[Information sources and therapeutic education in autoimmune bullous diseases].

Sources d’information et éducation thérapeutique dans les maladies bulleuses auto-immunes.
association autoimmune bullous disease centre de référence information maladie bulleuse auto-immune reference center therapeutic patient education éducation thérapeutique du patient

Journal

Soins; la revue de reference infirmiere
ISSN: 0038-0814
Titre abrégé: Soins
Pays: France
ID NLM: 20910580R

Informations de publication

Date de publication:
Nov 2023
Historique:
medline: 8 11 2023
pubmed: 7 11 2023
entrez: 6 11 2023
Statut: ppublish

Résumé

Finding information about diseases and their treatment can be useful for healthcare professionals, patients and their families. The Internet has made it easy to find information on rare diseases. However, it is sometimes difficult to select useful and accurate data sources. One of the roles of reference centers and patient associations is to provide appropriate, high-quality information. Another of their aims is to develop therapeutic patient education to improve quality of life.

Identifiants

pubmed: 37931990
pii: S0038-0814(23)00305-5
doi: 10.1016/j.soin.2023.09.004
pii:
doi:

Types de publication

English Abstract Journal Article

Langues

fre

Pagination

16-17

Informations de copyright

Copyright © 2023 Elsevier Masson SAS. All rights reserved.

Auteurs

Christelle Le Roux-Villet (C)

Service de dermatologie, centre de référence des maladies bulleuses auto-immunes, hôpital Avicenne, AP-HP, 125 avenue de Stalingrad, 93009 Bobigny cedex, France. Electronic address: christelle.leroux@aphp.fr.

Hélène Facy (H)

Association Pemphigus Pemphigoïde France, 2 allée Henri-Legall, 92230 Gennevilliers, France.

Isabelle Gentile (I)

Association Pemphigus Pemphigoïde France, 2 allée Henri-Legall, 92230 Gennevilliers, France.

Laetitia Natier (L)

Service de dermatologie, centre de référence des maladies bulleuses auto-immunes, hôpital Avicenne, AP-HP, 125 avenue de Stalingrad, 93009 Bobigny cedex, France.

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Classifications MeSH