Stakeholder Engagement in Type 1 Diabetes Research, Quality Improvement, and Clinical Care.

Partnership approaches Public and patient involvement Quality improvement Stakeholder engagement Type 1 diabetes

Journal

Endocrinology and metabolism clinics of North America
ISSN: 1558-4410
Titre abrégé: Endocrinol Metab Clin North Am
Pays: United States
ID NLM: 8800104

Informations de publication

Date de publication:
Mar 2024
Historique:
medline: 26 1 2024
pubmed: 26 1 2024
entrez: 25 1 2024
Statut: ppublish

Résumé

The integration of stakeholder engagement (SE) in research, quality improvement (QI), and clinical care has gained significant traction. Type 1 diabetes is a chronic disease that requires complex daily management and care from a multidisciplinary team across the lifespan. Inclusion of key stakeholder voices, including patients, caregivers, health care providers and community advocates, in the research process and implementation of clinical care is critical to ensure representation of perspectives that match the values and goals of the patient population. This review describes the current framework for SE and its application to research, QI, and clinical care across the lifespan.

Identifiants

pubmed: 38272594
pii: S0889-8529(23)00078-6
doi: 10.1016/j.ecl.2023.09.007
pii:
doi:

Types de publication

Journal Article Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

165-182

Informations de copyright

Copyright © 2023 Elsevier Inc. All rights reserved.

Déclaration de conflit d'intérêts

Authors’ disclosures R.M. Wolf receives research support from Novo Nordisk as the site PI of a clinical trial.

Auteurs

Nicole Rioles (N)

T1D Exchange, Boston, MA, USA.

Christine March (C)

Division of Pediatric Endocrinology and Diabetes, University of Pittsburgh, UPMC Children's Hospital of Pittsburgh, Pittsburgh, PA, USA.

Cynthia E Muñoz (CE)

Department of Pediatrics, Keck School of Medicine, University of Southern California, Los Angeles, CA, USA.

Jeniece Ilkowitz (J)

Pediatric Diabetes Center, NYU Langone Health, New York, NY, USA.

Amy Ohmer (A)

International Children's Advisory Network, Atlanta, GA, USA.

Risa M Wolf (RM)

Department of Pediatrics, Division of Endocrinology, Johns Hopkins University School of Medicine, Baltimore, MD, USA. Electronic address: RWolf@jhu.edu.

Classifications MeSH