Designing a Library of Lived Experience for Mental Health: integrated realist synthesis and experience-based co-design study in UK mental health services.
MENTAL HEALTH
QUALITATIVE RESEARCH
Social Support
Journal
BMJ open
ISSN: 2044-6055
Titre abrégé: BMJ Open
Pays: England
ID NLM: 101552874
Informations de publication
Date de publication:
31 Jan 2024
31 Jan 2024
Historique:
medline:
1
2
2024
pubmed:
1
2
2024
entrez:
31
1
2024
Statut:
epublish
Résumé
Living Library events involve people being trained as living 'Books', who then discuss aspects of their personal experiences in direct conversation with attendees, referred to as 'Readers'. This study sought to generate a realist programme theory and a theory-informed implementation guide for a Library of Lived Experience for Mental Health (LoLEM). Integrated realist synthesis and experience-based co-design. Ten online workshops with participants based in the North of England. Thirty-one participants with a combination of personal experience of using mental health services, caring for someone with mental health difficulties and/or working in mental health support roles. Database searches identified 30 published and grey literature evidence sources which were integrated with data from 10 online co-design workshops conducted over 12 months. The analysis generated a programme theory comprising five context-mechanism-outcome (CMO) configurations. Findings highlight how establishing psychological safety is foundational to productive Living Library events (CMO 1). For Readers, direct conversations humanise others' experiences (CMO 2) and provide the opportunity to flexibly explore new ways of living (CMO 3). Through participation in a Living Library, Books may experience personal empowerment (CMO 4), while the process of self-authoring and co-editing their story (CMO 5) can contribute to personal development. This programme theory informed the co-design of an implementation guide highlighting the importance of tailoring event design and participant support to the contexts in which LoLEM events are held. The LoLEM has appeal across stakeholder groups and can be applied flexibly in a range of mental health-related settings. Implementation and evaluation are required to better understand the positive and negative impacts on Books and Readers. PROSPERO CRD42022312789.
Identifiants
pubmed: 38296304
pii: bmjopen-2023-081188
doi: 10.1136/bmjopen-2023-081188
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
e081188Informations de copyright
© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY. Published by BMJ.
Déclaration de conflit d'intérêts
Competing interests: None declared.
Références
BMJ Open. 2023 Mar 8;13(3):e068548
pubmed: 36889824
BMJ Qual Saf. 2020 Jan;29(1):64-76
pubmed: 31548278
Adm Policy Ment Health. 2023 Mar;50(2):177-211
pubmed: 36357820
Adv Health Sci Educ Theory Pract. 2023 May 29;:
pubmed: 37247126
Int J Ment Health Nurs. 2014 Feb;23(1):3-16
pubmed: 23586597
Int J Environ Res Public Health. 2023 Jan 30;20(3):
pubmed: 36767851
Int J Environ Res Public Health. 2020 Apr 27;17(9):
pubmed: 32349269
JMIR Ment Health. 2023 Jul 25;10:e46590
pubmed: 37490326
JMIR Ment Health. 2019 Apr 15;6(4):e13493
pubmed: 30985287
JMIR Ment Health. 2020 Jun 9;7(6):e15572
pubmed: 32357127
BMC Psychiatry. 2020 Nov 11;20(1):534
pubmed: 33176729
Adv Health Sci Educ Theory Pract. 2019 Aug;24(3):595-617
pubmed: 30306292
BMC Public Health. 2015 Jul 30;15:725
pubmed: 26223523
Health Info Libr J. 2015 Sep;32(3):220-35
pubmed: 26095232
Psychiatr Rehabil J. 2019 Jun;42(2):169-181
pubmed: 30843721
Health Expect. 2023 Apr;26(2):640-650
pubmed: 36625226
Clin Psychol Rev. 2019 Aug;72:101749
pubmed: 31254936
Schizophr Bull. 2022 Jan 21;48(1):134-144
pubmed: 34423840
BMC Med. 2013 Jan 29;11:21
pubmed: 23360677
BMJ. 2021 Sep 30;374:n2061
pubmed: 34593508
BMC Psychiatry. 2022 Jan 28;22(1):73
pubmed: 35090412
Int J Ment Health Nurs. 2016 Jun;25(3):183-93
pubmed: 26900000