Integrating participants as partners in research governance and operations: an approach from the
Clinical governance
PUBLIC HEALTH
Patient Participation
Journal
BMJ open
ISSN: 2044-6055
Titre abrégé: BMJ Open
Pays: England
ID NLM: 101552874
Informations de publication
Date de publication:
27 Nov 2023
27 Nov 2023
Historique:
medline:
29
11
2023
pubmed:
28
11
2023
entrez:
27
11
2023
Statut:
epublish
Résumé
During the last two decades, researchers and funders increasingly recognised the value of engaging patients and communities in research. Despite progress, community engagement remains challenging. There are few examples of successful participant engagement in governance of large-scale research programmes. Here we describe efforts to engage participants as partners in new governance roles in the Over a 3-year period, all items on the survey increased (higher readiness). Of the 291 respondents to the 2021 survey, respondents most frequently agreed that participant perspectives are essential (100%), participants understand enough to contribute meaningfully (94%) and participants should be involved in setting goals (96%). Respondents least frequently agreed that participants should have an equal voice in Working Groups (75%), Steering Committee (69%) and Executive Committee (63%). In conclusion, participants can be effectively integrated into large-scale research governance, which is associated with increased researcher readiness for engagement.
Identifiants
pubmed: 38011981
pii: bmjopen-2022-068100
doi: 10.1136/bmjopen-2022-068100
pmc: PMC10685928
doi:
Types de publication
Journal Article
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
e068100Subventions
Organisme : NCI NIH HHS
ID : L60 CA264691
Pays : United States
Organisme : NCI NIH HHS
ID : K99 CA277366
Pays : United States
Organisme : AHRQ HHS
ID : T32 HS026122
Pays : United States
Organisme : NIH HHS
ID : OT2 OD035404
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR002243
Pays : United States
Organisme : NIH HHS
ID : OT2 OD035980
Pays : United States
Organisme : NIMHD NIH HHS
ID : U54 MD010722
Pays : United States
Organisme : NIH HHS
ID : U2C OD023196
Pays : United States
Informations de copyright
© Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.
Déclaration de conflit d'intérêts
Competing interests: None declared.
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