Community implementation of a brief parent mediated intervention for toddlers with probable or confirmed autism spectrum disorder: feasibility, acceptability, and drivers of success (IE Drmic et al.).

Exploration Preparation Implementation Sustainment (EPIS) framework Social ABCs autism community implementation community-partnered participatory partnership implementation effectiveness naturalistic developmental behavioral intervention (NDBI)

Journal

Frontiers in pediatrics
ISSN: 2296-2360
Titre abrégé: Front Pediatr
Pays: Switzerland
ID NLM: 101615492

Informations de publication

Date de publication:
2023
Historique:
received: 15 09 2023
accepted: 27 11 2023
medline: 7 2 2024
pubmed: 7 2 2024
entrez: 7 2 2024
Statut: epublish

Résumé

Social ABCs is a caregiver-mediated Naturalistic Developmental Behavioral Intervention for toddlers with confirmed/suspected Autism Spectrum Disorder (ASD), with evidence in controlled research settings. Information is lacking on implementation in community settings. We reported on the treatment effectiveness of this program within a community setting, and the current paper describes the implementation phase of this work. Distinguishing between treatment and implementation effectiveness is critical for transporting interventions from laboratory to community. Describe the implementation of Social ABCs through a large public autism service, supported by a research-community partnership. We describe this project through the Exploration, Preparation, Implementation, Sustainment (EPIS) framework as it focuses on implementation of evidence-based practices in publicly funded services. We apply this framework to the reporting stage. This project took place in the context of a 3-year government-funded pilot at a hospital-based publicly funded autism service. Six coaches were trained to fidelity, and three of these were further trained as Site Trainers. 183 clinically referred families enrolled and 89.4% completed the 12-week program. Caregivers reported increases in adherence and competence, high satisfaction and perceived benefits for their children. Coaches reported high satisfaction. Toddlers were appropriately identified to receive the intervention. Referral processes improved, including decreased referral age, and increased family readiness for diagnostic assessment and subsequent services. Social ABCs was successfully implemented in a community service through a research-community partnership. The program was feasible, acceptable, and appropriate within a community context. Drivers of success included funding, institutional support, shared decision-making, adaptations to fit context, leadership support, perceived positive impact, and commitment to evaluation.

Sections du résumé

Background UNASSIGNED
Social ABCs is a caregiver-mediated Naturalistic Developmental Behavioral Intervention for toddlers with confirmed/suspected Autism Spectrum Disorder (ASD), with evidence in controlled research settings. Information is lacking on implementation in community settings. We reported on the treatment effectiveness of this program within a community setting, and the current paper describes the implementation phase of this work. Distinguishing between treatment and implementation effectiveness is critical for transporting interventions from laboratory to community.
Objectives UNASSIGNED
Describe the implementation of Social ABCs through a large public autism service, supported by a research-community partnership.
Methods UNASSIGNED
We describe this project through the Exploration, Preparation, Implementation, Sustainment (EPIS) framework as it focuses on implementation of evidence-based practices in publicly funded services. We apply this framework to the reporting stage. This project took place in the context of a 3-year government-funded pilot at a hospital-based publicly funded autism service.
Results UNASSIGNED
Six coaches were trained to fidelity, and three of these were further trained as Site Trainers. 183 clinically referred families enrolled and 89.4% completed the 12-week program. Caregivers reported increases in adherence and competence, high satisfaction and perceived benefits for their children. Coaches reported high satisfaction. Toddlers were appropriately identified to receive the intervention. Referral processes improved, including decreased referral age, and increased family readiness for diagnostic assessment and subsequent services.
Conclusions UNASSIGNED
Social ABCs was successfully implemented in a community service through a research-community partnership. The program was feasible, acceptable, and appropriate within a community context. Drivers of success included funding, institutional support, shared decision-making, adaptations to fit context, leadership support, perceived positive impact, and commitment to evaluation.

Identifiants

pubmed: 38322245
doi: 10.3389/fped.2023.1295294
pmc: PMC10844426
doi:

Types de publication

Journal Article

Langues

eng

Pagination

1295294

Informations de copyright

© 2024 Drmic, Brian, Roncadin, Shaver, Pase, Rugajs, Tofano, Dowds, Zwaigenbaum, Smith and Bryson.

Déclaration de conflit d'intérêts

JB and SB co-developed the Social ABCs intervention. Neither party receives any royalties from its use, but we recognize the potential for reputational bias. The remaining authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

Auteurs

Irene Drmic (I)

McMaster Children's Hospital, Autism Program, Hamilton, ON, Canada.

Jessica Brian (J)

Autism Research Centre, Bloorview Research Institute, Toronto, ON, Canada.
Department of Paediatrics, University of Toronto, Toronto, ON, Canada.

Caroline Roncadin (C)

McMaster Children's Hospital, Autism Program, Hamilton, ON, Canada.

Chantelle Shaver (C)

McMaster Children's Hospital, Autism Program, Hamilton, ON, Canada.

Marlene Pase (M)

McMaster Children's Hospital, Autism Program, Hamilton, ON, Canada.

Natalie Rugajs (N)

McMaster Children's Hospital, Autism Program, Hamilton, ON, Canada.

Kristina Tofano (K)

McMaster Children's Hospital, Autism Program, Hamilton, ON, Canada.

Erin Dowds (E)

McMaster Children's Hospital, Autism Program, Hamilton, ON, Canada.

Lonnie Zwaigenbaum (L)

Autism Research Centre, University of Alberta, Edmonton, AB, Canada.

Isabel M Smith (IM)

Department of Pediatrics and Department of Psychology & Neuroscience, Autism Research Centre, IWK Health Centre, Dalhousie University, Halifax, NS, Canada.

Susan E Bryson (SE)

Department of Pediatrics and Department of Psychology & Neuroscience, Autism Research Centre, IWK Health Centre, Dalhousie University, Halifax, NS, Canada.

Classifications MeSH