Loss of TBC1D2B causes a progressive neurological disorder with gingival overgrowth.


Journal

European journal of human genetics : EJHG
ISSN: 1476-5438
Titre abrégé: Eur J Hum Genet
Pays: England
ID NLM: 9302235

Informations de publication

Date de publication:
19 Feb 2024
Historique:
received: 07 07 2023
accepted: 07 02 2024
revised: 30 01 2024
medline: 20 2 2024
pubmed: 20 2 2024
entrez: 20 2 2024
Statut: aheadofprint

Résumé

Biallelic loss-of-function variants in TBC1D2B have been reported in five subjects with cognitive impairment and seizures with or without gingival overgrowth. TBC1D2B belongs to the family of Tre2-Bub2-Cdc16 (TBC)-domain containing RAB-specific GTPase activating proteins (TBC/RABGAPs). Here, we report five new subjects with biallelic TBC1D2B variants, including two siblings, and delineate the molecular and clinical features in the ten subjects known to date. One of the newly reported subjects was compound heterozygous for the TBC1D2B variants c.2584C>T; p.(Arg862Cys) and c.2758C>T; p.(Arg920*). In subject-derived fibroblasts, TBC1D2B mRNA level was similar to control cells, while the TBC1D2B protein amount was reduced by about half. In one of two siblings with a novel c.360+1G>T splice site variant, TBC1D2B transcript analysis revealed aberrantly spliced mRNAs and a drastically reduced TBC1D2B mRNA level in leukocytes. The molecular spectrum included 12 different TBC1D2B variants: seven nonsense, three frameshifts, one splice site, and one missense variant. Out of ten subjects, three had fibrous dysplasia of the mandible, two of which were diagnosed as cherubism. Most subjects developed gingival overgrowth. Half of the subjects had developmental delay. Seizures occurred in 80% of the subjects. Six subjects showed a progressive disease with mental deterioration. Brain imaging revealed cerebral and/or cerebellar atrophy with or without lateral ventricle dilatation. The TBC1D2B disorder is a progressive neurological disease with gingival overgrowth and abnormal mandible morphology. As TBC1D2B has been shown to positively regulate autophagy, defects in autophagy and the endolysosomal system could be associated with neuronal dysfunction and the neurodegenerative disease in the affected individuals.

Identifiants

pubmed: 38374468
doi: 10.1038/s41431-024-01563-5
pii: 10.1038/s41431-024-01563-5
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Subventions

Organisme : Deutsche Forschungsgemeinschaft (German Research Foundation)
ID : KU 1240/13-1

Informations de copyright

© 2024. The Author(s).

Références

Harms FL, Parthasarathy P, Zorndt D, Alawi M, Fuchs S, Halliday BJ, et al. Biallelic loss-of-function variants in TBC1D2B cause a neurodevelopmental disorder with seizures and gingival overgrowth. Hum Mutat. 2020;41:1645–61.
doi: 10.1002/humu.24071 pubmed: 32623794
Correia-Costa GR, de Leeuw N, Pfundt R, Sgardioli IC, Dos Santos AP, de Lima Santos M, et al. Biallelic frameshift variant in the TBC1D2B gene in two siblings with progressive gingival overgrowth, fibrous dysplasia of face, and mental deterioration. Clin Genet. 2022;102:537–42.
doi: 10.1111/cge.14215 pubmed: 36029130
Bernards A. GAPs galore! A survey of putative Ras superfamily GTPase activating proteins in man and Drosophila. Biochim Biophys Acta. 2003;1603:47–82.
pubmed: 12618308
Fukuda M. TBC proteins: GAPs for mammalian small GTPase Rab? Biosci Rep. 2011;31:159–68.
doi: 10.1042/BSR20100112 pubmed: 21250943
Borchers AC, Langemeyer L, Ungermann C. Who’s in control? Principles of Rab GTPase activation in endolysosomal membrane trafficking and beyond. J Cell Biol. 2021;220:e202105120.
Kanno E, Ishibashi K, Kobayashi H, Matsui T, Ohbayashi N, Fukuda M. Comprehensive screening for novel rab-binding proteins by GST pull-down assay using 60 different mammalian Rabs. Traffic. 2010;11:491–507.
doi: 10.1111/j.1600-0854.2010.01038.x pubmed: 20070612
Munro S, Gillingham AK, Bertram J, Begum F. In vivo identification of GTPase interactors by mitochondrial relocalization and proximity biotinylation. Elife. 2019;8:e45916.
Wei D, Zhan W, Gao Y, Huang L, Gong R, Wang W, et al. RAB31 marks and controls an ESCRT-independent exosome pathway. Cell Res. 2021;31:157–77.
doi: 10.1038/s41422-020-00409-1 pubmed: 32958903
Schneeberger PE, Kortum F, Korenke GC, Alawi M, Santer R, Woidy M, et al. Biallelic MADD variants cause a phenotypic spectrum ranging from developmental delay to a multisystem disorder. Brain. 2020;143:2437–53.
doi: 10.1093/brain/awaa204 pubmed: 32761064 pmcid: 7447524
Sobreira N, Schiettecatte F, Boehm C, Valle D, Hamosh A. New tools for Mendelian disease gene identification: PhenoDB variant analysis module; and GeneMatcher, a web-based tool for linking investigators with an interest in the same gene. Hum Mutat. 2015;36:425–31.
doi: 10.1002/humu.22769 pubmed: 25684268 pmcid: 4820250
Richards S, Aziz N, Bale S, Bick D, Das S, Gastier-Foster J, et al. Standards and guidelines for the interpretation of sequence variants: a joint consensus recommendation of the American College of Medical Genetics and Genomics and the Association for Molecular Pathology. Genet Med. 2015;17:405–24.
doi: 10.1038/gim.2015.30 pubmed: 25741868 pmcid: 4544753
He L, Ping FY. Gingival fibromatosis with multiple unusual findings: report of a rare case. Int J Oral Sci. 2012;4:221–5.
doi: 10.1038/ijos.2012.53 pubmed: 22955199 pmcid: 3633067
Yalcin S, Yalcin F, Soydinc M, Palanduz S, Gunhan O. Gingival fibromatosis combined with cherubism and psychomotor retardation: a rare syndrome. J Periodontol. 1999;70:201–4.
doi: 10.1902/jop.1999.70.2.201 pubmed: 10102559
Kannu P, Baskin B, Bowdin S Cherubism. In: Adam MP, Mirzaa GM, Pagon RA, Wallace SE, Bean LJH, Gripp KW, et al., editors. GeneReviews((R)). Seattle (WA): University of Washington, Seattle; 1993-2024.
Chrcanovic BR, Guimaraes LM, Gomes CC, Gomez RS. Cherubism: a systematic literature review of clinical and molecular aspects. Int J Oral Maxillofac Surg. 2021;50:43–53.
doi: 10.1016/j.ijom.2020.05.021 pubmed: 32620450
Ueki Y, Tiziani V, Santanna C, Fukai N, Maulik C, Garfinkle J, et al. Mutations in the gene encoding c-Abl-binding protein SH3BP2 cause cherubism. Nat Genet. 2001;28:125–6.
doi: 10.1038/88832 pubmed: 11381256
Lietman SA, Yin L, Levine MA. SH3BP2 mutations potentiate osteoclastogenesis via PLCgamma. J Orthop Res. 2010;28:1425–30.
doi: 10.1002/jor.21164 pubmed: 20872577 pmcid: 2948751
Ueki Y, Lin CY, Senoo M, Ebihara T, Agata N, Onji M, et al. Increased myeloid cell responses to M-CSF and RANKL cause bone loss and inflammation in SH3BP2 “cherubism” mice. Cell. 2007;128:71–83.
doi: 10.1016/j.cell.2006.10.047 pubmed: 17218256
Le Bras S, Moon C, Foucault I, Breittmayer JP, Deckert M. Abl-SH3 binding protein 2, 3BP2, interacts with CIN85 and HIP-55. FEBS Lett. 2007;581:967–74.
doi: 10.1016/j.febslet.2007.01.084 pubmed: 17306257
Gripp KW, Smithson SF, Scurr IJ, Baptista J, Majumdar A, Pierre G, et al. Syndromic disorders caused by gain-of-function variants in KCNH1, KCNK4, and KCNN3-a subgroup of K(+) channelopathies. Eur J Hum Genet. 2021;29:1384–95.
doi: 10.1038/s41431-021-00818-9 pubmed: 33594261 pmcid: 8440610
Mehawej C, Hoischen A, Farah RA, Marey I, David M, Stora S, et al. Homozygous mutation in ELMO2 may cause Ramon syndrome. Clin Genet. 2018;93:703–6.
doi: 10.1111/cge.13166 pubmed: 29095483
Ramon Y, Berman W, Bubis JJ. Gingival fibromatosis combined with cherubism. Oral Surg Oral Med Oral Pathol. 1967;24:435–48.
doi: 10.1016/0030-4220(67)90416-1 pubmed: 5235465
Surej Kumar LK, Deepa DS, Dilna S. Ramon Syndrome- A Rare Form of Cherubism. Ann Maxillofac Surg. 2019;9:415–8.
doi: 10.4103/ams.ams_12_19 pubmed: 31909027 pmcid: 6933994
de Pina-Neto JM, de Souza NV, Velludo MA, Perosa GB, de Freitas MM, Colafemina JF. Retinal changes and tumorigenesis in Ramon syndrome: follow-up of a Brazilian family. Am J Med Genet. 1998;77:43–6.
doi: 10.1002/(SICI)1096-8628(19980428)77:1<43::AID-AJMG10>3.0.CO;2-O pubmed: 9557893
Parkin B, Law C. Axenfeld anomaly and retinal changes in Ramon syndrome: follow-up of two sibs. Am J Med Genet. 2001;104:131–4.
doi: 10.1002/ajmg.1590 pubmed: 11746043
Pina-Neto JM, Moreno AF, Silva LR, Velludo MA, Petean EB, Ribeiro MV, et al. Cherubism, gingival fibromatosis, epilepsy, and mental deficiency (Ramon syndrome) with juvenile rheumatoid arthritis. Am J Med Genet. 1986;25:433–41.
doi: 10.1002/ajmg.1320250305 pubmed: 3789007
Pridmore C, Baraitser M, Leonard J. Ramon syndrome with diabetes mellitus and vascular skin lesions in two sibs. Clin Dysmorphol. 1992;1:29–35.
doi: 10.1097/00019605-199201000-00005 pubmed: 1342855
Suhanya J, Aggarwal C, Mohideen K, Jayachandran S, Ponniah I. Cherubism combined with epilepsy, mental retardation and gingival fibromatosis (Ramon syndrome): a case report. Head Neck Pathol. 2010;4:126–31.
doi: 10.1007/s12105-009-0155-9 pubmed: 20512637
Hoffmann ME, Jacomin AC, Popovic D, Kalina D, Covarrubias-Pinto A, Dikic I. TBC1D2B undergoes phase separation and mediates autophagy initiation. J Cell Biochem. 2024; https://doi.org/10.1002/jcb.30481 .
Birgisdottir AB, Johansen T. Autophagy and endocytosis—interconnections and interdependencies. J Cell Sci. 2020;133:jcs228114.
Giovedi S, Ravanelli MM, Parisi B, Bettegazzi B, Guarnieri FC. Dysfunctional autophagy and endolysosomal system in neurodegenerative diseases: relevance and therapeutic options. Front Cell Neurosci. 2020;14:602116.
doi: 10.3389/fncel.2020.602116 pubmed: 33390907 pmcid: 7773602
Papandreou ME, Tavernarakis N. Crosstalk between endo/exocytosis and autophagy in health and disease. Biotechnol J. 2020;15:e1900267.
doi: 10.1002/biot.201900267 pubmed: 32143239

Auteurs

Frederike L Harms (FL)

Institute of Human Genetics, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.

Jessica Erin Rexach (JE)

Department of Neurology, Program in Neurogenetics, David Geffen School of Medicine, University of California Los Angeles, Los Angeles, CA, USA.

Stephanie Efthymiou (S)

Department of Neuromuscular Disorders, UCL Queen Square Institute of Neurology, London, WC1N 3BG, UK.

Busra Aynekin (B)

Department of Neuromuscular Disorders, UCL Queen Square Institute of Neurology, London, WC1N 3BG, UK.

Hüseyin Per (H)

Division of Pediatric Neurology, Department of Pediatrics, Faculty of Medicine, Erciyes University, Kayseri, Turkey.

Ayten Güleç (A)

Division of Pediatric Neurology, Department of Pediatrics, Faculty of Medicine, Erciyes University, Kayseri, Turkey.

Sheela Nampoothiri (S)

Department of Pediatric Genetics, Amrita Institute of Medical Sciences and Research Centre, Cochin, Kerala, India.

Hugo Sampaio (H)

Department of Women and Children's Health, University of New South Wales, Randwick Campus, Randwick, NSW, Australia.
Sydney Children's Hospital, Randwick, NSW, Australia.

Rani Sachdev (R)

Centre for Clinical Genetics, Sydney Children's Hospital, Randwick, NSW, Australia.
School of Women's and Children's Health, University of New South Wales, Randwick, NSW, Australia.

Radka Stoeva (R)

Department of Medical Genetics, Le Mans Hospital, Le Mans, France.

Kasiani Myers (K)

Division of Bone Marrow Transplant, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA.

Loren D M Pena (LDM)

Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA.
Division of Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.

Theodosia A Kalfa (TA)

Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA.
Division of Hematology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.

Marisa Chard (M)

Provincial Medical Genetics Program, Newfoundland and Labrador Health Services, St. John's, NL, Canada.
Department of Pediatrics, Memorial University Faculty of Medicine, St. John's, NL, Canada.

Megan Klassen (M)

Provincial Medical Genetics Program, Newfoundland and Labrador Health Services, St. John's, NL, Canada.

Megan Pries (M)

Provincial Medical Genetics Program, Newfoundland and Labrador Health Services, St. John's, NL, Canada.

Kerstin Kutsche (K)

Institute of Human Genetics, University Medical Center Hamburg-Eppendorf, Hamburg, Germany. kkutsche@uke.de.

Classifications MeSH