Hard to Reach and Hidden: Improving the Identification of Young Dementia Carers.

admiral nurse adolescents carer dementia schools young carer young person younger onset dementia

Journal

International journal of environmental research and public health
ISSN: 1660-4601
Titre abrégé: Int J Environ Res Public Health
Pays: Switzerland
ID NLM: 101238455

Informations de publication

Date de publication:
23 Nov 2023
Historique:
received: 24 10 2023
revised: 01 11 2023
accepted: 22 11 2023
medline: 8 12 2023
pubmed: 8 12 2023
entrez: 8 12 2023
Statut: epublish

Résumé

Young dementia carers (YDCs) rarely receive appropriate training and support. Their visibility and identification remain dangerously low, and, consequently, support initiatives being developed are failing to reach them. This study explored the success (or failure) of YDC identification pathways as well as the barriers and enablers to their implementation. An explorative qualitative approach was followed, drawing on the experiences of parents of YDCs, dementia researchers, professionals in the field of dementia/young carers, and young adult carers. Data collection involved semi-structured interviews (

Identifiants

pubmed: 38063533
pii: ijerph20237103
doi: 10.3390/ijerph20237103
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Subventions

Organisme : National Institute for Health Research
ID : NIHR130914

Auteurs

Patricia Masterson-Algar (P)

School of Medical and Health Sciences, Bangor University, Bangor LL57 2EF, UK.

Kieren Egan (K)

Department of Computer and Information Science, University of Strathclyde, Glasgow G11 XH, UK.

Greg Flynn (G)

School of Medical and Health Sciences, Bangor University, Bangor LL57 2EF, UK.

Gwenllian Hughes (G)

School of Medical and Health Sciences, Bangor University, Bangor LL57 2EF, UK.

Aimee Spector (A)

Department of Clinical, Educational and Health Psychology, University College London, London WC1E 6BT, UK.

Joshua Stott (J)

Department of Clinical, Educational and Health Psychology, University College London, London WC1E 6BT, UK.

Gill Windle (G)

School of Medical and Health Sciences, Bangor University, Bangor LL57 2EF, UK.

Classifications MeSH