Haemochromatosis in children: A national retrospective cohort promoted by the A.I.E.O.P. (Associazione Italiana Emato-Oncologia Pediatrica) study group.

haemochromatosis hyperferritinaemia iron chelation juvenile haemochromatosis phlebotomy

Journal

British journal of haematology
ISSN: 1365-2141
Titre abrégé: Br J Haematol
Pays: England
ID NLM: 0372544

Informations de publication

Date de publication:
21 Nov 2023
Historique:
revised: 25 10 2023
received: 21 07 2023
accepted: 06 11 2023
medline: 22 11 2023
pubmed: 22 11 2023
entrez: 22 11 2023
Statut: aheadofprint

Résumé

Haemochromatosis (HC) encompasses a range of genetic disorders. HFE-HC is by far the most common in adults, while non-HFE types are rare due to mutations of HJV, HAMP, TFR2 and gain-of-function mutations of SLC40A1. HC is often unknown to paediatricians as it is usually asymptomatic in childhood. We report clinical and biochemical data from 24 paediatric cases of HC (10 cases of HFE-, 5 TFR2-, 9 HJV-HC), with a median follow-up of 9.6 years. Unlike in the adult population, non-HFE-HC constitutes 58% (14/24) of the population in our series. Transferrin saturation was significantly higher in TFR2- and HJV-HC compared to HFE-HC, and serum ferritin and LIC were higher in HJV-HC compared to TFR2- and HFE-HC. Most HFE-HC subjects had relatively low ferritin and LIC at the time of diagnosis, so therapy could be postponed for most of them after the age of 18. Our results confirm that HJV-HC is a severe form already in childhood, emphasizing the importance of early diagnosis and treatment to avoid the development of organ damage and reduce morbidity and mortality. Although phlebotomies were tolerated by most patients, oral iron chelators could be a valid option in early-onset HC.

Identifiants

pubmed: 37990447
doi: 10.1111/bjh.19208
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Informations de copyright

© 2023 The Authors. British Journal of Haematology published by British Society for Haematology and John Wiley & Sons Ltd.

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Auteurs

Paola Corti (P)

Pediatria, Fondazione IRCCS San Gerardo dei Tintori, Monza, Italy.

Giulia Maria Ferrari (GM)

Pediatria, Fondazione IRCCS San Gerardo dei Tintori, Monza, Italy.

Martha Caterina Faraguna (MC)

Pediatria, Fondazione IRCCS San Gerardo dei Tintori, Monza, Italy.
Residency in Pediatrics, University of Milano Bicocca, Milan, Italy.

Giulia Capitoli (G)

Bicocca Bioinformatics Biostatistics and Bioimaging B4 Center, Department of Medicine and Surgery, University of Milan-Bicocca, Monza, Italy.

Filomena Longo (F)

Thalassemia Reference Centre, Orbassano, Italy.
Regional HUB Centre for Thalassaemia and Haemoglobinopathies, Department of Medicine, AOU S. Anna, Ferrara, Italy.

Elena Corradini (E)

Internal Medicine Unit and Centre for Hemochromatosis and Hereditary Liver Diseases, ERN-EuroBloodNet and ERN-RARE-LIVER, Azienda Ospedaliero-Universitaria di Modena-Policlinico, Modena, Italy.

Tommaso Casini (T)

Pediatric Hematology/Oncology Department, Meyer's Children University Hospital, Firenze, Italy.

Gianluca Boscarol (G)

Department of Pediatrics, Central Teaching Hospital, Bolzano, Italy.

Valeria Maria Pinto (VM)

Centro della Microcitemia e delle Anemie Congenite, Ospedale Galliera, Genova, Italy.

Roberta Ghilardi (R)

Department of Pediatrics, Ospedale Maggiore Policlinico, IRCCS, Milano, Italy.

Giovanna Russo (G)

Pediatric Hematology and Oncology Unit, Azienda Policlinico "Rodolico-San Marco", University of Catania, Catania, Italy.

Raffaella Colombatti (R)

Pediatric Hematology Oncology and Bone Marrow Transplantation Unit, Department of Woman's and Child's Health, University of Padova, Padova, Italy.

Raffaella Mariani (R)

SSD Rare Diseases-European Reference Network for Rare Hematological Diseases-EuroBloodNet-Fondazione IRCCS San Gerardo dei Tintori, Monza, Italy.

Alberto Piperno (A)

SSD Rare Diseases-European Reference Network for Rare Hematological Diseases-EuroBloodNet-Fondazione IRCCS San Gerardo dei Tintori, Monza, Italy.
Centro Ricerca Tettamanti, Monza, Italy.

Classifications MeSH