Five paediatric mycosis fungoides cases and our approach to provide age-appropriate information and psychological support.


Journal

Clinical and experimental dermatology
ISSN: 1365-2230
Titre abrégé: Clin Exp Dermatol
Pays: England
ID NLM: 7606847

Informations de publication

Date de publication:
03 Jan 2024
Historique:
received: 05 06 2023
revised: 27 10 2023
accepted: 30 12 2023
medline: 4 1 2024
pubmed: 4 1 2024
entrez: 3 1 2024
Statut: aheadofprint

Résumé

Cutaneous lymphoproliferative diseases in childhood are rare and they are clinically and pathologically heterogeneous, which makes their diagnosis challenging. Although there is limited long-term data and guidance on management, evidence suggests these to be different conditions from cutaneous lymphoma in adults, highlighting the need for age-appropriate patient information. We present clinical outcomes for our paediatric cohort of 5 patients with mycosis fungoides, emphasising that despite diagnostic delays, mycosis fungoides in this age group tends to yield a good prognosis. It remains uncommon to provide clinical expertise together with psychological support in a dermatology paediatric. Here, we provide our experience in offering this combined service. In conjunction with these patients, we have co-produced an accessible patient information leaflet targeted at a younger audience for support and to clarify potential misconceptions from a diagnosis of cutaneous lymphoma.

Identifiants

pubmed: 38169346
pii: 7505376
doi: 10.1093/ced/llad457
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Informations de copyright

© The Author(s) 2024. Published by Oxford University Press on behalf of British Association of Dermatologists. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

Auteurs

Veronica Melchionda (V)

Department of Dermatology, Oxford University Hospitals NHS Foundation Trust, Oxford, UK.

Eleni Ieremia (E)

Department of Histopathology, Oxford University Hospitals NHS Foundation Trust, Oxford, UK.

Rubeta Matin (R)

Department of Dermatology, Oxford University Hospitals NHS Foundation Trust, Oxford, UK.

Tess McPherson (T)

Department of Dermatology, Oxford University Hospitals NHS Foundation Trust, Oxford, UK.

Classifications MeSH