal space wherein participants were unsure how to live from one day to the next. The participants oscillated at various rates, with different factors influencing the rate of oscillation, including inconsistent and poor messaging from their oncologists or treatment team, progression or regression of their cancer, and changes in their physical functioning and mental health. These findings provide a theoretical framework for designing interventions to help YAs adapt to their circumstance.
Identifiants
pubmed: 37844970
doi: 10.1177/10497323231204182
pmc: PMC10714712
doi:
Types de publication
Journal Article
Langues
eng
Pagination
72-85Déclaration de conflit d'intérêts
Declaration of Conflicting InterestsThe author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
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