Attitudes and Perceptions about Brain Donation Among African Americans: Implications for Recruitment into Alzheimer's Disease Research.

Alzheimer’s disease Black or African American brain donation dementia medical mistrust recruitment research participation

Journal

Journal of Alzheimer's disease : JAD
ISSN: 1875-8908
Titre abrégé: J Alzheimers Dis
Pays: Netherlands
ID NLM: 9814863

Informations de publication

Date de publication:
29 Jan 2024
Historique:
medline: 2 2 2024
pubmed: 2 2 2024
entrez: 2 2 2024
Statut: aheadofprint

Résumé

The objective of this study was to investigate attitudes toward brain donation and perceptions of medical research that influence brain donation among African Americans. Cross-sectional surveys were administered to African American community members (n = 227). Findings indicate that only 27% of respondents were willing to donate their brain. As medical mistrust was not found to be a significant barrier to research participation, there may be opportunity to increase brain donation by providing information about Alzheimer's disease and brain donation to potential donors and their families so that informed decisions about participating in research can be made.

Identifiants

pubmed: 38306029
pii: JAD230461
doi: 10.3233/JAD-230461
doi:

Types de publication

Letter

Langues

eng

Sous-ensembles de citation

IM

Auteurs

Allison Caban-Holt (A)

Maya Angelou Center for Health Equity, Wake Forest University School of Medicine, Winston-Salem, NC, USA.

Michael L Cuccaro (ML)

John P. Hussman Institute for Human Genomics, University of Miami Miller School of Medicine, Miami, FL, USA.

Shawnta L Lloyd (SL)

Maya Angelou Center for Health Equity, Wake Forest University School of Medicine, Winston-Salem, NC, USA.

Takiyah D Starks (TD)

Maya Angelou Center for Health Equity, Wake Forest University School of Medicine, Winston-Salem, NC, USA.

Larry D Adams (LD)

John P. Hussman Institute for Human Genomics, University of Miami Miller School of Medicine, Miami, FL, USA.

Tayla Ford (T)

Maya Angelou Center for Health Equity, Wake Forest University School of Medicine, Winston-Salem, NC, USA.

Jonathan L Haines (JL)

Department of Population and Quantitative Health Sciences, Case Western Reserve University, Cleveland, OH, USA.
Cleveland Institute for Computational Biology, Case Western Reserve University, Cleveland, OH, USA.

Gary Beecham (G)

John P. Hussman Institute for Human Genomics, University of Miami Miller School of Medicine, Miami, FL, USA.

Christiane Reitz (C)

Sergievsky Center, Taub Institute for Research on the Aging Brain, Departments of Neurology and Epidemiology, Columbia University, New York, NY, USA.

Jeffery M Vance (JM)

John P. Hussman Institute for Human Genomics, University of Miami Miller School of Medicine, Miami, FL, USA.

Margaret A Pericak-Vance (MA)

John P. Hussman Institute for Human Genomics, University of Miami Miller School of Medicine, Miami, FL, USA.

Goldie S Byrd (GS)

Maya Angelou Center for Health Equity, Wake Forest University School of Medicine, Winston-Salem, NC, USA.

Classifications MeSH