Online educational resources for youth living with type 1 diabetes transitioning to adult care: an environmental scan of Canadian content.

Youth online education transition in care type 1 diabetes

Journal

Canadian journal of diabetes
ISSN: 2352-3840
Titre abrégé: Can J Diabetes
Pays: Canada
ID NLM: 101148810

Informations de publication

Date de publication:
02 Jan 2024
Historique:
received: 12 07 2023
revised: 06 12 2023
accepted: 22 12 2023
medline: 5 1 2024
pubmed: 5 1 2024
entrez: 4 1 2024
Statut: aheadofprint

Résumé

There are many educational resources for adolescents and young adults living with type 1 diabetes; however, it is unknown if they address the breadth of topics related to transition to adult care. Our objective was to collect educational resources relevant to Canadian youth, and assess their quality and comprehensiveness in addressing the knowledge necessary for youth to prepare for interdependent management of their diabetes. We conducted an environmental scan, a systematic assessment and analysis, of online education resources in English and French relevant to Canadian youth living with type 1 diabetes. Resources were screened using an open education resources' evaluation grid and relevant resources were mapped to the Readiness for Emerging Adults with Diabetes Diagnosed in Youth (READDY), a validated diabetes transition readiness assessment tool. From 44 different sources, 1245 resources were identified, and of them, 760 were retained for analysis. The majority were webpages (50.1%) and downloadable PDFs (42.4%), and 12.1% were interactive. Most resources covered diabetes knowledge (46.0%), health behavior (23.8%), insulin and insulin pump management (respectively, 11.8% and 8.6%), and health system navigation (9.7%). Topic areas with the fewest resources were disability accommodations (n=5), sexual health/function (n=4), and locating trustworthy diabetes resources (n=3). There are many resources available for those living with type 1 diabetes preparing to transition to adult care, with the majority regarding diabetes knowledge and the least for health system navigation. Few resources were available on the topics of substance use, sexual health, and reproductive health. An interactive presentation of these resources, as well as a central repository to house these resources, would improve access for youth and diabetes providers during transition preparation.

Sections du résumé

BACKGROUND BACKGROUND
There are many educational resources for adolescents and young adults living with type 1 diabetes; however, it is unknown if they address the breadth of topics related to transition to adult care. Our objective was to collect educational resources relevant to Canadian youth, and assess their quality and comprehensiveness in addressing the knowledge necessary for youth to prepare for interdependent management of their diabetes.
METHODS METHODS
We conducted an environmental scan, a systematic assessment and analysis, of online education resources in English and French relevant to Canadian youth living with type 1 diabetes. Resources were screened using an open education resources' evaluation grid and relevant resources were mapped to the Readiness for Emerging Adults with Diabetes Diagnosed in Youth (READDY), a validated diabetes transition readiness assessment tool.
RESULTS RESULTS
From 44 different sources, 1245 resources were identified, and of them, 760 were retained for analysis. The majority were webpages (50.1%) and downloadable PDFs (42.4%), and 12.1% were interactive. Most resources covered diabetes knowledge (46.0%), health behavior (23.8%), insulin and insulin pump management (respectively, 11.8% and 8.6%), and health system navigation (9.7%). Topic areas with the fewest resources were disability accommodations (n=5), sexual health/function (n=4), and locating trustworthy diabetes resources (n=3).
CONCLUSION CONCLUSIONS
There are many resources available for those living with type 1 diabetes preparing to transition to adult care, with the majority regarding diabetes knowledge and the least for health system navigation. Few resources were available on the topics of substance use, sexual health, and reproductive health. An interactive presentation of these resources, as well as a central repository to house these resources, would improve access for youth and diabetes providers during transition preparation.

Identifiants

DOI: 10.1016/j.jcjd.2023.12.008 PMID: 38176453
pubmed: 38176453
pii: S1499-2671(23)00727-X
doi: 10.1016/j.jcjd.2023.12.008
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Informations de copyright

Copyright © 2024 Canadian Diabetes Association. Published by Elsevier Inc. All rights reserved.

Auteurs

Asmaa Housni (A)

School of Human Nutrition, McGill University, Montréal, Canada.

Rosemarie Cianci (R)

School of Human Nutrition, McGill University, Montréal, Canada.

Rayzel Shulman (R)

The Hospital for Sick Children, Toronto, Canada.

Meranda Nakhla (M)

Research institute of McGill University Health Centre, Montréal, Canada.

Joseph A Cafazzo (JA)

University Health Network, Toronto, Canada, Centre for Digital Therapeutics, Techna Institute, University Health Network, Toronto, ON, CA, Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, ON, CA, Institute of Biomedical Engineering, University of Toronto, Toronto, ON, CA, Department of Computer Science, University of Toronto, Toronto, ON, CA.

Sarah D Corathers (SD)

Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, United States.

Joyce P Yi-Frazier (JP)

Seattle Children's Research Institute, Seattle, United States.

Jessica C Kichler (JC)

University of Windsor, Windsor, Canada.

Anne-Sophie Brazeau (AS)

School of Human Nutrition, McGill University, Montréal, Canada.

Classifications MeSH