"Deficiency in ELF4, X-Linked": a Monogenic Disease Entity Resembling Behçet's Syndrome and Inflammatory Bowel Disease.

Behcet’s disease DEX Deficiency in ELF4 X-linked ELF4 Inborn error of immunity Inflammation Inflammatory bowel disease

Journal

Journal of clinical immunology
ISSN: 1573-2592
Titre abrégé: J Clin Immunol
Pays: Netherlands
ID NLM: 8102137

Informations de publication

Date de publication:
17 Jan 2024
Historique:
received: 22 06 2023
accepted: 27 10 2023
medline: 17 1 2024
pubmed: 17 1 2024
entrez: 17 1 2024
Statut: epublish

Résumé

Defining monogenic drivers of autoinflammatory syndromes elucidates mechanisms of disease in patients with these inborn errors of immunity and can facilitate targeted therapeutic interventions. Here, we describe a cohort of patients with a Behçet's- and inflammatory bowel disease (IBD)-like disorder termed "deficiency in ELF4, X-linked" (DEX) affecting males with loss-of-function variants in the ELF4 transcription factor gene located on the X chromosome. An international cohort of fourteen DEX patients was assessed to identify unifying clinical manifestations and diagnostic criteria as well as collate findings informing therapeutic responses. DEX patients exhibit a heterogeneous clinical phenotype including weight loss, oral and gastrointestinal aphthous ulcers, fevers, skin inflammation, gastrointestinal symptoms, arthritis, arthralgia, and myalgia, with findings of increased inflammatory markers, anemia, neutrophilic leukocytosis, thrombocytosis, intermittently low natural killer and class-switched memory B cells, and increased inflammatory cytokines in the serum. Patients have been predominantly treated with anti-inflammatory agents, with the majority of DEX patients treated with biologics targeting TNFα.

Identifiants

pubmed: 38231408
doi: 10.1007/s10875-023-01610-8
pii: 10.1007/s10875-023-01610-8
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

44

Informations de copyright

© 2024. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.

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Auteurs

Sam J Olyha (SJ)

Department of Immunobiology, Yale University School of Medicine, New Haven, CT, USA.

Shannon K O'Connor (SK)

Department of Pediatrics, Yale University School of Medicine, New Haven, CT, USA.
Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.

Marat Kribis (M)

Section of Rheumatology, Department of Internal Medicine, Yale School of Medicine, New Haven, CT, USA.

Molly L Bucklin (ML)

Department of Immunobiology, Yale University School of Medicine, New Haven, CT, USA.

Dinesh Babu Uthaya Kumar (DB)

Department of Immunobiology, Yale University School of Medicine, New Haven, CT, USA.

Paul M Tyler (PM)

Department of Immunobiology, Yale University School of Medicine, New Haven, CT, USA.

Faiad Alam (F)

Department of Immunobiology, Yale University School of Medicine, New Haven, CT, USA.

Kate M Jones (KM)

Department of Immunobiology, Yale University School of Medicine, New Haven, CT, USA.

Hassan Sheikha (H)

Department of Immunobiology, Yale University School of Medicine, New Haven, CT, USA.
Department of Pediatrics, Yale University School of Medicine, New Haven, CT, USA.

Liza Konnikova (L)

Department of Pediatrics, Yale University School of Medicine, New Haven, CT, USA.
Division of Neonatal and Perinatal Medicine, Yale University School of Medicine, New Haven, CT, USA.
Department of Obstetrics, Gynecology and Reproductive Sciences, Yale Medical School, New Haven, CT, USA.
Program in Human and Translational Immunology, Yale University School of Medicine, New Haven, CT, USA.

Saquib A Lakhani (SA)

Department of Pediatrics, Yale University School of Medicine, New Haven, CT, USA.
Pediatric Genomics Discovery Program, Yale University School of Medicine, New Haven, CT, USA.

Ruth R Montgomery (RR)

Section of Rheumatology, Department of Internal Medicine, Yale School of Medicine, New Haven, CT, USA.

Jason Catanzaro (J)

Division of Pediatric Allergy and Clinical Immunology, National Jewish Health, Denver, CO, USA.

Hongqiang Du (H)

National Clinical Research Center for Child Health and Disorders, Children's Hospital of Chongqing Medical University, Chongqing, China.
Ministry of Education Key Laboratory of Child Development and Disorders, Children's Hospital of Chongqing Medical University, Chongqing, China.
Chongqing Key Laboratory of Child Infection and Immunity, Children's Hospital of Chongqing Medical University, Chongqing, China.
Department of Rheumatology & Immunology, Children's Hospital of Chongqing Medical University, Chongqing, China.

Daniel V DiGiacomo (DV)

Division of Rheumatology, Allergy and Immunology, Massachusetts General Hospital, Boston, MA, USA.

Holly Rothermel (H)

Division of Pediatric Rheumatology, MassGeneral for Children, Boston, MA, USA.

Christopher J Moran (CJ)

Division of Pediatric Gastroenterology, MassGeneral for Children, Boston, MA, USA.

Karoline Fiedler (K)

SickKids Inflammatory Bowel Disease Centre, The Hospital for Sick Children, Toronto, ON, Canada.
Cell Biology Program, Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.

Neil Warner (N)

Cell Biology Program, Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.

Esther P A H Hoppenreijs (EPAH)

Department of Pediatric Rheumatology, Amalia Children's Hospital, Radboud University Medical Center, Nijmegen, The Netherlands.

Caspar I van der Made (CI)

Department of Internal Medicine and Radboud Center for Infectious Diseases, Radboud University Medical Center, Nijmegen, The Netherlands.

Alexander Hoischen (A)

Department of Internal Medicine and Radboud Center for Infectious Diseases, Radboud University Medical Center, Nijmegen, The Netherlands.

Peter Olbrich (P)

Inborn Errors of Immunity Group, Biomedicine Institute of Sevilla (IBiS), CSIC, Seville, Spain.
Pediatric Infectious Diseases, Rheumatology and Immunology Unit, Hospital Universitario Virgen del Rocío, Seville, Spain.
Departamento de Farmacología, Pediatría y Radiología, Universidad de Sevilla, Seville, Spain.

Olaf Neth (O)

Inborn Errors of Immunity Group, Biomedicine Institute of Sevilla (IBiS), CSIC, Seville, Spain.
Pediatric Infectious Diseases, Rheumatology and Immunology Unit, Hospital Universitario Virgen del Rocío, Seville, Spain.

Alejandro Rodríguez-Martínez (A)

Pediatric Gastroenterology, Hepatology and Nutrition Unit, Hospital Universitario Virgen del Rocío, Seville, Spain.

José Manuel Lucena Soto (JM)

Unidad de Inmunología, Hospital Universitario Virgen del Rocío, Sevilla, Spain.

Annemarie M C van Rossum (AMC)

Erasmus MC University Medical Center-Sophia Children's Hospital, Department of Pediatrics, Division of Infectious Diseases and Immunology, Rotterdam, The Netherlands.
Department of Medical Microbiology and Infectious Diseases, Erasmus MC University Medical Center, Rotterdam, The Netherlands.

Virgil A S H Dalm (VASH)

Department of Immunology, Laboratory of Medical Immunology, Erasmus University Medical Centre, Rotterdam, The Netherlands.
Department of Internal Medicine, Division of Allergy & Clinical Immunology, Erasmus University Medical Center, Rotterdam, The Netherlands.
Academic Center for Rare Immunological Diseases (RIDC), Erasmus University Medical Center, Rotterdam, The Netherlands.

Aleixo M Muise (AM)

SickKids Inflammatory Bowel Disease Centre, The Hospital for Sick Children, Toronto, ON, Canada.
Cell Biology Program, Research Institute, The Hospital for Sick Children, Toronto, ON, Canada.
Department of Pediatrics, Institute of Medical Science and Biochemistry, University of Toronto, The Hospital for Sick Children, Toronto, ON, Canada.

Carrie L Lucas (CL)

Department of Immunobiology, Yale University School of Medicine, New Haven, CT, USA. Carrie.Lucas@yale.edu.
Program in Human and Translational Immunology, Yale University School of Medicine, New Haven, CT, USA. Carrie.Lucas@yale.edu.

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