Gastroschisis prevalence patterns in 27 surveillance programs from 24 countries, International Clearinghouse for Birth Defects Surveillance and Research, 1980-2017.

gastroschisis geographic region multinational prevalence surveillance

Journal

Birth defects research
ISSN: 2472-1727
Titre abrégé: Birth Defects Res
Pays: United States
ID NLM: 101701004

Informations de publication

Date de publication:
Feb 2024
Historique:
revised: 04 01 2024
received: 09 08 2023
accepted: 05 01 2024
medline: 27 2 2024
pubmed: 27 2 2024
entrez: 27 2 2024
Statut: ppublish

Résumé

Gastroschisis is a serious birth defect with midgut prolapse into the amniotic cavity. The objectives of this study were to evaluate the prevalence and time trends of gastroschisis among programs in the International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR), focusing on regional variations and maternal age changes in the population. We analyzed data on births from 1980 to 2017 from 27 ICBDSR member programs, representing 24 countries and three regions (Europe Overall, gastroschisis occurred in 1 of every 3268 births (3.06 per 10,000 births; 95% confidence intervals [CI]: 3.01, 3.11), with marked regional variation. European Gastroschisis prevalence increased over time in 61% of participating programs, and the highest increase in prevalence was observed among the youngest women. Additional inquiry will help to assess the impact of the changing maternal age proportions in the birth population on gastroschisis prevalence.

Sections du résumé

BACKGROUND BACKGROUND
Gastroschisis is a serious birth defect with midgut prolapse into the amniotic cavity. The objectives of this study were to evaluate the prevalence and time trends of gastroschisis among programs in the International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR), focusing on regional variations and maternal age changes in the population.
METHODS METHODS
We analyzed data on births from 1980 to 2017 from 27 ICBDSR member programs, representing 24 countries and three regions (Europe
RESULTS RESULTS
Overall, gastroschisis occurred in 1 of every 3268 births (3.06 per 10,000 births; 95% confidence intervals [CI]: 3.01, 3.11), with marked regional variation. European
CONCLUSIONS CONCLUSIONS
Gastroschisis prevalence increased over time in 61% of participating programs, and the highest increase in prevalence was observed among the youngest women. Additional inquiry will help to assess the impact of the changing maternal age proportions in the birth population on gastroschisis prevalence.

Identifiants

pubmed: 38411327
doi: 10.1002/bdr2.2306
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

e2306

Informations de copyright

© 2024 The Authors. Birth Defects Research published by Wiley Periodicals LLC.

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Auteurs

Marcia L Feldkamp (ML)

Division of Medical Genetics, Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, Utah, USA.

Mark A Canfield (MA)

Birth Defects Epidemiology and Surveillance Branch, Texas Department of State Health Services, Austin, Texas, USA.

Sergey Krikov (S)

Division of Medical Genetics, Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, Utah, USA.

David Prieto-Merino (D)

Faculty of Medicine, Universidad de Alcalá, Madrid, Spain.

Antonin Šípek (A)

Czech Republic Department of Medical Genetics, Thomayer Hospital, Prague, Czech Republic.

Nathalie LeLong (N)

Université Paris Cité, Centre of Research in Epidemiology and StatisticS (CRESS), Obstetrical Perinatal and Pediatric Epidemiology Research Team (EPOPé), INSERM, INRA, Paris, France.

Emmanuelle Amar (E)

France REMERA, Registre des malformations en Rhône Alpes, Hospices Civils de Lyon, Lyon, France.

Anke Rissmann (A)

Malformation Monitoring Centre Saxony-Anhalt, Medical Faculty Otto-von-Guericke-University Magdeburg, Magdeburg, Germany.

Melinda Csaky-Szunyogh (M)

Hungarian Congenital Anomalies Registry and Rare Diseases Centre, National Center for Public Health and Pharmacy, Budapest, Hungary.

Giovanna Tagliabue (G)

Lombardy Congenital Anomalies Registry, Cancer Registry Unit, Fondazione IRCCS, Istituto Nazionale dei tumori, Milan, Italy.

Anna Pierini (A)

Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council and Fondazione Toscana Gabriele Monasterio, Tuscany Registry of Congenital Defects, Pisa, Italy.

Miriam Gatt (M)

Malta Congenital Anomalies Registry, Directorate for Health Information and Research, Pieta, Malta.

Jorieke E H Bergman (JEH)

Department of Genetics, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands.

Elena Szabova (E)

Faculty of Public Health, Slovak Medical University in Bratislava, Bratislava, Slovak Republic.

Eva Bermejo-Sánchez (E)

ECEMC (Spanish Collaborative Study of Congenital Malformations), CIAC (Research Center on Congenital Anomalies), Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III, Madrid, Spain.

David Tucker (D)

Congenital Anomaly Register & Information Service for Wales, Public Health Wales, Knowledge Directorate, Singleton Hospital, Sketty Lane, Swansea, UK.

Saeed Dastgiri (S)

Health Services Management Research Centre, Tabriz University of Medical Sciences, Tabriz, Iran.

María Paz Bidondo (MP)

National Network of Congenital Anomalies of Argentina (RENAC), National Institute of Epidemiology (INE), National Administration of Laboratories and Health Institutes, National Ministry of Health Institutes, Buenos Aires, Argentina.

Aurora Canessa (A)

Regional Register Congenital Malformation Maule Health Service (RRMC-SSM), Maule, Chile.

Ignacio Zarante (I)

Instituto de Genética Humana, Pontificia Universidad Javeriana Bogotá, Bogotá, Colombia.

Paula Hurtado-Villa (P)

Facultad de Ciencias de la Salud, Pontificia Universidad Javeriana Cali, Cali, Colombia.

Laura Martinez (L)

Mexico ReDeCo, Monterrey, Nuevo Leon, Mexico.

Osvaldo M Mutchinick (OM)

Department of Genetics, Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, RYVEMCE, Registry and Epidemiological Surveillance of Congenital Malformations, Mexico City, Mexico.

Jorge Lopez Camelo (JL)

ECLAMC, Center for Medical Education and Clinical Research (CEMIC-CONICET), Buenos Aires, Argentina.

Adriana Benavides-Lara (A)

Costa Rican Birth Defects Register Center (CREC), Costa Rican Institute for Research and Teaching in Nutrition and Health (INCIENSA), Cartago, Costa Rica.

Mary Ann Thomas (MA)

Department of Medical Genetics and Pediatrics, Alberta Congenital Anomalies Surveillance System, Alberta Children's Hospital, Calgary, Alberta, Canada.

Shiliang Liu (S)

Canadian Congenital Anomalies Surveillance System (CCASS), Centre for Surveillance and Applied Research, Public Health Agency of Canada, Ottawa, Ontario, Canada.

Wendy N Nembhard (WN)

Department of Epidemiology, Fay W. Boozman College of Public Health, University of Arkansas for Medical Sciences and Arkansas Reproductive Health Monitoring System, Arkansas Children's Research Institute, Little Rock, Arkansas, USA.

Elizabeth B Gray (EB)

Metropolitan Atlanta Congenital Defects Program, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.

Amy E Nance (AE)

Utah Birth Defect Network, Office of Children with Special Care Needs, Division of Family Health, Utah Department of Health and Human Services, Salt Lake City, Utah, USA.

Pierpaolo Mastroiacovo (P)

International Center on Birth Defects, International Clearinghouse for Birth Defects Surveillance and Research, Rome, Italy.

Lorenzo D Botto (LD)

Department of Pediatrics, The University of Utah, Salt Lake City, Utah, USA.

Classifications MeSH